Participating From the Comfort of Your Living Room: Feasibility of a Group Videoconferencing Intervention to Reduce Distress in Parents of Children With a Serious Illness or Injury

Rayner, Meredith; Dimovski, Anica; Muscara, Frank; Yamada, Jackie; Burke, Kylie; McCarthy, Maria; Hearps, Stephen; Anderson, Vicki; Coe, Amy; Hayes, Louise; Walser, Robyn D.; Nicholson, Jan M.

doi:10.1080/07317107.2016.1203145

Cited by 31 publications

(36 citation statements)

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“…Rather than targeting trait anxiety, which can be difficult to modify, interventions to specifically target cognitions associated with acute stress reactions, to improve or maximize social or family supports, or to reduce child behavioral issues that may exacerbate parent distress may be most useful. Importantly, this study supports the notion that rather than developing illness‐specific interventions, early psychosocial interventions could be developed and delivered to parents irrespective of the child's illness type or treatment setting (Burke et al., ; Rayner et al., ).…”

Section: Discussionsupporting

confidence: 73%

Psychosocial, Demographic, and Illness‐Related Factors Associated With Acute Traumatic Stress Responses in Parents of Children With a Serious Illness or Injury

Muscara

McCarthy

Thompson

et al. 2017

Journal of Traumatic Stress

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This study investigated factors associated with acute stress symptoms in parents of seriously ill children across a range of illnesses and treatment settings within a pediatric hospital setting. It was hypothesized that psychosocial variables would be more strongly associated with acute stress responses than demographic and child illness variables. Participants were 115 mothers and 56 fathers of children treated within the oncology, cardiology, and intensive care departments of a pediatric hospital. Acute stress, psychosocial, demographic, and medical data were collected within the first 4 weeks of the child's hospital admission. A robust hierarchical regression model revealed that psychosocial factors significantly explained 36.8% of the variance in parent acute stress responses (p < .001); demographic variables significantly added a further 4.5% (p = .022), but illness-related factors did not contribute to the model. Findings support the implementation of a general psychosocial screening approach for parents across the wider hospital system, and that psychosocial risk factors may be targeted in interventions across different illnesses and treatment settings to improve parent outcomes.

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Section: Discussionsupporting

confidence: 73%

Psychosocial, Demographic, and Illness‐Related Factors Associated With Acute Traumatic Stress Responses in Parents of Children With a Serious Illness or Injury

Muscara

McCarthy

Thompson

et al. 2017

Journal of Traumatic Stress

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“…with a more prominent role for stress-management or trauma processing in the context of childhood cancer. Some stress-focused cognitive behavioural therapy (CBT) and acceptance and commitment therapy (ACT) interventions reported in literature are proven effective or seem promising in relieving parental distress in childhood cancer, but their effects on sleep have not been investigated yet Ljungman et al, 2018;Rayner et al, 2016;Sahler et al, 2013;Wakefield et al, 2016). Additionally, other therapies such as Eye Movement Desensitization and Reprocessing (EMDR) might also be useful in cotreating sleep disturbances and post traumatic symptoms, an effect that was shown in several (small) PTSD populations (Brownlow, Harb, & Ross, 2015;Raboni, Alonso, Tufik, & Suchecki, 2014;Raboni, Tufik, & Suchecki, 2006).…”

Section: Discussionmentioning

confidence: 99%

Concurrence of sleep problems and distress: prevalence and determinants in parents of children with cancer

Rensen

Steur

Schepers

et al. 2019

European Journal of Psychotraumatology

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Background : Parents of children with cancer are at risk for sleep problems. If these problems persist, an important perpetuating factor might be ongoing parental distress. Objective : The aim of this study is to assess the prevalence of sleep problems and the concurrence with distress in parents of children treated for cancer, and to identify predictors of this symptom clustering. Method : Parents completed the Medical Outcomes Study (MOS) Sleep Scale and Distress Thermometer for Parents (DT-P). Clinically relevant sleep problems were defined as a score >1SD above the norm and clinical distress as a thermometer score above the established cut-off of 4. Four parent categories were constructed: neither sleep problems nor distress; no distress but sleep problems; no sleep problems but distress; both sleep problems and distress. Predictive determinants (sociodemographic, medical, psychosocial) for each category were assessed with multilevel multinomial logistic regression. Results : Parents (202 mothers and 150 fathers) of 231 children with different cancers participated. Mean time since diagnosis was 3.3 ± 1.4 years (90% off-treatment). The prevalence of sleep problems was 37%. Fifty percent of parents reported neither sleep problems nor distress, 9% had only sleep problems, 13% only distress, and 28% reported both. Compared to parents without sleep problems or distress, parents who reported both were more likely to report parenting problems (OR 4.4, [2.2–9.1]), chronic illness (OR 2.8, [1.2–6.5]), insufficient social support (OR 3.7, [1.5–9.1]), pre-existent sleep problems (OR 6.2, [2.0–18.6]) and be female (OR 1.8, [1.1–4.2]). Conclusions : Sleep problems are common in parents of children treated for cancer, and occur mostly in the presence of clinical distress. Future research must show which interventions are most effective in this group: mainly targeted at sleep improvement or with prominent roles for stress management or trauma processing.

