Pareto-Principle in Rare Disease Education: Assessing the representation of ’common’ rare diseases in medical education and coding systems
Alexandra Berger,
Kai Lars Grimm,
Richard Noll
et al.
Abstract:Background: The Pareto Principle asserts that a large portion of results can be achieved with a small amount of effort. Wakap et al. found that around 80% of individuals with rare diseases (RD) suffer from one of 149 specific rare diseases. A significant challenge in the RD domain is the lack of information, compounded by the fact that most RD are not specifically codifiable in the ICD-10, leading to a deficit in reliable epidemiological data. Additionally, time constraints in medical education hinder the comp… Show more
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