Participation in a social and recreational day programme increases community integration and reduces family burden of persons with acquired brain injury

Gerber, Gary; Gargaro, Judith

doi:10.3109/02699052.2015.1004745

Cited by 22 publications

(24 citation statements)

References 34 publications

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“… Caregiver and family burden Serious Mental Illness (SMI) 19 items (10 for objective burden, 9 subjective burden) Used in Johansson et al., (MH); Gerber and Gargaro () (brain injury) …”

Section: Resultsmentioning

confidence: 99%

Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

Lin

Durbin

Guerriere

et al. 2018

Health Soc Care Community

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As mental health (MH) care has shifted from institutional settings to the community, families and friends are responsible for providing the majority of the care at home. The substantial literature on the adverse effects experienced by caregivers has focused mainly on psychological morbidity. Less attention has been paid to how caregivers for persons with MH disorders interact with larger social systems and the impacts of factors such as financial strain, lost time from leisure activities, and the availability of health and social services. We conducted a scoping review of MH and other caregiver questionnaires published between 1990 and 2016 to determine whether they addressed four key domains: caregiver work demands, resource needs, resource utilisation and costs. A range of health and social care databases were searched, including MEDLINE and Health and Psychosocial Instruments. After screening for relevance and quality, our search identified 14 instruments addressing elements related to one or more of our domains. Because these instruments covered only a small portion of our domains, we conducted a second targeted search of the general care-giving literature and consulted with experts, identifying an additional 18 instruments. A total of 32 questionnaires were reviewed, 14 specific to care-giving for mental health problems and 18 for other health conditions. Our search identified instruments or items within instruments that assess constructs in each of our domains, but no one instrument covered them completely. Additionally, some constructs were evaluated in detail and others only addressed by single items. While these instruments are helpful for moving measurement beyond the psychological impacts of care-giving, our results serve only as an initial guide. Additional methodological work is needed to more comprehensively measure the impact of care-giving for individuals with MH disorders and to contribute to the development of more meaningful and effective policies and programmes. K E Y W O R D Scare-giving, measurement, mental health, questionnaire, scoping review 2 | LIN et aL. | INTRODUCTIONAs the primary site of mental health (MH) care has shifted from the institutional setting to the community, the role of family members and friends in the care of individuals who have mental health problems has also shifted (Ohaeri, 2003). Most mental health problems begin before age 25 (Kessler et al., 2007) when parents and other family members are already negotiating multiple roles including parenting, supporting ageing parents and managing careers. Many individuals will achieve full recovery from their mental health problems. However, others will experience significant work and social sequelae and, depending on their specific illness, may require either ongoing or episodic help from family and friends throughout their lives. Systems of care exist and are being further developed to support people with mental health problems living in the community; however, the demands on family, friends and caregivers remain su...

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“… Caregiver and family burden Serious Mental Illness (SMI) 19 items (10 for objective burden, 9 subjective burden) Used in Johansson et al., (MH); Gerber and Gargaro () (brain injury) …”

Section: Resultsmentioning

confidence: 99%

Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

Lin

Durbin

Guerriere

et al. 2018

Health Soc Care Community

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“…Many individuals with TBI report experiencing cognitive impairments in addition to poor physical health in the first year post-injury, which affect social integration and ability to work [3,4]. The effects of a chronic TBI negatively influence engagement in daily life occupations, or purposeful activities valued by the individual, including social interactions and participation in community life [3,[5][6][7][8][9]. Due to the long-term negative effects of TBI, it is imperative to explore rehabilitation options for individuals beyond the acute TBI recovery phase, in order to promote success in daily life post-injury [3,6].…”

Section: Introductionmentioning

confidence: 99%

“…The study of yoga as an intervention for individuals with TBI is still in preliminary stages. However, pilot studies and studies that incorporated yoga as one element of rehabilitation have demonstrated initial feasibility and efficacy of yoga for individuals with TBI [8,[16][17][18][19][20]. In a case study three participants with chronic TBI participated in 8 weeks of one-on-one yoga instruction resulting in improvements in balance, lower extremity strength, and endurance [21].…”

