Parents' views of self-management for children with moderate to severe persistent asthma

Jan, Rong-Hwa; Lee, Hsin-Tzu Sophie; Cheng, Shu-Chen

doi:10.1016/j.tcmj.2013.09.011

Cited by 10 publications

(28 citation statements)

References 9 publications

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“…The 56 papers included in the review were published between 1997 and 2017, although two thirds of this research was published within the latter 10 years, reflecting a growing interest in this area, particularly within the USA. The majority of the research was conducted in the USA ( n = 23) 21 – 43 or the UK ( n = 12), 11 , 44 – 54 with fewer studies being conducted across the rest of the world: Australia ( n = 6), 55 – 60 Canada ( n = 3), 61 – 63 Taiwan ( n = 3), 64 – 66 Denmark ( n = 2), 67 , 68 Singapore ( n = 2), 69 , 70 Netherlands ( n = 2), 71 , 72 Germany ( n = 1), 73 New Zealand ( n = 1), 74 and Thailand ( n = 1). 75 Data collection methods primarily comprised interviews ( n = 35) 23 – 26 , 29 , 30 , 35 – 38 , 41 , 44 – 53 , 55 – 58 , 60 – 62 , 64 – 66 , 68 , 72 , 74 , 75 and focus groups ( n = 21).…”

Section: Resultsmentioning

confidence: 99%

“…The majority of the research was conducted in the USA ( n = 23) 21 – 43 or the UK ( n = 12), 11 , 44 – 54 with fewer studies being conducted across the rest of the world: Australia ( n = 6), 55 – 60 Canada ( n = 3), 61 – 63 Taiwan ( n = 3), 64 – 66 Denmark ( n = 2), 67 , 68 Singapore ( n = 2), 69 , 70 Netherlands ( n = 2), 71 , 72 Germany ( n = 1), 73 New Zealand ( n = 1), 74 and Thailand ( n = 1). 75 Data collection methods primarily comprised interviews ( n = 35) 23 – 26 , 29 , 30 , 35 – 38 , 41 , 44 – 53 , 55 – 58 , 60 – 62 , 64 – 66 , 68 , 72 , 74 , 75 and focus groups ( n = 21). 11 , 22 , 28 , 31 , 33 , 34 , 39 , 40 , 42 , 43 , 45 – 47 , 58 , 59 , 63 , 67 , 69 – 71 , 73 A few alternative methods were also used: diary or journal data ( n = 2), …”

Section: Resultsmentioning

confidence: 99%

“… • Many patients and carers use CAM to be in control of medication rather than feeling dependent on it 49 , 56 , 75 (P/Ca). • Those who use CAM believe it gives them a more tailored treatment approach that is: 1) effective, natural and non-invasive, 2) good for mild symptom control, and 3) safer than conventional medicines 23 , 48 , 66 (P). • Many CAM users believe the combination of CAM and Western medicine is superior to either approach used alone 73 , as it results in improved effectiveness of rescue bronchodilators 22 (P).…”

Section: Resultsmentioning

confidence: 99%

“…Carers of urban African American adolescents were concerned that the adolescents needed to know how to respond to an ‘asthma crisis’ independently 34 (Ca). • Mexican and Taiwanese mothers, and patients with low health literacy reported little knowledge of asthma 30 , 38 , 66 , obtained mainly from lay sources 30 , 38 (Ca). Some patients with intellectual disabilities reported not being shown how to use their inhaler devices correctly 60 (P).…”

Section: Resultsmentioning

confidence: 99%

“…They also focus on self- management techniques that alter the environment or emotions 28 (Ch/Ca). • Some children and carers attribute their asthma to having too much exercise and can list some environmental triggers 26 , 66 (Ch/Ca). Others (including African American women, children and carers) reported physical activity to be beneficial 33 – 35 (P/Ca/Ch) • Many young people assess asthma in terms of how ‘normal’ they appear in front of their peers 36 , 51 (Ch).…”

Section: Resultsmentioning

confidence: 99%

See 4 more Smart Citations

Barriers and facilitators of effective self-management in asthma: systematic review and thematic synthesis of patient and healthcare professional views

Miles

Arden‐Close

Thomas

et al. 2017

npj Prim Care Resp Med

116

107

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Self-management is an established, effective approach to controlling asthma, recommended in guidelines. However, promotion, uptake and use among patients and health-care professionals remain low. Many barriers and facilitators to effective self-management have been reported, and views and beliefs of patients and health care professionals have been explored in qualitative studies. We conducted a systematic review and thematic synthesis of qualitative research into self-management in patients, carers and health care professionals regarding self-management of asthma, to identify perceived barriers and facilitators associated with reduced effectiveness of asthma self-management interventions. Electronic databases and guidelines were searched systematically for qualitative literature that explored factors relevant to facilitators and barriers to uptake, adherence, or outcomes of self-management in patients with asthma. Thematic synthesis of the 56 included studies identified 11 themes: (1) partnership between patient and health care professional; (2) issues around medication; (3) education about asthma and its management; (4) health beliefs; (5) self-management interventions; (6) co-morbidities (7) mood disorders and anxiety; (8) social support; (9) non-pharmacological methods; (10) access to healthcare; (11) professional factors. From this, perceived barriers and facilitators were identified at the level of individuals with asthma (and carers), and health-care professionals. Future work addressing the concerns and beliefs of adults, adolescents and children (and carers) with asthma, effective communication and partnership, tailored support and education (including for ethnic minorities and at risk groups), and telehealthcare may improve how self-management is recommended by professionals and used by patients. Ultimately, this may achieve better outcomes for people with asthma.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

