Participation of people with acquired brain injury: Insiders perspectives

Abstract

People with ABI contend that it is not the degree of participation that matters, but the quality of participation. They describe meaningful participation in terms of taking part, giving something and being someone. A model was constructed based on the experiences, which includes personal and environmental factors that, in interaction, may influence participation: participation is influenced by the process of recovery, support and treatment, the environment and society and communication and interaction. The study resulted in an overview of actions like continual care that may improve the participation of people with ABI.

Re-engaging with places: Understanding bio-geo-graphical disruption and flow in adult brain injury survivors

“…In an article on 'insider perspectives' on participation after ABI, Schipper et al (2011: 836, original emphasis) found that participation is about "taking part, giving something and being someone in a specific context". When ABI survivors experience their participation as restricted, this is especially problematic when the restrictions pertain to activities that contribute to a sense of meaningful participation in society (Schipper et al, 2011). This discussion ties in to ideas from the literature on geographies of disability, how ˈableistˈ spaces can actually stress and worsen people's impairments (Crooks et al, 2008).…”

“…After in-patient rehabilitation, ABI survivors often experience restrictions in their participation in society (Fallahpour et al, 2015;Schipper et al, 2011). Because of their impairments, the amount of activities they can undertake on one day is limited (WHO, 2006).…”

Introducing the model of cognitive-communication competence: A model to guide evidence-based communication interventions after brain injury

“…The model illustrates the interaction between the communication and context domains because facility with discourse can vary as a function of task, sampling technique, discourse analysis, conversation partner characteristics, or amount of contextual support (52,53,132,137). Research supports assessment and treatment using a range of discourse tasks, contexts, communication partners, and opportunities for practice and feedback in communication contexts that are similar to the individual's daily life (52,205,206). Discourse measures that have been found to differentiate performance of those with and without brain injury include measures related to story completeness, productivity, efficiency, content accuracy, coherence, and organization or story grammar (89,207).…”

Navigation ability in patients with acquired brain injury: A population-wide online study

“…Patients often report cognitive impairments (e.g., working memory, executive functioning, attention) (Rees et al, 2007) in addition to social, emotional and behavioural problems (Cattelani et al, 2010;Milders et al, 2003). These impairments typically carry over to activities of daily living such as returning to work, doing groceries or maintaining a social network (Häggström & Lund, 2008;Schipper et al, 2011;Van Velzen et al, 2009;Wade et al, 2018).…”