Parents' perceptions of the use of medication with children who are autistic

Swiezy, Naomi B.; Summers, Jim

doi:10.1007/bf02578404

Cited by 4 publications

(5 citation statements)

References 8 publications

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“…Parents in the study also voiced concerns about their adolescent's noncompliance in taking their medication, stating that the adolescent felt different when on the medication and this difference affected their interaction with peers. Swiezy and Summers (1996) found that parents were often responsible for administration of medication and the extent of noncompliance with prescribed dosages was potentially affected by the parent's perception of the efficacy of the treatment. They additionally found that the parent was the most knowledgeable regarding their child's behavior and had unique control and influence regarding medication administration.…”

Section: Discussionmentioning

confidence: 99%

Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

Strunk¹,

Pickler²,

McCain³

et al. 2014

Families, Systems, & Health

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Parents of adolescents with autism spectrum disorder (ASD) experience the challenges of navigating the health care system, locating information about ASD, lacking an understanding of prescribed medications, and experiencing minimal social support from health care providers. The purpose of this phenomenological study was to describe the experiences of parents who manage the health needs of an adolescent with ASD. Qualitative interviews were conducted at a university setting with 12 parents of 10 adolescents with ASD residing in Central Virginia. Data were analyzed using Moustakas' method in which the phenomenologist asks the following questions: What are the individual's experiences and in what context did they experience them? This study maximized credibility using 3 strategies: prolonged engagement, peer debriefing, and member checking. "Parents needing assistance" emerged as the essence of the parents' experiences. Four themes representing the essential challenging elements of the parents' experiences included concern with medications, frustrations with health care services, recognizing secondary health issues, and the need for resources and services. Findings of the current study revealed key factors to be considered in the development and delivery of health care for adolescents with ASD. These include creating and planning interventions for parents, sharing information about resources and services, and collaborating with others in the health care field. Additional research, both qualitative and quantitative, is needed to understand how parents and adolescents with ASD experience this transitional period.

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Section: Discussionmentioning

confidence: 99%

Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

Strunk¹,

Pickler²,

McCain³

et al. 2014

Families, Systems, & Health

View full text Add to dashboard Cite

show abstract

“…Some concerns were consistent with challenges expressed by parents of children with ADHD (Charach et al, 2006; Coletti et al, 2012), asthma (Meng & McConnell, 2002), and findings of young children and youth with ASD (Mackintosh et al, 2012; Swiezy & Summers, 1996). These included parent concerns related to adverse medication effects (e.g., insomnia, tics, gastrointestinal issues, appetite change; Charach et al, 2006; Coletti et al, 2012; Mackintosh et al, 2012; Meng & McConnell, 2002; Swiezy & Summers, 1996), medication efficacy (Charach et al, 2006; Coletti et al, 2012; Mackintosh et al, 2012; Swiezy & Summers, 1996), and a desire for prescribing health care providers to involve parents in the decision to medicate or consider non-pharmacological treatments (Coletti et al, 2012). Parents also noted different responses to generic versus brand name medication, a finding consistent with literature on other disorders (Borgheini, 2003; Roman, 2009; Rosenthal, Kong, Jacobs, & Katzman, 2008; Van Ameringen, Mancini, Patterson, & Bennett, 2007).…”

Section: Discussionmentioning

confidence: 60%

“…The first study examined seven parents of children with ASD, and the second, survey-based study, examined 489 parents of children and youth with ASD. In the first study, parents reported that they were comfortable using medication for their child with ASD, but held negative attitudes about its effectiveness (Swiezy & Summers, 1996). Parents also felt that while they played some role in the decision to medicate, they were not provided with a lot of information on the purpose and potential effects of their child’s medication (Swiezy & Summers, 1996).…”

mentioning

confidence: 99%

“…In the first study, parents reported that they were comfortable using medication for their child with ASD, but held negative attitudes about its effectiveness (Swiezy & Summers, 1996). Parents also felt that while they played some role in the decision to medicate, they were not provided with a lot of information on the purpose and potential effects of their child’s medication (Swiezy & Summers, 1996). In a more recent survey-based study which examined parents’ experiences seeking and using a number of different treatments for their child with ASD, including medication, parents expressed concern about giving their child medication, had fears about adverse effects, and sometimes doubted its effectiveness (Mackintosh et al, 2012).…”

mentioning

confidence: 99%

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Parent Perspectives on Psychotropic Medication Use and Interactions With Prescribing Health Care Providers Among Adolescents and Adults With an Autism Spectrum Disorder

Lake

Milovanov

Sawyer

et al. 2014

Focus Autism Other Dev Disabl

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Adolescents and young adults with an autism spectrum disorder (ASD) are often prescribed psychotropic medications to treat mental health and behavioral issues, and parents of these individuals play a crucial role in overseeing this care. Despite this, little is known about parents’ experiences managing and monitoring their child’s medication treatment, or their experience interacting with prescribing health care providers. To learn more about parents’ perspectives on psychotropic medication use in their adolescent or young adult with ASD, a focus group was conducted with seven mothers whose adolescent or adult child with ASD was prescribed one or more psychotropic medications. Results are summarized according to emergent themes including parent perception of child experience with medication, side effects, medication efficacy, medication monitoring, expertise issues, and service issues. Parents also provided medication recommendations, including a desire for health care providers with greater expertise in ASD, information on medication, and tools for medication monitoring.

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“…52% taking psychotropic medication in the absence of a psychiatric disorder diagnosis; 77% of these referred for CB (Kirvan & Lunsky, unpublished). See also Swiezy and Summers (1996) (Deb et al, 2009;Bhaumik & Branford, 2008;Reiss & Aman, 1998 * Some respondents were both family members (parents, siblings) and in professional practice in intellectual disabilities. We have used the designation stated in their email reply (most often their professional practice details).…”

Section: Geographical and Culturalmentioning

confidence: 99%

The use of psychotropic medication for the management of problem behaviours in adults with intellectual disabilities living in Canada

Bradley

Cheetham²

2010

Adv Mental Hlth Intell Disabil

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The paper provides a Canadian perspective on the use of psychotropic medication in the management of problem behaviours in adults with intellectual disabilities in Canada. Psychotropic medication and intellectual disabilities were explored in the context of Canadian health and social services, clinical practices, medical training and factors that have shaped these over the past few decades. Informal physician intellectual disabilities networks and the newly formed Canadian Network of the National Coalition on Dual Diagnosis provided the opportunity to survey the use of psychotropic medication for problem behaviours across the country. Geographic, political, cultural and other influences on the development of health and social services are described, as well as training requirements for physicians. Survey responses were received from all provinces and represented clinicians in mental health multidisciplinary teams, health and social services ministry representatives, agency staff (up to executive director level) and family members of individuals with intellectual disabilities. Psychiatry and family medicine perspectives of the authors from working in Canada and the UK with people with intellectual disabilities presenting with problem behaviours are described. In Canada there are no national, provincial or territorial policies or guidelines on use of psychotropic medication for the management of such behaviours. There are no requirements for physicians prescribing these medications to have training in the care of people with intellectual disabilities. Services for people with intellectual disabilities and behaviour problems in Canada appear to be more crisis-reactive than those in the UK.

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Parents' perceptions of the use of medication with children who are autistic

Cited by 4 publications

References 8 publications

Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

Managing the health care needs of adolescents with autism spectrum disorder: The parents’ experience.

Parent Perspectives on Psychotropic Medication Use and Interactions With Prescribing Health Care Providers Among Adolescents and Adults With an Autism Spectrum Disorder

The use of psychotropic medication for the management of problem behaviours in adults with intellectual disabilities living in Canada

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