Parkinson’s Disease and Driving Cessation: a Journey Influenced by Anxiety

Turner, Laura; Liddle, Jacki; Pachana, Nancy A.

doi:10.1080/07317115.2016.1215365

Cited by 9 publications

(8 citation statements)

References 39 publications

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“…Extensive research examines elderly people and the consequences of driving license withdrawal, such as social exclusion (e.g., [7,39]), depression (e.g., [20]), and reduced independence (e.g., [1]). Similar results have been found in studies of people with impairments and license withdrawal (e.g., [24,29,35]).…”

Section: Introductionsupporting

confidence: 88%

How does driving license withdrawal affect subjective well-being? A Swedish comparative survey study of visual field loss

Nyberg

Björklund

Aretun

et al. 2021

Eur. Transp. Res. Rev.

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Research has found strong relationships between access to transport, accessibility of activities, and subjective well-being (SWB), and society is said to be car dependent. Accordingly, this study investigates, in a Swedish context, whether and how withdrawal of a driving license for a private car due to visual field loss (VFL) affects SWB. A web survey was used for statistical comparisons of three respondent groups (n = 436): people with a driving license, people with a driving license and VFL, and people whose driving license was withdrawn due to VFL. The inclusion criterion for all participants was that they should have a diagnosis that could cause VFL. The no-license group had lower overall SWB than did respondents with driving licenses. The no-license group also perceived less access to transport means in order to live a life to be satisfied with than did the other groups. The most used transport means in the no-license group was getting a lift in a car, though this group had a strong desire to drive a car. Few respondents in the license groups wanted to use specific transport means to a greater extent, car driving being the most used transport means. Some inter-group differences were seen regarding how access to activities (measured by frequency of actual trips) affected SWB. This study found a significant negative effect of driving license withdrawal on SWB. However, the results imply that qualitative aspects other than the relationship between the frequencies of trips and activities might also affect SWB, and more research on this subject is needed.

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Section: Introductionsupporting

confidence: 88%

How does driving license withdrawal affect subjective well-being? A Swedish comparative survey study of visual field loss

Nyberg

Björklund

Aretun

et al. 2021

Eur. Transp. Res. Rev.

View full text Add to dashboard Cite

show abstract

“…While driving anxiety has been self-reported by older adults in the general population [30], the current study is only the second qualitative study to report driving anxiety among individuals with PD [8]. There remains, however, some equivocation within the literature as to whether or not driving anxiety in older adults is predictive of on-road safety.…”

Section: Discussionmentioning

confidence: 91%

“…Previous research has suggested that voluntary driving cessation may be related to the availability of alternative transportation [23] and also suggests that a lack of discussion prior to driving cessation can lead to a sudden (and involuntary) loss of license [24]. Not surprisingly, involuntary loss of license has been shown in previous research to be a traumatic experience, due to an abrupt loss of independence and sense of identity [8, 24]. Thus, the development of adequate alternative transportation solutions would benefit individuals with PD and could facilitate transition from “driving cessation,” perceived by participants as a problematic transition and towards “driving retirement,” a process of pre-emptive and person-centred planning for positive transitions.…”

Section: Discussionmentioning

confidence: 99%

“…The case study also included a commentary by the person's treating physician, specifically pertaining to the driving cessation process. A more recent phenomenological study of PD also focused specifically on the experience of driving cessation and included 22 participants with PD and 12 family caregivers living in Australia [8]. Participants reported the experience of anxiety while driving as well as anticipatory anxiety or worry related to driving cessation.…”

Section: Introductionmentioning

confidence: 99%

“…Participants reported the experience of anxiety while driving as well as anticipatory anxiety or worry related to driving cessation. These authors stressed the need for active planning on the part of individuals living with PD and their caregivers to address eventual driving cessation [8]. To our knowledge, these are the only two published studies that have investigated the lived experiences of persons with PD as they relate to driving, and both focused on exploring questions around driving cessation.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Driving with Parkinson’s Disease: Exploring Lived Experience

Holmes

Alvarez

Johnson

et al. 2019

Parkinson's Disease

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A growing body of literature has explored the impact of Parkinson’s disease (PD) on fitness to drive. As such, evidence now supports the use of specific clinical tests for screening purposes, the predictive validity of risk impressions, and the critical driving errors that predict on-road pass/fail outcomes in this population. However, little is known about the lived experiences of persons with PD as they navigate driving-related concerns such as driving impairments, cessation, potential threats to independence, and community mobility. This qualitative secondary data analysis aimed to explore the driving-related lived experiences of persons with PD. We utilized summative content analysis to identify themes related to driving from transcribed interviews with nineteen community-dwelling individuals with PD who participated in the primary study. Five themes emerged within the analysis: (1) the meaning and significance of driving; (2) driving cessation; (3) modified driving behaviors; (4) factors affecting driving; and (5) accessibility. Participants identified driving as an activity that holds significant importance—both directly (i.e., as a primary activity) and as a means for enabling other activities. This study lays the foundation for the development of client-centred and evidence-informed driving interventions for individuals with PD, as well as the development of driving retirement programs.

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Driving Impairment in Movement Disorders

Makhoul

Jankovic

2023

Movement Disord Clin Pract

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Background Driving may be adversely affected by any movement disorder, but has been mostly studied in Parkinson's disease (PD). Few studies have addressed driving impairment in patients with Huntington's disease (HD); driving in other movement disorders such as dystonia, blepharospasm and Tourette syndrome (TS) has not been adequately evaluated. Objectives The aim of this review is to summarize the findings of driving impairment in movement disorders and evaluate the usefulness of clinical tools in guiding clinicians whether to refer patients for driving assessment. Methods A review of literature was performed on PubMed and articles on driving and movement disorders were identified using a Boolean phrase. Results We were able to identify 66 articles that fulfilled the target subject: impairment of driving in PD, cervical dystonia, blepharospasm, HD and TS. We also included articles discussing the role of driving rehabilitation in patients with movement disorders. Conclusions Driving is often impaired in patients with PD and other movement disorders not only due to motor symptoms but also because of cognitive and behavioral co‐morbidities. Certain screening tools may be helpful in guiding the clinician in referring the patients for driving assessment.

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Parkinson’s Disease and Driving Cessation: a Journey Influenced by Anxiety

Abstract: Implications of the study findings are outlined and aim to provide information about the needs to enable future clinical directions to be developed.

Cited by 9 publications

References 39 publications

How does driving license withdrawal affect subjective well-being? A Swedish comparative survey study of visual field loss

How does driving license withdrawal affect subjective well-being? A Swedish comparative survey study of visual field loss

Driving with Parkinson’s Disease: Exploring Lived Experience

Driving Impairment in Movement Disorders

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