Participation in treatment decision-making among Chinese-Australian women with breast cancer

Kwok, Cannas; Koo, Fung Kuen

doi:10.1007/s00520-016-3487-5

Cited by 27 publications

(41 citation statements)

References 25 publications

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“…In Confucian morality systems, people tend to be reluctant to make medical decisions and instead leave them to clinicians. 28 This attitude has been conceptualized in recent studies as relational autonomy. 29 This perspective recognizes that self-determination is defined in a social context (ie, ethnicity, familial positioning, etc) and that this context influences the expressions or development of autonomy.…”

Section: Discussionmentioning

confidence: 99%

Family Members' Experience of Discussions on End-of-Life Care in Nursing Homes in Japan

Kato

Tamura

2020

J Hosp Palliat Nurs

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In nursing homes, discussions between family members and staff regarding the end of life for residents with cognitive impairment are crucial to the choice of treatment and care consistent with residents' wishes. However, family members experience burden in such discussions, and communication with staff remains inadequate. The purpose of this qualitative descriptive study was to elucidate the meaning of continuous end-of-life discussion for family members. Data were collected using semistructured individual interviews. Thirteen family members of residents from 3 nursing homes in Kyoto, Japan, participated in the study. Data were analyzed using thematic analysis, which focused on both explicit and implicit meanings. Four themes emerged regarding the experience of end-of-life discussion: “the end of life soaking in,” “hardship of making the decision to end my family member's life,” “wavering thoughts about decisions made and actions taken,” and “feeling a sense of participation about the care.” Family members had come to accept the deaths of residents through continuous discussion and experienced strong conflict in facing the death of their family members. Moreover, staff members should understand family members' beliefs and the burden they experience in facing residents' death.

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Section: Discussionmentioning

confidence: 99%

Family Members' Experience of Discussions on End-of-Life Care in Nursing Homes in Japan

Kato

Tamura

2020

J Hosp Palliat Nurs

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“…Further research is needed to understand the specific cultural and language drivers that influence treatment shared decision-making among Asian American men with prostate cancer. For example, in some Asian cultures, the role of the family is a key determinant to the decision-making process [42,43]; and patients’ expectations of their provider’s roles can significantly influence the decision-making process, as some Asian patients may perceive offers of different treatment options as doctors’ incompetence [44]. …”

Section: Discussionmentioning

confidence: 99%

Racial and Ethnic Differences in Prostate Cancer Survivors’ Perceived Engagement in Treatment Decision-Making

Palmer

Gregorich

Livaudais‐Toman

et al. 2018

J. Racial and Ethnic Health Disparities

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“… 15 – 17 Some of the barriers include language difficulties, health literacy, complexity of health care systems, and degree of acculturation. 18 A study by Claramita et al among patients and physicians in Indonesia, a neighboring country of Malaysia, reported that doctor–patient communication was affected by the cultural characteristics of the patients. 19 Therefore, this study investigated the perceived and preferred involvement level of breast cancer patients in the treatment decision-making process, sociodemographic factors that influence treatment decision-making, and the concordance between patients’ and physicians’ perspectives in decision-making.…”

Section: Introductionmentioning

confidence: 99%

Treatment decision-making among breast cancer patients in Malaysia

Nies¹,

Islahudin²,

Chong³

et al. 2017

PPA

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PurposeThis study investigated breast cancer patients’ involvement level in the treatment decision-making process and the concordance between patients’ and physician’s perspectives in decision-making.Participants and methodsA cross-sectional study was conducted involving physicians and newly diagnosed breast cancer patients from three public/teaching hospitals in Malaysia. The Control Preference Scale (CPS) was administered to patients and physicians, and the Krantz Health Opinion Survey (KHOS) was completed by the patients alone. Binary logistic regression was used to determine the association between sociodemographic characteristics, the patients’ involvement in treatment decision-making, and patients’ preference for behavioral involvement and information related to their disease.ResultsThe majority of patients preferred to share decision-making with their physicians (47.5%), while the second largest group preferred being passive (42.6%) and a small number preferred being active (9.8%). However, the physicians perceived that the majority of patients preferred active decision-making (56.9%), followed by those who desired shared decision-making (32.8%), and those who preferred passive decision-making (10.3%). The overall concordance was 26.5% (54 of 204 patient–physician dyads). The median of preference for information score and behavioral involvement score was 4 (interquartile range [IQR] =3–5) and 2 (IQR =2–3), respectively. In univariate analysis, the ethnicity and educational qualification of patients were significantly associated with the patients’ preferred role in the process of treatment decision-making and the patients’ preference for information seeking (p>0.05). However, only educational qualification (p=0.004) was significantly associated with patients’ preference for information seeking in multivariate analysis.ConclusionPhysicians failed to understand patients’ perspectives and preferences in treatment decision-making. The concordance between physicians’ perception and patients’ perception was quite low as the physicians perceived that more than half of the patients were active in treatment decision-making. In actuality, more than half of patients perceived that they shared decision-making with their physicians.

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Participation in treatment decision-making among Chinese-Australian women with breast cancer

Abstract: Intervention to improve doctors' cultural sensitivities in order to help them assess women's role preferences in TDM and the ability of doctors to communicate in a culturally appropriate manner, may improve the process of breast cancer TDM among women from Chinese background.

Cited by 27 publications

References 25 publications

Family Members' Experience of Discussions on End-of-Life Care in Nursing Homes in Japan

Family Members' Experience of Discussions on End-of-Life Care in Nursing Homes in Japan

Racial and Ethnic Differences in Prostate Cancer Survivors’ Perceived Engagement in Treatment Decision-Making

Treatment decision-making among breast cancer patients in Malaysia

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