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Section: Discussionmentioning

confidence: 99%

“…Recent efforts toward delivering therapy in a secure, online platform (Marsac et al, 2013;Rayner et al, 2016;Wakefield et al, 2016) may provide a brief, cost-effective, easily accessible solution to target parental mental health (Breitenstein, Gross, & Christophersen, 2014), particularly if interventions can be delivered early to mitigate escalating difficulties. This approach has been trialed across a range of pediatric illness groups with high levels of acceptability and feasibility by parents and staff (Canter, Christofferson, Scialla, & Kazak, 2018;Rayner et al, 2016;Wakefield et al, 2016) and parent participation and completion rates significantly higher than in the equivalent face-to-face programs (Rayner et al, 2016). In addition to overcoming accessibility obstacles for those located rurally or remotely, online interventions will likely reduce cost barriers associated with travel and child-minding, identified in previous research as obstacles to engaging with parents, in particular, fathers (Panter-Brick et al, 2014;Rayner et al, 2016;Tully et al, 2017;Wakefield et al, 2016).…”

Section: Discussionmentioning

confidence: 99%

“…This approach has been trialed across a range of pediatric illness groups with high levels of acceptability and feasibility by parents and staff (Canter, Christofferson, Scialla, & Kazak, 2018;Rayner et al, 2016;Wakefield et al, 2016) and parent participation and completion rates significantly higher than in the equivalent face-to-face programs (Rayner et al, 2016). In addition to overcoming accessibility obstacles for those located rurally or remotely, online interventions will likely reduce cost barriers associated with travel and child-minding, identified in previous research as obstacles to engaging with parents, in particular, fathers (Panter-Brick et al, 2014;Rayner et al, 2016;Tully et al, 2017;Wakefield et al, 2016). Our results suggest a second targeted time for intervention may be around 18 months postdiagnosis, where the focus of the intervention may be around managing the ongoing stress associated with having a child who is ill. For fathers, in particular, the focus should be on managing their own depressive symptoms.…”

Section: Discussionmentioning

confidence: 99%

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Psychological trajectories of mothers and fathers following their child's diagnosis of a life‐threatening illness or injury: A longitudinal investigation

et al. 2019

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Objective Explore the mental health trajectories of parents following their child's life‐threatening illness/injury. Methods Participants were 217 parents (mean age: 34.9–40.0; 66 fathers) of 165 children who presented to a tertiary hospital with a life‐threatening illness/injury. Parents completed questionnaires about their mental health and psychosocial stressors within 4 weeks of the child's illness/injury (T1), and 4 months (T2), 7 months (T3), and 19 months (T4) postdiagnosis. Results For both mothers and fathers, mental health symptoms were elevated at diagnosis declining to normal levels by T3, with a pattern of increase at T4. Fathers demonstrated a faster decline in symptoms between T1 and T2, and fathers, but not mothers, experienced a relapse in depressive symptoms at T4. Fathers reported higher rates of work changes. Conclusions These findings have important implications for the design and timing of parental interventions to support families of children with life‐threatening disease/injury.

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Participating From the Comfort of Your Living Room: Feasibility of a Group Videoconferencing Intervention to Reduce Distress in Parents of Children With a Serious Illness or Injury

Cited by 31 publications

References 31 publications

Psychosocial, Demographic, and Illness‐Related Factors Associated With Acute Traumatic Stress Responses in Parents of Children With a Serious Illness or Injury

Psychosocial, Demographic, and Illness‐Related Factors Associated With Acute Traumatic Stress Responses in Parents of Children With a Serious Illness or Injury

Concurrence of sleep problems and distress: prevalence and determinants in parents of children with cancer

Psychological trajectories of mothers and fathers following their child's diagnosis of a life‐threatening illness or injury: A longitudinal investigation

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