Parkinson’s disease in Jordan: Barriers and motivators to exercise

Khalil, Hanan; Nazzal, Mohammad; Al-Sheyab, Nihaya

doi:10.1080/09593985.2016.1219433

Cited by 18 publications

(34 citation statements)

References 21 publications

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“…The prevalence of MS in Jordan is estimated to be around 39/100,000 people that is comparable to the prevalence worldwide (El-Salem et al, 2006). Many cultural aspects such as religious, financial, and social factors as well as differences in healthcare and social systems can be different among different cultures and countries (Khalil, Nazzal, & Al-Sheyab, 2016;World Health Organization, 1993;World Health Organization, 1998).We believe that knowledge and understanding of the lived experiences of Jordanian individuals' with MS would positively impact the quality of care provided for these individuals in Jordan and contribute to the knowledge of the experiences of MS individuals worldwide. The main aim of this study was therefore to explore the lived experiences of Jordanian individuals with MS and the impact of the disease on their daily lives.…”

Section: Introductionmentioning

confidence: 99%

Living with multiple sclerosis: A Jordanian perspective

Al‐Sharman

Khalil

Nazzal

et al. 2018

Physiotherapy Res Intl

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Background Multiple sclerosis (MS) symptoms are very heterogeneous and may lead to reduced physical, cognitive, and psychosocial functioning that can consequently impair aspects of individual's life. Many studies have examined the living experiences of individuals with MS and its impact on their daily lives. In developing countries and particularly in Jordan, there has been little attempt to conduct studies exploring the experiences of people living with MS. Such knowledge will provide a background to hidden aspects of human concepts, such as culture, perception, and attitudes about chronic diseases. Objective The purpose of this qualitative study was to explore and describe the daily living experiences and challenges of Jordanian individuals with MS. Methods A qualitative design was utilized. Sixteen individuals with MS took part in the study; they were interviewed and divided into 4 focus groups. Conversations were digitally recorded followed by a verbatim transcription. Transcripts were analysed using thematic analysis and validated via researcher triangulation and peer checking. Results Experiences of 16 Jordanian individuals with MS who participated in this study were categorized into the following major themes: (a) experiences related to the disease itself and (b) experiences related to the healthcare system. Disease‐related experiences include physical decline, psychosocial withdrawal, and fear of the future. Participants' experiences with the healthcare system include difficulty of diagnosis, poor communication and rapport with healthcare providers, and lack of awareness about MS and its rehabilitation. Conclusions Findings of this study suggests that more attention should be given to the people with MS in Jordan. In particular, awareness about the disease should be improved among healthcare providers and the general public. Furthermore, rehabilitation services should be emphasized during the management of MS disease.

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Section: Introductionmentioning

confidence: 99%

Living with multiple sclerosis: A Jordanian perspective

Al‐Sharman

Khalil

Nazzal

et al. 2018

Physiotherapy Res Intl

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“…Lack of social support might be considered as a barrier to physical activity. A qualitative study showed that family commitment and support was perceived as an important element for mainly women with PD to maintain an exercise program (Khalil, Nazzal, and Al-Sheyab, 2016). However, this study was performed in Jordan, and can not easily be compared to Sweden due to the different cultural situation for women in these countries.…”

Section: Discussionmentioning

confidence: 99%

Factors explaining physical activity level in Parkinson´s disease: A gender focus

Urell

Zetterberg

Hellström

et al. 2019

Physiotherapy Theory and Practice

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Objective: To analyze the multivariate associations between self-rated level of physical activity and demographic characteristics, self-efficacy for physical activity, fall-related self-efficacy, fear of falling, enjoyment from participation in physical activity, social support, fatigue, and health-related quality of life in persons with PD with a focus on gender. Method: Participants were persons with PD (n = 285, mean age 69.1 ± 7 years). Self-reported scales measuring level of physical activity (Physical Activity Disability Survey-Revised), enjoyment of physical activity (study-specific questions), self-efficacy for physical activity (Exercise Self-Efficacy Scale), fallrelated self-efficacy (Falls Efficacy Scale), social support (Social Influences on Physical Activity), fatigue (Fatigue Severity Scale) and health-related quality of life (Parkinson's Disease Questionnaire-39) were used. The response rate was 58.2%. Results: Multiple regression analyses showed that 54.5% of the level of physical activity was explained by low-degree limitations in mobility and activities of daily life (ADL), being younger, higher self-efficacy for physical activity, communication limitations, bodily discomfort, social support and shorter time since diagnosis. Enjoyment of physical activity explained the level of physical activity for women, whereas self-efficacy for physical activity explained the level of physical activity for men. Conclusion: Implementing strategies to increase functional mobility, self-efficacy for physical activity, social support, and enjoyment of physical activity might facilitate persons with PD beginning and/or maintain different physical activities.

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“…routine care). In Jordan, usual care for patients with PD does not include any specific physiotherapy related interventions (i.e., physiotherapy is not yet routinely prescribed) [13]. Participants were randomly allocated to one of the two groups after baseline assessment.…”

Section: Study Design and Settingmentioning

confidence: 99%

“…However, it also indicates that social support provided by healthcare professionals is important for the initial adoption and maintenance of self-supervised exercise programs in this population. This may be of particular consideration for people with PD who live in a developing country as lack of support provided by health-care professionals and organisations was recognised by patients themselves as one of the unmet needs [13].…”

Section: Additionally These Care-provider Contributions Might Have Mmentioning

confidence: 99%

“…There is very limited reported literature about people with PD in the developing countries and the provision of physiotherapy services. In developing countries such as Jordan, many cultural factors including value of dependence versus interdependence on family members, religious, financial and social factors, and differences in healthcare and social systems impose a further challenge on the delivery of exercise interventions for people with chronic neurological conditions [13]. Thus, finding low-cost and broad reaching approaches to facilitate patients' adherence to independent exercise programs is needed.…”

Section: Introductionmentioning

confidence: 99%

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