Pårørendes erfaringer med bruk av frivillige ved alvorlig sykdom i hjemmet

Flateland, Sylvi; Skaar, Ragnhild; Fensli, Marthe M. Fosse; Söderhamn, Ulrika

doi:10.7557/14.4106

Cited by 3 publications

(1 citation statement)

References 8 publications

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“…På tvaers af afhandlingens artikler ses også, at samarbejdet mellem de frivillige og de sundhedsprofessionelle er udfordret af manglende viden hos sundhedsprofessionelle om, hvad de frivillige tilbyder og hvordan der hensigtsmaessigt kan samarbejdes om omsorgsaktiviteter og støtte til borgere på plejehjem og i eget hjem.Empirien efterlader ikke tvivl om, at det, plejehjemsfrivillige og frivillige vågere tilsammen tilbyder sårbare gamle, uafvendeligt døende og deres pårørende på plejehjem og i eget hjem, udgør omsorgsaktiviteter, der understøtter og fremmer flere dimensioner i en helhedsorienteret basal palliativ indsats og praksis. Resultaterne understøttes bredt af international forskning om frivilliges rolle i palliation mere generelt(65,70,165,166) og supplerer den sparsomme danske forskning om emnet (77). Involvering af de frivillige ressourcer ligger i tråd med de sundhedspolitiske anbefalinger til palliativ indsats og internationale anbefalinger, der samstemmende anerkender de frivillige som vaerdifulde supplerende ressourcer i palliativ indsats(2,63,73).…”

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Frivillighed i palliation: Kvalitative studier af muligheder og udfordringer knyttet til frivilliges arbejde og samarbejde i den afsluttende del af livet hos borgere i eget hjem og på plejehjem

Stølen¹

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Frivillighed i palliation: Kvalitative studier af muligheder og udfordringer knyttet til frivilliges arbejde og samarbejde i den afsluttende del af livet hos borgere i eget hjem og på plejehjem

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Palliative care volunteer roles in Nordic countries: qualitative studies—systematic review and thematic synthesis

Stoelen

Raunkiær

Winther

et al. 2021

BMJ Support Palliat Care

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BackgroundGiven limited palliative care resources, volunteers can be viewed as essential. To better understand the contribution of volunteers, it is useful to look at their roles in care systems with high level of financed public welfare, such as those found in Nordic countries.AimTo develop research-based knowledge of experiences related to volunteer roles in palliative care in Nordic countries with similar welfare systems.DesignSystematic review and thematic synthesis of qualitative studies.Data sourcesCinahl, APA PsycInfo, SocINDEX, Idunn, Cristin, SwePub, SweMed+, Doria and Danish Research Database from 2005 to 2020.Eligibility criteriaQualitative peer-reviewed studies reporting first-hand experience of volunteers in palliative care in hospital, community (homecare and nursing home) and hospice settings (hospice institution and hospice home care); English abstract and available full text.ResultsOf 1521 citations, 11 articles were included in the review: seven Norwegian articles, three Swedish articles and one Danish article. Three overall themes emerged from analysis: (1) volunteers offered something different than professionals, (2) volunteering took place in professionals’ domain, (3) volunteers were motivated by personal gains.ConclusionVolunteers provide valuable support to patients and next of kin that differs from professionals’ support. Volunteers are motivated by direct interaction with patients and next of kin. Opportunities for interactions depend on the healthcare setting and professionals’ understandings of volunteers’ role. Formal training of volunteers is limited and supportive available professionals important to volunteers. Professionals’ understandings of volunteers’ role should be improved to strengthen volunteers’ role in palliative care in Nordic countries.PROSPERO registration numberCRD42020222695.

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‘Without Them, There Would Be Almost Nothing’ - Experiences of Interacting With Volunteers in Everyday Life in Nursing Homes – Perspectives of Residents and Next of Kin

Stoelen

2022

Omega (Westport)

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The study’s aim is to explore the experiences of nursing home residents and their next of kin related to interacting with volunteers in daily life and when the resident’s death is imminent. Qualitative data consisted of 130 hours of participant observations in three nursing homes and 13 interviews with five residents and eight next of kin. A thematic analysis identified three themes: (1) Social everyday activities - a frame for responsiveness and meaningful everydayness - reflecting the existential dimension of these activities; (2) Time - contrasting volunteers’ time for care activities and bedside support to dying residents with professionals’ time for similar activities; and (3) Valuable relief when death is imminent - inherent ethical dilemmas - reflecting potential tension between the valuable relief volunteers provide and the preferences of residents and their next of kin. Volunteers can promote and improve a holistic palliative care approach for residents in nursing homes.

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Pårørendes erfaringer med bruk av frivillige ved alvorlig sykdom i hjemmet

Abstract: Next-of-kins' experiences when using volunteers for palliative patients living at home

Cited by 3 publications

References 8 publications

Frivillighed i palliation: Kvalitative studier af muligheder og udfordringer knyttet til frivilliges arbejde og samarbejde i den afsluttende del af livet hos borgere i eget hjem og på plejehjem

Frivillighed i palliation: Kvalitative studier af muligheder og udfordringer knyttet til frivilliges arbejde og samarbejde i den afsluttende del af livet hos borgere i eget hjem og på plejehjem

Palliative care volunteer roles in Nordic countries: qualitative studies—systematic review and thematic synthesis

‘Without Them, There Would Be Almost Nothing’ - Experiences of Interacting With Volunteers in Everyday Life in Nursing Homes – Perspectives of Residents and Next of Kin

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