Participation of Minorities in Cancer Research

Giuliano, Anna R.; Mokuau, Noreen; Hughes, Claire; Tortolero‐Luna, Guillermo; Risendal, Betsy; Ho, Reginald C. S.; Prewitt, T. Elaine; McCaskill‐Stevens, Worta

doi:10.1016/s1047-2797(00)00195-2

Cited by 246 publications

(91 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Furthermore, those who reported not being able to afford to go to the doctor, and those without a job reported greater willingness to participate. These findings are in contrast to other studies that have suggested persons with limited access to healthcare services and persons who are uninsured are less likely to participate in research 24, 43, 44, 45, 46, 47. These unexpected findings may be due to the high proportion of uninsured patients who are treated by the academic medical center, which is also the primary health research organization in the state.…”

Section: Discussioncontrasting

confidence: 94%

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

McElfish

Long

Selig

et al. 2018

Clinical Translational Sci

View full text Add to dashboard Cite

Prior research suggests that rural and minority communities participate in research at lower rates. While rural and minority populations are often cited as being underrepresented in research, population‐based studies on health research participation have not been conducted. This study used questions added to the 2015 Behavioral Risk Factor Surveillance System to understand factors associated with i) health research participation, ii) opportunities to participate in health research, and iii) willingness to participate in health research from a representative sample (n = 5,256) of adults in Arkansas. Among all respondents, 45.5% would be willing to participate in health research if provided the opportunity and 22.1% were undecided. Only 32.4% stated that they would not be willing to participate in health research. There was no significant difference in participation rates for rural or racial/ethnic minority communities. Furthermore, racial/ethnic minority respondents (Black or Hispanic) were more likely to express their willingness to participate.

show abstract

Section: Discussioncontrasting

confidence: 94%

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

McElfish

Long

Selig

et al. 2018

Clinical Translational Sci

View full text Add to dashboard Cite

show abstract

“…[4]. However, despite the potential benefits of such interventions, research finds that family interventions often have low participation rates [5] and that there are a number of challenges that can be faced when attempting to recruit participants with low levels of education and English fluency [6]. The purpose of the present study is to examine correlates of Spanish-speaking Latino parents’ interest for participation in an educational intervention to improve learning and school success in children with cancer-related cognitive and behavioral late effects.…”

Section: Introductionmentioning

confidence: 99%

“…Studies of family intervention engagement and effectiveness have grouped the factors most predictive of intervention outcomes into three categories: socio-demographic, family-level, and child-related factors [5, 15]. With regard to socio-demographic factors, education level seems to be most consistently associated with greater willingness to participate in family interventions among Latinos and other groups [5], although low levels of acculturation and language fluency have also been connected to lower participation rates among Latinos in clinical cancer research [6]. Family-level factors related to willingness to participate in interventions include decreased self-efficacy regarding their own parenting effectiveness [16]; however parents’ general beliefs regarding the potential utility of interventions have not been shown to strongly influence engagement [17].…”

Section: Introductionmentioning

confidence: 99%

Willingness to Participate in a Parental Training Intervention to Reduce Neurocognitive Late Effects Among Latino Parents of Childhood Cancer Survivors

2014

View full text Add to dashboard Cite

The purpose of the study was to examine correlates of Spanish-speaking Latino parents’ interest for participation in an educational intervention to improve learning and school success in children with cancer-related cognitive and behavioral late effects. Participants included 73 Latino caregivers of school age children who are survivors of brain tumor or leukemia and at risk for cognitive late effects. . The parents completed a battery of surveys relating to interest in and barriers to intervention participation, as well as measures of parental knowledge and beliefs and their children's cognitive functioning, and health-related quality of life. Results showed that the majority of parents expressed interest in participating in the proposed 8-week intervention, with over 90% indicating interest in learning more about improving grades, making learning more exciting, being a role model, and the impact of cancer on memory. The factors most strongly related to interest in intervention included lower maternal education, as well as perceptions of greater child cognitive difficulties and lower health-related quality of life. The barriers most highly endorsed by the most parents were difficulty paying for gas, child care responsibility, and too much stress in other parts of life. Also highly endorsed as barriers were statements relating to the child's lack of interest and need for services (i.e., my child is doing fine). These findings are consistent with the Health Belief Model wherein decisions to engage in health-related behaviors are made by weighing the potential benefits relative to the costs and barriers.

show abstract

“…Fallowfield and co-workers 9 argue that recruitment difficulties often arise from potential participants’ lack of understanding of terms such as “randomization.” Misperceptions in the randomization process (i.e., for participants with cancer, the minimum level of care received is the best available current treatment rather than placebo) can also lead to suspicion on the part of potential participants about the ethical nature of the research. 8-10 …”

Section: Impact Of Lack Of Knowledge On Negative Perceptions Of Cancementioning

confidence: 99%

Assessing an Intervention to Improve Clinical Trial Perceptions Among Predominately African-American Communities in South Carolina

Ford¹,

Wahlquist²,

Blake³

et al. 2012

cpr

View full text Add to dashboard Cite

Background African Americans (AA) are not well-represented in cancer clinical trials despite having significantly higher cancer mortality rates than their European-American (EA) counterparts. Objectives The purpose of this study was to evaluate a program to improve perceptions of cancer clinical trials among AA. Methods The program was conducted in a convenience sample of 195 participants (75.4% AA) who lived in counties with high racial disparities in cancer mortality rates and who were recruited by community partners. The 30-minute program, part of a larger 3.5-hour cancer education program, was developed by the National Institutes of Health (NIH)/ National Cancer Institute (NCI). It was modified to include additional pictures of AA, AA-specific cancer mortality data, and information about the Tuskegee Syphilis Study and the resulting improved participant protection measures. Measures The seven-item Attitudes to Randomized Trial Questionnaire (ARTQ) was used to evaluate changes in trial perceptions from pre- to posttest. Additional survey items assessed general demographic characteristics. Results Slightly more than half of the participants had at least a college diploma (54.4%), 45.1% were married/living as married, 53.3% were female, and 45.6% had an annual household income of less than $40,000. For each ARTQ item, most participants who had less favorable perceptions of trials at pretest changed to more positive perceptions at posttest (p < .001). Conclusions Providing cancer clinical trial information led to more positive perceptions of cancer clinical trials. In future studies, the program could be used to help potential trial participants make informed decisions about participation; trial enrollment rates could then be evaluated.

show abstract

Participation of Minorities in Cancer Research

Cited by 246 publications

References 31 publications

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas

Willingness to Participate in a Parental Training Intervention to Reduce Neurocognitive Late Effects Among Latino Parents of Childhood Cancer Survivors

Assessing an Intervention to Improve Clinical Trial Perceptions Among Predominately African-American Communities in South Carolina

Contact Info

Product

Resources

About