Parents' Perceptions of a Patient Portal for Managing Their Child's Chronic Illness

Britto, Maria T.; Hesse, Elizabeth A.; Kamdar, Opal J.; Munafo, Jennifer Knopf

doi:10.1016/j.jpeds.2013.02.041

Cited by 58 publications

(58 citation statements)

References 9 publications

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“…Initial development of the topic areas included a review of the literature of use of the EHR in pediatric practices and among children with chronic conditions. Previously reported strengths and weaknesses of the EHR and Patient Portal for children with chronic conditions were reviewed (19,21,22) and provided the foundation for interview questions.…”

Section: Methodsmentioning

confidence: 99%

Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: A qualitative study

Bush

Stahmer

Connelly

2016

Health Informatics J

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This qualitative project used structured interviews with nine parents to examine perceptions of the electronic health record (EHR) and associated patient portal in the treatment of their child's autism spectrum disorder. Thematic analysis identified six complementary themes including: Familiarity and exposure to the EHR, changing experience of care (streamlining appointments, providing more rapid medical record access, increasing clinician awareness of the complexity of their child's medical treatment, and facilitating prescriptions), portal use, patient/EHR/portal interaction, interoperability, and mother as care coordinator. While aware of the patient portal, only one-third had registered to use it and these parents reported only limited use. In general, perceptions of the electronic health record are positive, but the patient portal has yet to have needed consumer adoption. Further research and functionality are needed to increase portal registration and greater portal integration in patient care.

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Section: Methodsmentioning

confidence: 99%

Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: A qualitative study

Bush

Stahmer

Connelly

2016

Health Informatics J

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“…Of the 32 included publications ( 224,230,237,251 and six were both quantitative and qualitative. [231][232][233][234]239,248 The majority of studies were conducted in the USA (17 studies 230,231,234,236,[238][239][240][241][242][243][244]246,248,255 ); other main locations were Australia (three studies 227,228,235 ), the Netherlands (three studies 245,247,249 ), Sweden (three studies 233,237,250 ) and the UK (two studies 232,256 ).…”

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

“…However, as authors may have described similar technologies using different names, there may be some overlap between categories. Videoconferencing or video consultation was the most frequently used tool (14 studies 227,228,233,235,236,238,[240][241][242][243][244]246,248,253 ), followed by e-mails or web messaging systems (13 studies 223,[229][230][231][232]234,[237][238][239]245,247,249,250,254,256 ). Other categories were web chat (two studies 239,255 ) and SMSs (one study 224 ).…”

Section: Characteristics Of Included Studiesmentioning

confidence: 99%

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The role of digital communication in patient–clinician communication for NHS providers of specialist clinical services for young people [the Long-term conditions Young people Networked Communication (LYNC) study]: a mixed-methods study

Griffiths

Armoiry

Atherton

et al. 2018

Health Serv Deliv Res

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Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: journals.library@nihr.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: http://www.nets.nihr.ac.uk/programmes/hsdr This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its preceding programmes as project number 12/209/51. The contractual start date was in May 2014. The final report began editorial review in August 2016 and was accepted for publication in April 2017. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health and Social Care. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Departm...

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“…8, 133,134 Novel delivery models for vaccine-related information such as personal health records could be useful as well, but have yet to be studied. Supporting this possibility, one study found that parents of children with CMCs thought patient portals would be beneficial for management of their child's care, 135 and another study found that parents in general were interested in using portals for vaccine information. 136 Given the growing population of adolescents with CMCs, it is important for all vaccinerelated interventions, public health initiatives, and awareness campaigns targeting the general population to consider the needs of these high-risk patients and their families.…”

Section: Patient and Familymentioning

confidence: 99%

Vaccination of adolescents with chronic medical conditions: Special considerations and strategies for enhancing uptake

Hofstetter

LaRussa

Rosenthal

2015

Human Vaccines & Immunotherapeutics

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Adolescents with chronic medical conditions (CMCs), a growing population worldwide, possess a wide array of preventive health care needs. Vaccination is strongly recommended for the vast majority of these adolescents given their increased risk of vaccine preventable infection and associated complications. Not only should they receive routine vaccines, but some also require additional vaccines. Despite these guidelines, evidence suggests that adolescents with CMCs often fail to receive needed vaccines. Many factors contribute to this under-immunization, including lack of knowledge among parents and providers and suboptimal coordination of primary and subspecialty care. This review describes current vaccination recommendations for these adolescents as well as recent data related to infection risk, vaccine efficacy and safety, vaccination coverage, and the unique multilevel factors impacting uptake in this population. It also discusses strategies for improving coverage levels and reducing missed vaccination opportunities, with a particular focus on technology-based interventions.

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Parents' Perceptions of a Patient Portal for Managing Their Child's Chronic Illness

Cited by 58 publications

References 9 publications

Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: A qualitative study

Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: A qualitative study

The role of digital communication in patient–clinician communication for NHS providers of specialist clinical services for young people [the Long-term conditions Young people Networked Communication (LYNC) study]: a mixed-methods study

Vaccination of adolescents with chronic medical conditions: Special considerations and strategies for enhancing uptake

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