Participation of relatives in the care of cancer patients in hospital-A scoping review

Abstract

The purpose of the review was to describe what kind of research has been conducted concerning relatives' participation in the care of cancer patients in hospital and how relatives have participated in the care. Data (n = 9) were identified through a manual search and by searching the electronic databases (n = 8) Cinahl, PubMed and Cochrane Library and analysed with deductive content analysis. According to the review, participation in the concrete care appeared as taking care of comprehensive care and the quality of care, helping with daily activities and helping the healthcare professionals. Emotional support appeared as protecting, supporting and visiting the patient and discussing with the patient. Participation in decision-making appeared as acting as an advocate for the patient, participating in the discussion concerning the decision-making and participating in the discussion concerning the decisions of end of life. According to the review, research concerning this topic seems to be rare. While hospital periods are shortening and homecare is increasing, the role of relatives as a supporter of the cancer patient is becoming even stronger. In the future, more research should be conducted how the patients experience participation and what are their wishes.

Using communication to manage missed care: A case study applying the Fundamentals of Care framework

“…The evident link in this study between patient-provider communication and patient participation is previously described (Castro, Van Regenmortel, Vanhaecht, Sermeus, & Van Hecke, 2016). However, this study adds that creating physical volving relatives in patient care has been presented in several studies (Alshahrani, Magarey, & Kitson, 2018;Lundin, Hadziabdic, & Hjelm, 2018;Partanen, Lemetti, & Haavisto, 2018). However, nurses need to consider that although relatives may be more available, their help depends upon their ability and willingness, and patient privacy may be at risk.…”

“…Also, relatives, who could speak to providers, explain what was said, and overcome the challenges of medical terminology and patient weariness, was found as another promising channel of communication. The potential of involving relatives in patient care has been presented in several studies (Alshahrani, Magarey, & Kitson, 2018; Lundin, Hadziabdic, & Hjelm, 2018; Partanen, Lemetti, & Haavisto, 2018). However, nurses need to consider that although relatives may be more available, their help depends upon their ability and willingness, and patient privacy may be at risk.…”

Anxiety and depression in relatives of patients with cancer

“…Partanen E., Lemetti T., Haavisto E. виявили, що у членів сімей онкологічних пацієнтів визначається власний спектр психологічних проблем, що включають високий рівень дистресу, почуття провини за неможливість допомогти хворому, тривогу, що вони є гарантами благополуччя пацієнтів [14]. У проведеному нами дослідженні також було встановлено взаємозв'язок впливу онкологічного захворювання пацієнта на психоемоційний стан членів сімей та психологічні чинники, які на це впливали, зокрема аналіз в залежності від етапу захворювання та рівня сімейної адаптації.…”

Measuring next of kin satisfaction with hospital cancer care: Using a mixed‐method approach as basis for improving quality and safety

“…Although, mixed‐method studies exits in the cancer area, there is only a limited amount of studies combining qualitative and quantitative data about next of kin satisfaction with care together with mapping their suggestions for involvement (Aspinal et al, ; Hannon et al, ; Partanen, Lemetti, & Haavisto, ). This indicates an unexplored potential for mixed‐methods design looking into next of kin satisfaction with care and their interest in being involved.…”