Participants' Perceptions of a Peer-Helper, Telephone-Based Social Support Intervention for Melanoma Patients

Rudy, Robin Reid; Rosenfeld, Lawrence B.; Galassi, John P.; Parker, Joanna; Schanberg, Rachel

doi:10.1207/s15327027hc1303_4

Cited by 55 publications

(11 citation statements)

References 52 publications

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“…However, printed material on the disease and treatment is scarce, particularly in the low-volume centers, indicating that an important aspect of patient care is underappreciated [34,35]. Most recurrences are detected by the patient [36], and information about the disease is essential.…”

Section: Discussionmentioning

confidence: 99%

Follow-Up of Melanoma: A Survey of Italian Hospitals

et al. 2013

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Follow-up is managed internally in 94% of centers and is programmed according to international guidelines in 52% of high-volume hospitals (>25 melanoma diagnoses per year); the remainder use internal guidelines; fewer low-volume centers (≤25 diagnoses per year) have internal guidelines (25%, p = 0.001). Instrumental examinations for stage III and IV disease are similar, while the examination interval changes from 3/4 months for stage III to 2/3 months for stage IV, and use of PET/CT increases from 44 to 54%. Overall, thoracic and abdominal CT is used most for follow-up in stage III (83%), while bone scintigraphy is used more commonly in low-volume centers (41 vs. 19%, p = 0.003), despite similar use of PET/CT (48 vs. 41%). Brain CT or MRI is more common in high-volume centers (63 vs. 39%, p > 0.0001), as is echography of draining lymph nodes (71 vs. 52%, p = 0.01). Hepatic/abdominal echography and thoracic radiography are used in about 50% of centers, regardless of type. In stage IV, use of bone scintigraphy is similar among groups (ca. 40%); brain CT/NMR use increases from 51 to 64% and is more common in high-volume centers (p = 0.03). Lymph node echography is more common in high-volume centers (56 vs. 39%, p = 0.03).

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Section: Discussionmentioning

confidence: 99%

Follow-Up of Melanoma: A Survey of Italian Hospitals

et al. 2013

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“…Studies have shown that women tend to talk with people of similar experiences who have been able to overcome their illness crisis (18). Meeting like-minded people is a relief and reassurance for the individual and can make her learn adaptive methods to overcome the difficulties (19).…”

Section: Introductionmentioning

confidence: 99%

Effect of Peer Education on the Resilience of Mothers of Children with Leukemia: A Clinical Trial

et al. 2019

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Background: Resilience has become a basic construct in theories and studies of welfare and mental health. The mother is the one most involved emotionally in the child's cancer and its treatment and hence, she requires the most degree of resilience. Therefore, it is crucial to deploy effective methods to enhance the resilience of mothers. Objectives: The purpose of this study was to determine the impact of peer education on the resilience of mothers of children with leukemia. Methods: This clinical trial was performed on 74 mothers of children with leukemia who had been hospitalized in the hematology ward of Ali ibn Abi Talib Hospital in Zahedan in 2017. Convenience sampling was used to recruit the participants in accordance with the inclusion criteria. The subjects were randomly assigned to the control and experimental groups. Peer group training was then conducted for the experimental group for five days. The Connor-Davidson Resilience Scale (CD-RISC) was completed for both groups before and immediately after the intervention, as well as two months later. The data were then analyzed using the chi-square test (Fisher's exact test), independent t-test, repeated measures ANOVA, and Bonferroni post hoc test at the significance level of P < 0.05. Results: The results showed that the mean total score of resilience and its subscales did not make a significant difference between the control and experimental groups immediately after the intervention (P > 0.05). Meanwhile, two months post-intervention, a significant difference was observed in this regard between the control and experimental groups, with the latter featuring a higher mean score (P < 0.001). Besides, the results suggested a significant increase in the total score of resilience and all its subscales over time in the experimental group (P < 0.001). Conclusions: Peer education could be implemented as an inexpensive easy method to improve the resilience of mothers of children with leukemia.

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“…Despite widespread use and positive participant perceptions [33], only two RCTs testing one-to-one telephone peer support have been identified in the cancer literature [37,38]. Rudy and colleagues found that perceived social support was higher among melanoma patients receiving telephone peer support [38].…”

Section: Introductionmentioning

confidence: 99%

“…Rudy and colleagues found that perceived social support was higher among melanoma patients receiving telephone peer support [38]. The second study reported no significant difference in newly diagnosed GC patient’s emotional distress with peer telephone support, however the sample size was small ( n =32) [37].…”

Section: Introductionmentioning

confidence: 99%

A nurse- and peer-led support program to assist women in gynaecological oncology receiving curative radiotherapy, the PeNTAGOn study (Peer and nurse support trial to assist women in gynaecological oncology): study protocol for a randomised controlled trial

Schofield

Juraskova

Bergin

et al. 2013

Trials

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BackgroundWomen who undergo radiotherapy for gynaecological cancer (GC) can experience distressing side effects which impact on psychosocial functioning and intimate relationships. Cancer-related distress may be ameliorated by comprehensive preparation for treatment and addressing women’s informational, physical, psychological and psychosexual needs. This paper describes the protocol for a multisite randomised controlled trial (RCT) testing a novel intervention package which combines tailored specialist nursing consultations and telephone peer support with the primary aim to reduce psychological distress. Secondary aims assess patient quality of life, symptom distress, unmet supportive care needs, preparation for treatment, psychosexual functioning and vaginal stenosis.Methods/designThis multifaceted intervention comprises four nurse-led consultations coupled with four phone calls from a peer support volunteer (GC survivor). The evidence-based intervention will be delivered at critical points in the illness trajectory: pre-treatment, mid-treatment, treatment completion and post-treatment. Nurses and peers undergo 2-day intensive training workshops, are guided by comprehensive study intervention manuals and receive ongoing supervision and support. Eligible patients will have a diagnosis of GC, be scheduled to receive curative radiotherapy, be aged 18 years or over and speak English. Three-hundred and six participants will be randomized to receive usual care or usual care with the intervention package. Study outcome measures will be collected at baseline, day 1 of radiotherapy and 1, 6 and 12 months post radiotherapy. Clinical assessments of vaginal toxicity will occur at baseline, and 3, 6, and 12 months post radiotherapy.DiscussionThis timely research has the potential to substantially reduce the physical, psychosexual and supportive care needs of women with GC. Using a telephone peer support model, the intervention package ensures equitable access to support services for geographically isolated patients. The novel intervention engages peer volunteers who liaise with nurses to encourage adherence to professionally-delivered information and provide emotional support. It has been designed to be potentially transferable to a range of treatment settings and diseases. Based on pilot data, the proposed intervention was found to be useful and acceptable to patients and clinicians. If effective and feasible in the multisite RCT, the program could be widely disseminated.Trial registrationAustralian New Zealand Clinical Trial Registry ACTRN12611000744954

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Participants' Perceptions of a Peer-Helper, Telephone-Based Social Support Intervention for Melanoma Patients

Cited by 55 publications

References 52 publications

Follow-Up of Melanoma: A Survey of Italian Hospitals

Follow-Up of Melanoma: A Survey of Italian Hospitals

Effect of Peer Education on the Resilience of Mothers of Children with Leukemia: A Clinical Trial

A nurse- and peer-led support program to assist women in gynaecological oncology receiving curative radiotherapy, the PeNTAGOn study (Peer and nurse support trial to assist women in gynaecological oncology): study protocol for a randomised controlled trial

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