Barriers and facilitators of effective self-management in asthma: systematic review and thematic synthesis of patient and healthcare professional views

Miles

Arden‐Close

Thomas

et al. 2017

npj Prim Care Resp Med

116

107

View full text Add to dashboard Cite

show abstract

Perceptions of complementary/alternative medicine use and influence on evidence-based asthma medicine adherence in Malaysian children

Ramdzan

Pinnock

Liew

et al. 2019

npj Prim Care Resp Med

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Complementary and alternative medicine (CAM) is widely used especially in Asia including for childhood asthma. The use of CAM could influence adherence to evidence-based (E-B) medicine. We explored the views of carers of Malaysian children with asthma regarding the use of CAM for childhood asthma, and its relationship with self-reported adherence to E-B medicine. We used a screening questionnaire to identify children diagnosed with asthma from seven suburban primary schools in Malaysia. Informed consent was obtained prior to the interviews. We conducted the interviews using a semi-structured topic guide in participants’ preferred language (Malay, Mandarin, or Tamil). All interviews were audio-recorded, transcribed verbatim and coded using Nvivo. Analysis was performed thematically, informed by the Necessity-Concerns Framework. A total of 46 carers (16 Malays, 21 Indians, 9 Chinese) contributed to 12 focus groups and one individual interview. We categorised participants’ as ‘Non-CAM’; ‘CAM’; or ‘combination’ user. Cultural practices and beliefs in the efficacy of CAM resulted in widespread use of CAM. Most carers used CAM as ‘complementary’ to E-B medicine. Concerns about dependence on or side effects of E-B treatment influenced carers’ decisions to rely on CAM as an ‘alternative’, with an important minority of accounts describing potentially harmful CAM-use. Healthcare professionals should discuss beliefs about the necessity for and concerns about use of both E-B medicine and CAM, and provide balanced information about effectiveness and safety. The aim is to improve adherence to regular E-B preventer medication and prevent delays in seeking medical advice and harmful practices associated with CAM.

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Contribution of mobile health applications to self-management by consumers: review of published evidence

Anderson

Emmerton

2016

Aust. Health Review

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Objective The aim of the present study was to review the contribution of mobile health applications ('apps') to consumers' self-management of chronic health conditions, and the potential for this practice to inform health policy, procedures and guidelines. Methods A search was performed on the MEDLINE, Cochrane Library, ProQuest and Global Health (Ovid) databases using the search terms 'mobile app*', 'self-care', 'self-monitoring', 'trial', 'intervention*' and various medical conditions. The search was supplemented with manual location of emerging literature and government reports. Mapping review methods identified relevant titles and abstracts, followed by review of content to determine extant research, reports addressing the key questions, and gaps suggesting areas for future research. Available studies were organised by disease state, and presented in a narrative analysis. Results Four studies describing the results of clinical trials were identified from Canada, England, Taiwan and Australia; all but the Australian study used custom-made apps. The available studies examined the effect of apps in health monitoring, reporting positive but not robust findings. Australian public policy and government reports acknowledge and support self-management, but do not address the potential contribution of mobile interventions. Conclusions There are limited controlled trials testing the contribution of health apps to consumers' self-management. Further evidence in this field is required to inform health policy and practice relating to self-management. What is known about the topic? Australian health policy encourages self-care by health consumers to reduce expenditure in health services. A fundamental component of self-care in chronic health conditions is self-monitoring, which can be used to assess progress towards treatment goals, as well as signs and symptoms of disease exacerbation. An abundance of mobile health apps is available for self-monitoring. What does this study add? A limited number of randomised control trials have assessed the clinical impact of health apps for self-monitoring. The body of evidence relating to current and long-term clinical impact is developing. Despite endorsing self-care, Australian health policy does not address the use and potential contribution of mobile health apps to health care. What are the implications? Widespread and sustained use of validated mobile health apps for chronic health conditions should have potential to improve consumer independence, confidence and burden on health services in the longer term. However, a significant body of scientific evidence has not yet been established; this is mirrored in the lack of acknowledgement of health apps in Australian health policy referring to consumers' self-management.

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Parents' views of self-management for children with moderate to severe persistent asthma

Cited by 10 publications

References 9 publications

Barriers and facilitators of effective self-management in asthma: systematic review and thematic synthesis of patient and healthcare professional views

Barriers and facilitators of effective self-management in asthma: systematic review and thematic synthesis of patient and healthcare professional views

Perceptions of complementary/alternative medicine use and influence on evidence-based asthma medicine adherence in Malaysian children

Contribution of mobile health applications to self-management by consumers: review of published evidence

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