Participación pública en los proyectos de investigación: formas de crear conocimiento colectivo en salud

Jacques-Aviñó, Constanza; Pons‐Vigués, Mariona; Mcghie, Jasmine Elsie; Rodríguez‐Giralt, Israel; Medina-Perucha, Laura; Mahtani-Chugani, Vinita; Pujol‐Ribera, Enriqueta; Ossȯ, Anna Berenguera

doi:10.1016/j.gaceta.2019.08.010

Cited by 18 publications

(16 citation statements)

References 3 publications

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“…These should however not be developed without the involvement of the community. Patient and Participant Involvement (PPI) [ 89 , 90 ] and Responsible Research & Innovation (RRI) [ 91 ] principles need to then be considered in research so that research impact can be more in-line with communities’ needs and preferences.…”

Section: Discussionmentioning

confidence: 99%

Autonomy, power dynamics and antibiotic use in primary healthcare: A qualitative study

et al. 2020

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Antibiotic resistance is a global health concern. Although numerous strategies have tried to reduce inadequate antibiotic prescribing, antibiotics are still prescribed in 60% of acute lower respiratory tract infections (ALRTIs) cases in Catalonia (Spain). This study aims to explore service users’ experiences of ALRTIs, the quality and access to healthcare services, and health education. Selective purposive sampling was carried out, based on a prior definition of participant characteristics. These were sex, age, ethnicity, date of the last ALRTI, number of ALRTIs in the last year, and treatments received. Participants with a previous diagnosis of ALRTIs were recruited from three primary health care centres in Barcelona and one in Tarragona. Twenty-nine interviews were conducted between April and June 2019. A content thematic analysis was performed. Three themes were identified: 1) risk perceptions and help-seeking; 2) treatment preferences and antibiotic use; and 3) relationship dynamics and communication with healthcare professionals. Accounts of service users’ sense of autonomy towards their health and power dynamics within the healthcare system were apparent. Supporting service users to become reliable, subjective and agentic experts of their health and bodies could help them to voice their healthcare agendas. Power structures embedded within healthcare, political and economic institutions should be challenged so that healthcare services can be co-developed (with service users) and based on service users’ autonomy and horizontal relationships. Special consideration should be paid to the intersection of social vulnerabilities. A concordance approach to prescribing could be key to improve the responsible use of antibiotics and to contribute to the prevention of AMR in primary healthcare. The marketisation of health, and the increased demands of private healthcare in Spain due to the financial pressures on public healthcare as a consequence of the financial crisis of 2008 and the COVID-19 pandemic, are a risk for promoting adequate antibiotic prescribing and use. Trial registration The ISAAC-CAT study has been registered in the NCT registry, ID: NCT03931577.

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Section: Discussionmentioning

confidence: 99%

Autonomy, power dynamics and antibiotic use in primary healthcare: A qualitative study

et al. 2020

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“…Como consideración final, sería muy interesante al tiempo que necesario el que, una vez superada la crisis, al menos en su fase pandémica, se llevasen a cabo investigaciones que permitiesen la incorporación a la misma de personas que han sido atendidas por el servicio de salud durante la pandemia, a través de la técnica denominada participación pública en proyectos de investigación, que se relaciona con la denominada «ciencia ciudadana» y que en el sector salud se conoce en Reino Unido como Patient & Public Involvement 14 , la cual permitiría tener una visión amplia de este y otros procesos de atención desde perspectivas más amplias que las obtenidas a través de diseños más convencionales.…”

