Parents' psychological well‐being when a child has cancer: Contribution of individual and family factors

Salvador, Ágata; Crespo, Carla; Barros, Luísa

doi:10.1002/pon.5057

Cited by 13 publications

(16 citation statements)

References 39 publications

(59 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Other examples of using the FaMM in studies not based in the FMSF include Muscara and colleagues’ (2015; Rayner et al, 2016) use of Kazak’s Pediatric Medical Traumatic Stress Model (Kazak et al, 2006) in their study of parents of children with a life-threatening condition and Son, Kim, and colleagues' (2018) use of Bandera’s Self-Efficacy Theory (Bandura, 1997) to examine factors influencing family management in the context of having a child with atopic dermatitis. In two studies, investigators reported using two frameworks, one of which was the FMSF (Salvador et al, 2019a, 2019b; Van Riper et al, 2018). In 30 studies, investigators used all FaMM scales.…”

Section: Resultsmentioning

confidence: 99%

Tracing the Use of the Family Management Framework and Measure: A Scoping Review

et al. 2021

View full text Add to dashboard Cite

This article reports the results of a scoping review of research applications of the Family Management Style Framework (FMSF) and the Family Management Measure (FaMM). We identified 32 studies based on the FMSF and 41 studies in which the FaMM was used, 17 of which were based on the FMSF. Both the framework and measure have been used by investigators in multiple countries, with most applications of the FaMM outside the United States. Although the FMSF and FaMM were originally developed for use with families in which there was a child with a chronic physical condition, both have been applied to a broader range of health conditions and to studies focusing on families with an adult member facing a health challenge. Based on our findings, we make recommendations for how researchers can more fully address all aspects of the FMSF.

show abstract

Section: Resultsmentioning

confidence: 99%

Tracing the Use of the Family Management Framework and Measure: A Scoping Review

et al. 2021

View full text Add to dashboard Cite

show abstract

“…Through the inclusion of PedsQL parent proxy-report version made it possible to collect important information on the children’s activities and behaviors during COVID-19 (physical, scholastic and social activity) as well as the degree of emotional needs or difficulties of children. This last variable showed a significant positive correlation ( P < 0.001) with the tool on parental stress (PSS), highlighting a strong relationship between the psychological state of child and parent ( Kohlsdorf and Costa Junior, 2012 ; Salvador et al, 2019 ; Santos et al, 2019 ; Tillery et al, 2020 ). Previous reports have found a significant difference between mothers’ and fathers’ scores on PSS ( P < 0.001) ( Hoekstra-Weebers et al, 2001 ; Yeh, 2002 ; Norberg and Boman, 2013 ; Compas et al, 2015 ).…”

Section: Discussionmentioning

confidence: 97%

Psychological Impact of COVID-19 on Parents of Pediatric Cancer Patients

et al. 2021

View full text Add to dashboard Cite

The changes and general alarm of the current COVID-19 pandemic have amplified the sense of precariousness and vulnerability for family members who, in addition to the emotional trauma of the cancer diagnosis, add the distress and fear of the risks associated with infection. The primary objectives of the present study were to investigate the psychological impact of the COVID-19 pandemic on the parents of pediatric cancer patients, and the level of stress, anxiety, and the child’s quality of life perceived by the parents during the COVID-19 epidemic. The parents of 45 consecutive children with solid and hematological tumors were enrolled. Four questionnaires (Impact of Event Scale-Revised – IES-R; Perceived Stress Scale – PSS; Spielberger State – Trait Anxiety Inventory – STAI-Y; Pediatric Quality of Life Inventory – PedsQL) were administered to the parents at the beginning of the pandemic lockdown. A 75% of parents exhibited remarkable levels of anxiety, with 60 subjects in state scale and 45 subjects in trait scale having scores that reached and exceeded the STAI-Y cut off. The bivariate matrix of correlation found a significant positive correlation between the IES-R and PSS scores (r = 0.55, P < 0.001). There was a positive correlation between the PSS and PedsQL (emotional needs) scale (P < 0.001) and a negative correlation between IES-R and STAI-Y (P < 0.001). The results confirm that parents of pediatric cancer patients have a high psychological risk for post-traumatic symptoms, high stress levels, and the presence of clinically significant levels of anxiety.

show abstract

“…The inclusion in the protocol of parents' perception of their child's quality of life (PedsQL -parent proxy-report version) made it possible to collect important information on the children's activities and behaviours during COVID-19 (physical, scholastic and social activity) as well as the degree of emotional needs or difficulties of children. This last variable showed a significant positive correlation (P < 0.001) with the tool on parental stress (PSS), highlighting a strong relationship between the psychological state of child and parent 45,46,47,48 Previous reports have found a significant difference between mothers' and fathers' scores on PSS (P < 0.001) 31,[49][50][51] . Additionally, there is a significant difference between the parents of patients "off therapy" and those still "on therapy" in the IES-R (P < 0.001) and PSS scores (P < 0.001).…”

Section: Discussionmentioning

confidence: 73%

Psychological impact of COVID-19 on parents of pediatric cancer patients

Guido

Marconi

Peruzzi

et al. 2020

Preprint

View full text Add to dashboard Cite

Background. The changes and general alarm of the current COVID-19 pandemic have amplified the sense of precariousness and vulnerability for family members who, in addition to the emotional trauma of the cancer diagnosis, add the distress and fear of the risks associated with infection. The primary objectives of the present study was to investigate the psychological impact of the COVID-19 pandemic on the parents of pediatric cancer patients, and to investigate the level of stress, anxiety, and the child’s quality of life perceived by the parents during the Covid-19 epidemic. Methods. The parents of 45 consecutive children with solid and haematological tumors were enrolled. Four questionnaires (Impact of Event Scale-Revised - IES-R ; Perceived Stress Scale - PSS; Spielberger State - Trait Anxiety Inventory - STAI-Y ; Pediatric Quality of Life Inventory - PedsQL) were administered to the parents at the beginning of the pandemic lockdown. Results. 75% of parents exhibited remarkable levels of anxiety, with 60 subjects in state scale and 45 subjects in trait scale having scores that reached and exceeded the STAI-Y cut off. The bivariate matrix of correlation (Figure 1) found a strong significant positive correlation between the IES-R and PSS scores (r = 0.55, P < 0.001). There was a positive correlations between the PSS and PedsQL (emotional needs) scale (P < 0.001) and a negative correlation between IES-R and STAI-Y (P < 0.001). Conclusion. The results confirm that parents of pediatric cancer patients have a high psychological risk for post-traumatic symptoms, high stress levels, and the presence of clinically significant levels of anxiety.

show abstract

Parents' psychological well‐being when a child has cancer: Contribution of individual and family factors

Cited by 13 publications

References 39 publications

Tracing the Use of the Family Management Framework and Measure: A Scoping Review

Tracing the Use of the Family Management Framework and Measure: A Scoping Review

Psychological Impact of COVID-19 on Parents of Pediatric Cancer Patients

Psychological impact of COVID-19 on parents of pediatric cancer patients

Contact Info

Product

Resources

About