Section: Introductionmentioning

confidence: 99%

The Lived Experience of Individuals with Chronic Traumatic Brain Injury: An Adapted Group Yoga Intervention

Roney¹,

Sample²,

Stallones³

et al. 2018

obm icm

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Background: An adapted yoga intervention was delivered to seven individuals with chronic traumatic brain injury. The purpose of this study was to explore and describe the participants' experience of engaging in the 8-week intervention. Methods: Using a phenomenological design, data were collected, analyzed, and coded to generate themes regarding experiences that occurred, how experiences occurred, and why experiences occurred. Results: Participants described experiencing the yoga intervention as a process: from initially expecting only physical benefits; to feeling physically and emotionally safe and comfortable in the yoga environment; to experiencing physical, emotional, and cognitive changes.

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Section: Leisure and Social Pursuitsmentioning

confidence: 99%

“…Adults who experience an ABI also reported a decline in social and leisure participation, with activities being less physical and more sedentary such as watching TV (Gerber, & Gargaro, 2015). It has been identified that adults who utilise "Club-house" services which enabled the people with ABI to "drop in" and participate in social activity provided positive social outcomes for people who utilised them (Gerber, & Gargaro, 2015). A trial of this program, provided at a community day centre, found that a structured and coordinated program provided the opportunity for people with ABI to develop social and life skills, facilitated their engagement within the community, assisted them to develop new interests and provided needed respite for families.…”

Section: Leisure and Social Pursuitsmentioning

confidence: 99%

Young people with an acquired brain injury: Development of a pilot program to support their transition to adulthood

Francis¹

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The transition into adulthood is one of significance as societal expectations require a person to participate in adult occupations that contribute to their community. While the significance of transition has been well recognised, consideration is still being given to how this process can be best supported. Health care transition is seen as the planned movement of young people with chronic conditions from paediatric to adult orientated care systems. Processes surrounding transition to adult health services became topical when it was realised that young people have a heightened risk of being lost to medical follow up during this time, impacting their long term health outcomes. Discussion regarding what is best practice to facilitate transition between services has resulted in a number of guiding principles being advanced. The need to prepare and guide families through a gradual process, and address the medical, psychosocial and vocational needs of young people, underpins many of these principles. Acquired brain injury (ABI) can be described as any injury sustained to the brain and may be the result of trauma, stroke, hypoxia, surgery or infection. It has been identified that people who sustain an ABI during childhood are at risk of having poorer outcomes with respect to health, employment and lifestyle compared to their peers and as a result, may require support well into adulthood.The overall aim of this thesis was to ascertain the effectiveness of a formal transition program for young people with ABI. In order to answer the proposed question, two distinct studies were undertaken. The first study focused on program development. This study was exploratory in nature, and sought to gain an understanding regarding the complexities associated with transition for young people with ABI. The specific aims of Study 1 were to: The pilot was successful in meeting the third objective as participants reported overall high levels of satisfaction and client centred care. There were no significant improvements with respect to iv increased knowledge of services available during adulthood or in the level of functional independence of the young person during this period.This study provides insights into the complexities associated for young people with ABI at the time of transition. It indicates that a transition program is required to support these young people navigate these complexities. Preliminary findings indicate that the proposed transitional care program provides client centred care. Non significant change in performance and knowledge related outcome measures however, indicate that further research is required to refine this program.

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Participation in a social and recreational day programme increases community integration and reduces family burden of persons with acquired brain injury

Cited by 22 publications

References 34 publications

Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

The Lived Experience of Individuals with Chronic Traumatic Brain Injury: An Adapted Group Yoga Intervention

Young people with an acquired brain injury: Development of a pilot program to support their transition to adulthood

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