Participation and Well-Being Poststroke: Evidence of Reciprocal Effects

Egan, Mary; Davis, Christopher G.; Dubouloz, Claire-Jehanne; Kessler, Dorothy; Kubina, Lucy-Ann

doi:10.1016/j.apmr.2013.08.013

Cited by 52 publications

(28 citation statements)

References 42 publications

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“…Our results may suggest that the participants' active use of the group in the process of post-stroke adaptation contributed to the development of a sense of autonomy, responsibility and control over everyday life. This finding is also supported by other research [35,36]. The idea of creating positive becoming is central to an occupational perspective of health that includes the ideas of growing, personal development and self-esteem [15].…”

Section: Discussionsupporting

confidence: 78%

Enjoyable company in sharing stroke experiences; - lifestyle groups after stroke

Lund

Melhus

Sveen

2017

Scandinavian Journal of Occupational Therapy

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Section: Discussionsupporting

confidence: 78%

Enjoyable company in sharing stroke experiences; - lifestyle groups after stroke

Lund

Melhus

Sveen

2017

Scandinavian Journal of Occupational Therapy

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“…Of all written narratives, 8 (6 facilitating, 2 hindering) were excluded because they were incomplete. The remaining narratives described how others helped or hindered a total of 70 patients (26 male, 24 female, 20 gender not specified) to resume their valued activities, such as walking/cycling/sports (8); self-care (2); household/finances (5); communication (2); work/volunteering (9); hobby/leisure (16); family/social activities (12); cultural activities and community outings (12), or "living independently" (4). Of the described patients, 61 lived at home, 9 lived in a residential care facility.…”

Section: Resultsmentioning

confidence: 99%

“…As a consequence, they often come to live inactive, more homebound lives with fewer social relationships, which easily results in social isolation [10,11]. Because, in the long run, the loss of social and other valued activities is related to a decline in well-being and quality of life [12,13], resumption of the patient's favorite activities is a major goal of rehabilitation after brain injury. To enable activity resumption, rehabilitation usually focuses on improving physical and cognitive functions and skills [14].…”

Section: Introductionmentioning

confidence: 99%

Activity resumption after acquired brain injury: the influence of the social network as described by social workers

Jellema

Erp

Sanden

et al. 2019

Disability and Rehabilitation

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Purpose: To understand how the social network of patients with acquired brain injury facilitates or hinders resumption of their activities, such as social and leisure activities, and how this affects patients' wellbeing and quality of life. Methods: Thematic analysis was applied to 70 narratives about family members, friends, neighbors and colleagues helping or hindering patients in resuming their activities. The narratives were derived from social workers with extensive experience with brain-injured patients and their social networks. Results: The narratives show that an available, understanding and well-informed network enhances activity resumption by being inclusive and encouraging patients to develop their skills. This is in line with earlier studies based on patients' experiences. Whereas the patient-based studies emphasize that being unsupportive or overprotective hinders patients from resuming their activities, this study also shows that preventing patients from meeting others or placing too-high demands results in activity loss, social isolation and reduced well-being and quality of life. Conclusions: Several social network factors play a role in activity resumption, well-being, and quality of life of after brain injury. Early after the brain injury, rehabilitation professionals should work with patients' family members, friends, and others and educate them about how to provide adequate support. ä IMPLICATIONS FOR REHABILITATION Since the patient's social network is an important determinant of activity resumption, rehabilitation professionals should analyze its features soon after brain injury, such as whether patients have an understanding network that encourages them and includes them in their activities. Since especially close network members tend to be protective of or place high demands on the patient, rehabilitation professionals should explain to them the importance of activity resumption for the patient's wellbeing and the adverse effects of being overprotective or over-demanding. Rehabilitation professionals should include other network members, such as friends or colleagues, in the rehabilitation process and educate them about how to support patients in resuming their activities.

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“…Second, it should prompt attention to social connections and relationships as mediating factors and how these are addressed within rehabilitation. For instance, social participation impacts not only on hope for the future, but also on quality of life and psychological well‐being and can help provide continuity in the midst of discontinuity . However, this is an area not well addressed by rehabilitation services .…”

Section: Discussionmentioning

confidence: 99%

Recalibrating hope: A longitudinal study of the experiences of people with aphasia after stroke

Bright

McCann

Kayes

2019

Scandinavian Caring Sciences

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Scand J Caring Sci; 2020; 34: 428-435 Recalibrating hope: A longitudinal study of the experiences of people with aphasia after stroke Background: Hope is a critical resource for people with aphasia after stroke, sustaining people though times of distress and uncertainty and providing motivation. In the first months after stroke, hope is vulnerable to different influences, and people can struggle to identify and work towards hopes for the future. We have little knowledge about how people with aphasia experience hope in the longer term after stroke. Objectives: To identify how people with aphasia experience hope 1 year after stroke and how hope may change in the year after stroke. Methods: The study used an Interpretive Description methodology. Interviews were conducted with four people with aphasia who had been interviewed 1 year previously. These were analysed using content analysis. Results: All people reported a broad sense of hope for the future. They described an active process of recalibrating their early poststroke hopes through a process of reflecting on past progress, current function and what they considered might be possible and desirable in the future. People were able to develop 'new' hopes that were meaningful and seemingly achievable when they had a sense of a possible, desirable future. Those who struggled to see a possible future maintained a hope that things will be good. Social supports, a sense of progress, engagement in meaningful activities and interactions appeared crucial in helping people (re)develop hopes for their future. Conclusions: Hope and hopes for the future gradually changed after stroke. Hope, identity and social connectedness were closely entwined and could enable people to both dwell in the present and move towards desired futures. This research suggests clinicians should prioritise creating hope-fostering environments which support people to develop hope for their future.

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Participation and Well-Being Poststroke: Evidence of Reciprocal Effects

Cited by 52 publications

References 42 publications

Enjoyable company in sharing stroke experiences; - lifestyle groups after stroke

Enjoyable company in sharing stroke experiences; - lifestyle groups after stroke

Activity resumption after acquired brain injury: the influence of the social network as described by social workers

Recalibrating hope: A longitudinal study of the experiences of people with aphasia after stroke

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