Parents' Perspectives on Navigating the Work of Speaking Up in the NICU

Abstract

Objective To describe parents’ perspectives and likelihood of speaking up about safety concerns in the NICU and identify barriers and facilitators to parents speaking up. Design Exploratory, qualitatively-driven, mixed-methods design using questionnaires, interviews, and observations with parents of newborns in the NICU. The qualitative investigation was based on constructivist grounded theory. Quantitative measures included ratings and free text responses about likelihood of speaking up in response to a hypothetical scenario about lack of clinician hand hygiene. Qualitative and quantitative analyses were integrated in the final interpretation. Setting A 50-bed, US, academic medical center, open-bay NICU. Participants Forty-six parents completed questionnaires, 14 of whom were also interviewed. Results Most parents (75%) rated themselves likely or very likely to speak up in response to lack of hand hygiene; 25% of parents rated themselves unlikely to speak up in the same situation. Parents engaged in a complex process of Navigating the work of speaking up in the NICU that entailed learning the NICU, being deliberate about decisions to speak up, and at times choosing silence as a safety strategy. Decisions about how and when to speak up were influenced by multiple factors including knowing the newborn, knowing the team, having a defined pathway for voicing concerns, clinician approachability, clinician availability and friendliness, and clinician responsiveness. Conclusions To engage parents as full partners in safety, clinicians need to recognize the complex social and personal dimensions of the NICU experience that influence parents’ willingness to speak up about their safety concerns.

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