Section: Discusión Y Conclusionesunclassified

Atención domiciliaria y COVID-19. Antes, durante y después del estado de alarma

Martínez-Riera

Gras-Nieto

2021

Enfermería Clínica

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In Spain, Home Care as a fundamental tool of Primary Health Care, has had uneven development both before and during the COVID-19 pandemic, although it initially played a relevant role in the control and monitoring of infected people and their families. However, at no time it was used the desirable community perspective and community participation throughout the process as it has been successfully done in other settings. Subsequently, with the closure of health centers, it ceased to be provided in some autonomous communities, when all the attention was transferred to the hospital setting. This exacerbated hospital-centrism, to the detriment of PHC and Home Care, is showing a high contagion in healthcare professionals. The circulation of professionals in the hospitals, where the main focus of infection is concentrated, and from these to their homes is a clear risk factor. In addition, we must not forget that Home Care is of special importance for the care of people with terminal illnesses or very advanced chronic diseases (dementia, COPD...), although always taking into account recommendations tending to extreme precautions for infection for professionals, family and caregivers. This can be adapted to the pandemic situation by using tools that digital health offers (telephone care, video calls...). Finally, it would be very interesting that, once the crisis was over, research was carried out that allowed the incorporation of people who have been treated by the health service during the pandemic, through the technique called public participation in research projects.

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“…Our patient and public involvement framework is defined as study-focused 36 following a collaborative strategy. 37 Participants have been and will be asked to assess all patient-related materials, as well as well key procedures and documents such as the study protocol and patient information sheets, case report files, recruitment strategy and results reports. They will be present throughout the whole project.…”

Section: Patient and Public Involvementmentioning

confidence: 99%

Clinical effectiveness and bacteriological eradication of three different Short-COurse antibiotic regimens and single-dose fosfomycin for uncomplicated lower Urinary Tract infections in adult women (SCOUT study): study protocol for a randomised clinical trial

et al. 2021

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IntroductionUncomplicated lower urinary tract infections (uLUTI) are a common problem in primary care. Current local guidelines recommend the use of a single 3 g dose of fosfomycin. However, most general practitioners (GP) prefer short-course therapies to single-dose therapy. No study has compared head-to-head short-course antimicrobial agents for uLUTIs. Therefore, the aim of this randomised clinical trial is to compare three different short-course antibiotic therapies with a single-dose of fosfomycin for these infections.Methods and analysisThis will be a pragmatic, multicentre, parallel group, open trial. Women aged 18 or older and with symptoms of uLUTI and a positive urine dipstick analysis will be randomised to one of the following four groups: a single dose of 3 g of fosfomycin, 2 days of 3 g of fosfomycin o.d., 3 days of pivmecillinam 400 mg three times per day (t.i.d) or 5 days of nitrofurantoin 100 mg t.i.d. A total sample of 1120 patients was calculated. The primary endpoint is clinical effectiveness at day 7, defined as cure of symptoms reported by the patients in a diary including four symptoms: dysuria, urgency, frequency and suprapubic pain, which will be scored on a 4-point severity scale (not present/mild/moderate/severe). Follow-up visits are scheduled at days 7 (phone call), 14 and 28 for assessing evolution. Urine samples will be collected in the three on-site visits and urine cultures performed. If positive, antibiograms for the three antibiotics studied will be performed. Bacterial eradication will be measured at days 14 and 28.Ethics and disseminationThe study was approved by the Ethical Board of IDIAP Jordi Gol (reference number: 21/173-AC) and Spanish Agency of Medicines and Medical Devices. The findings of this trial will be disseminated through research conferences and peer-review journals.Trial registration numberNCT04959331; EudraCT Number: 2021-001332-26.Time scheduleJanuary 2022 to April 2023.

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Participación pública en los proyectos de investigación: formas de crear conocimiento colectivo en salud

Cited by 18 publications

References 3 publications

Autonomy, power dynamics and antibiotic use in primary healthcare: A qualitative study

Autonomy, power dynamics and antibiotic use in primary healthcare: A qualitative study

Atención domiciliaria y COVID-19. Antes, durante y después del estado de alarma

Clinical effectiveness and bacteriological eradication of three different Short-COurse antibiotic regimens and single-dose fosfomycin for uncomplicated lower Urinary Tract infections in adult women (SCOUT study): study protocol for a randomised clinical trial

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