Parents' Perceptions of Primary Care: Measuring Parents' Experiences of Pediatric Primary Care Quality

Seid, Michael; Varni, James W.; Bermudez, Laura Olson; Živković, Milutin; Far, Maryam Davodi; Nelson, Melissa; Kurtin, Paul S.

doi:10.1542/peds.108.2.264

Cited by 82 publications

(88 citation statements)

References 25 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Subscales of the PedsQL also demonstrated adequate to high internal consistency (a 5 .78-.89). Research has shown the usefulness of the PedsQL for clinical decision making (de Wit et al, 2008;Seid, Sobo, Gelhard, & Varni, 2004;Seid et al, 2001;Seid, Varni, Segall, & Kurtin, 2004), and the reliability and validity found within the present study provide evidence for the utility of the total score as a clinical measure within the IDD population and the utility of the subscales and total score for group level research within the population.…”

Section: Discussionsupporting

confidence: 65%

Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities

Viecili¹,

Weiss²

2015

American Journal on Intellectual and Developmental Disabilities

View full text Add to dashboard Cite

The Pediatric Quality of Life Inventory (PedsQL) measures health-related quality of life, a growing area of research, particularly among individuals with disabilities. This research is necessary to fully understand the varied needs of the population and, ultimately, ensure that those needs are being met. The current study assessed the reliability and validity of the PedsQL in individuals with intellectual and developmental disabilities, including individuals with autism spectrum disorder. Participants included 359 caregivers of children, youth, and young adults with IDD. Caregivers completed the PedsQL 4.0 Generic Core Scales questions regarding the individual's physical health and the Strengths and Difficulties Questionnaire. The PedsQL achieved excellent reliability across scales, and distinguished healthy individuals from those with chronic health conditions, as well as individuals with ASD from those without. Factor analysis confirmed a 5-factor model, with moderate to high criterion validity. The PedsQL shows sound psychometric properties and may be a useful tool to measure psychosocial functioning in this population.

show abstract

Section: Discussionsupporting

confidence: 65%

Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities

Viecili¹,

Weiss²

2015

American Journal on Intellectual and Developmental Disabilities

View full text Add to dashboard Cite

show abstract

“…Two of these investigations (93,104,105) indicate that factors other than financial resources drive health care utilization for farmworker children. In a series of analyses focused on child health services among farmworker families living along the U.S.-Mexico border, the Parent's Perceptions of Primary Care Measure (P3C) has been developed and validated (94,95). These same researchers (93) have reported on the use of health services for young children in farmworker families, finding that more than half the health care received by these children was received in Mexico.…”

Section: Research On Farmworker Health Servicesmentioning

confidence: 99%

“…However, knowledge of the health services needs of the farmworker population remains inadequate. Few studies have asked farmworkers about their health care needs and utilization or those of their families (exceptions include 95,104,105). Few data are available that evaluate the effectiveness of existing programs to improve health, health behaviors, or health services (exceptions include 38).…”

Section: Introductionmentioning

confidence: 99%

Delivery of Health Services to Migrant and Seasonal Farmworkers

Arcury¹,

Quandt

2007

Annu. Rev. Public Health

329

362

View full text Add to dashboard Cite

Farmworkers are low-paid, uninsured employees in an extremely hazardous industry, and they provide an essential service for U.S. society. This review evaluates the delivery of health services to farmworkers. It describes the farmworker population in the United States, noting characteristics (e.g., migratory and immigration status) that limit their access to and utilization of health services. It describes the health services needs of this population, including occupational health, mental health, oral health, and chronic disease treatment. Cultural, structural, legal, financial, and geographic barriers to health services utilization are described. Existing research on health services utilization among farmworkers is discussed. Programs that have been developed to address the barriers to health services utilization among farmworkers are reviewed. Finally, research needed to improve knowledge of farmworker health services utilization is suggested. These research needs include formal evaluations of existing programs and basic research to characterize the health services utilization patterns of farmworkers.

show abstract

“…45 Another common barrier to integration is concern about disclosure of possible confidential information from the PCPs to the home visitors or vice versa. 43,46 Families may be apprehensive about disclosing information across services. Furthermore, there is concern that clinicians may be unprepared to act on family issues the home visitor may find in the home, and conversely, that home visitor may not be able to address the issues of PCP concern.…”

Section: Figurementioning

confidence: 99%

Merging Systems: Integrating Home Visitation and the Family-Centered Medical Home

2013

View full text Add to dashboard Cite

To improve the health of children and bend the health care cost curve we must integrate the individual and population approaches to health and health care delivery. The 2012 Institute of Medicine (IOM) report Primary Care and Public Health: Exploring Integration to Improve Population Health laid out the continuum for integration of primary care and public health stretching from isolation to merging systems. Integration of the family-centered medical home (FCMH) and home visitation (HV) would promote overall efficiency and effectiveness and help achieve gains in population health through improving the quality of health care delivered, decreasing duplication, reinforcing similar health priorities, decreasing costs, and decreasing health disparities. This paper aims to (1) provide a brief description of the goals and scope of care of the FCMH and HV, (2) outline the need for integration of the FCMH and HV and synergies of integration, (3) apply the IOM' s continuum of integration framework to the FCMH and HV and describe barriers to integration, and (4) use child developmental surveillance and screening as an example of the potential impact of HV-FCMH integration. Pediatrics 2013;132:S74-S81 AUTHORS:

show abstract

Parents' Perceptions of Primary Care: Measuring Parents' Experiences of Pediatric Primary Care Quality

Cited by 82 publications

References 25 publications

Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities

Reliability and Validity of the Pediatric Quality of Life Inventory With Individuals With Intellectual and Developmental Disabilities

Delivery of Health Services to Migrant and Seasonal Farmworkers

Merging Systems: Integrating Home Visitation and the Family-Centered Medical Home

Contact Info

Product

Resources

About