Parents’ Refusal of Medical Treatment for Cultural or Religious Beliefs: An Ethnographic Study of Health Care Professionals’ Experiences

Linnard-Palmer, Luanne; Kools, Susan

doi:10.1177/1043454204270263

Cited by 19 publications

(10 citation statements)

References 5 publications

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“…A study from a paediatric ward in California on parents' refusal of medical treatment due to cultural or religious beliefs revealed that these complex situations led to emotional distress in the interaction between health care providers and family members. 37 In Malawi there is no external factor such as a law stating that it is unacceptable for a parent to deny a child life-saving treatment. Muula 15 claims that it is a challenge for the health authorities and Nurses' Associations of Malawi to be more active in initiating the discussion about whether such laws should be introduced.…”

Section: Discussionmentioning

confidence: 99%

Ethical problems in practice as experienced by Malawian student nurses

2011

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Student nurses are confronted by many ethical challenges in clinical practice. The aim of the study was to explore Malawian students' experiences of ethical problems during their clinical placement. A phenomenological hermeneutic design comprising interviews and qualitative content analysis was used. Ten students were interviewed. Three main themes emerged: 1) Conflict between patient rights and the guardians' presence in the hospital; 2) Conflict between violation of professional values and patient rights caused by unethical behaviour; and 3) Conflict between moral awareness and the ideal course of action. The students had difficulties ensuring patient rights and acting in accordance with western norms and values which are not always appropriate in the Malawian context. The students require role models who demonstrate professional attitudes towards patients' rights and values. There is a need to create pedagogical strategies in which a caring attitude and ethical reflection can be learned and cultivated in clinical practice.

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Section: Discussionmentioning

confidence: 99%

Ethical problems in practice as experienced by Malawian student nurses

2011

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“…The incidence of parents refusing to consent to medical procedures or treatment for their children in a number of pediatric clinical scenarios is well documented [58–60], as are the numerous barriers to informed consent for complex genetic syndromes. Beneficence-based obligations support mandatory newborn screening for RET proto-oncogene mutations.…”

Section: Pediatric Ethics Guidelinesmentioning

confidence: 99%

Pediatric Ethics Guidelines for Hereditary Medullary Thyroid Cancer

Rosenthal

Diekema

2011

International Journal of Pediatric Endocrinology

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Hereditary medullary thyroid cancer is an aggressive cancer for which there is no standard effective systemic therapy, but which can be prevented through genetic screening and prophylactic thyroidectomy. Although this cancer accounts for roughly 17% of all pediatric thyroid cancers, a significant percentage of affected families do not "accept" screening, while many gene carriers delay or refuse prophylactic thyroid surgery for their children. Current genetic screening practices in medullary thyroid cancer are inadequate; more than 50% of index patients with hereditary medullary thyroid cancer present with a thyroid mass; up to 75% have distant metastasis. These proposed pediatric ethics guidelines focus on two ethical issues that affect at-risk children: (1) how do we identify at-risk children whose RET-positive relative refuses to disclose that they carry the mutation? (2) How do we protect RET-positive children whose parents refuse prophylactic thyroidectomy?

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“…Multicultural interaction in health care between clients and caregivers has been described as challenging and problematic worldwide [1]. These challenges were also found in the Swedish Primary Child Health Care services (PCHC services) [2-4].…”

Section: Introductionmentioning

confidence: 99%

Watchfully checking rapport with the Primary Child Health Care nurses - a theoretical model from the perspective of parents of foreign origin

2010

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BackgroundWorldwide, multicultural interaction within health care seems to be challenging and problematic. This is also true among Primary Child Health Care nurses (PCHC nurses) in the Swedish Primary Child Health Care services (PCHC services). Therefore, there was a need to investigate the parents' perspective in-depth.AimThe aim of the study was to construct a theoretical model that could promote further understanding of the variety of experiences of parents of foreign origin regarding their interaction with the PCHC nurses at PCHC services.MethodThe study used Grounded Theory Methodology. Twenty-one parents of foreign origin in contact with PCHC servicies were interviewed.ResultsIn our study parents were watchfully checking rapport, i.e. if they could perceive sympathy and understanding from the PCHC nurses. This was done by checking the nurse's demeanour and signs of judgement. From these interviews we created a theoretical model illustrating the interactive process between parents and PCHC nurses.ConclusionWe found it to be of utmost importance for parents to be certain that it was possible to establish rapport with the PCHC nurse. If not, disruptions in the child's attendance at PCHC services could result. PCHC nurses can use the theoretical model resulting from this study as a basis for understanding parents, avoiding a demeanour and judgements that may cause misunderstandings thus promoting high-quality interaction in PCHC services.

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Parents’ Refusal of Medical Treatment for Cultural or Religious Beliefs: An Ethnographic Study of Health Care Professionals’ Experiences

Cited by 19 publications

References 5 publications

Ethical problems in practice as experienced by Malawian student nurses

Ethical problems in practice as experienced by Malawian student nurses

Pediatric Ethics Guidelines for Hereditary Medullary Thyroid Cancer

Watchfully checking rapport with the Primary Child Health Care nurses - a theoretical model from the perspective of parents of foreign origin

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