Parents of Children with High Functioning Autism: How Well Do They Cope and Adjust?

Lee, Gloria K.

doi:10.1007/s10882-008-9128-2

Cited by 106 publications

(76 citation statements)

References 46 publications

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“…These characteristics include age (Gray, 2006;Pruitt, Willis, Timmons, & Ekas, 2016), gender (Allik et al, 2006;Lee, 2009;McStay et al, 2014;Mugno et al, 2007), employment status (Dardas & Ahmad, 2014a), and household income (Dardas & Ahmad, 2014a). In fact, a recent review on coping styles among parents of children with ASD reported that age and gender of parents are the most commonly discussed factors (Lai & Oei, 2014).…”

mentioning

confidence: 99%

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

McAuliffe

Cordier

Vaz

et al. 2017

J Autism Dev Disord

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This study aimed to examine the influence of differences in household status on the parental stress, coping, time use and quality of life (QoL) among mothers of children with autism spectrum disorders. Forty-three single and 164 coupled mothers completed the survey. Data were analysed using multivariate logistic regression. We found that single mothers were 1.05 times more likely to report lower levels of environmental QoL. Whilst they were 1.73 times more likely to use acceptance coping style, this association did not persist after adjusting for total number of children, household income and employment status. There was no difference in time use and stress between these mothers. Possible environmental issues for single mothers and implications for future research are discussed.

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mentioning

confidence: 99%

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

McAuliffe

Cordier

Vaz

et al. 2017

J Autism Dev Disord

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“…A large number of research studies have indicated the presence of elevated behavior problems in children with an Autism Spectrum Disorder (ASD) and also an increased risk for negative outcomes (e.g., stress, distress, depression) in their parents when compared with other children and families (Brereton et al 2006;Blacher and McIntyre 2006;Eisenhower et al 2005;Gadow et al 2004;Griffith et al 2010;Lee 2009). However, the validity of these findings may be restricted due to two main methodological limitations: the use of clinical or self-referred samples and the non-separation of the association of ASD and that of any co-existing intellectual disability (ID) with children's behavior problems and parental well-being (Totsika et al 2011).…”

mentioning

confidence: 99%

“…This use of referred samples compromises the internal validity of any findings because the prevalence of psychiatric disorders is likely to be overestimated (Newman et al 1998). In parallel, the exclusion of children with typical intelligence from ASD groups (Allik et al 2006;Iizuka et al 2010;Lee 2009) or the exclusion of ID from ASD groups (Bradley et al 2004;Brereton et al 2006;Blacher and McIntyre 2006) limits the ability to generalize study findings to the whole population of children with ASD. Population-based estimates suggest that ID is present in approximately one half of children with ASD.…”

mentioning

confidence: 99%

Behavior Problems at 5 Years of Age and Maternal Mental Health in Autism and Intellectual Disability

Totsika

Hastings

Emerson

et al. 2011

J Abnorm Child Psychol

134

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We examined child behavior problems and maternal mental health in a British population-representative sample of 5 year-old children with an autism spectrum disorder (ASD), controlling for the presence of an intellectual disability (ID). Behavior problems were significantly higher in children with ASD with/out ID compared to typically developing children, but compared to children with ID only hyperactivity was significantly higher in children with ASD/ID. After controlling for ID and maternal mental health, the presence of ASD significantly increased the odds for hyperactivity, conduct problems and emotional symptoms. Negative maternal outcomes (serious mental illness, psychological distress, and physical health limitations) were not consistently elevated in ASD. The findings highlight the early age at which behavior problems emerge in ASD, and suggest that at this age , there may not be a clear disadvantage for maternal mental health associated with having a child with ASD in the family, over and above that conferred by child behavior problems.

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“…Type of child disability [94], a strong social support system and selfefficacy [18,[95][96][97], positive parent perception of stressors [17,98], and coping skills [99,100] have all been shown to effectively mediate parental stress. Future research should evaluate the additive nature of interventions targeting potentially malleable variables (e.g., social support network, socioeconomic status) for families of children with significant intellectual disability.…”

Section: Future Research and Limitationsmentioning

confidence: 99%

Training Parents of Children with Intellectual Disabilities: Trends, Issues, and Future Directions

Machalicek

Lang

Raulston

2015

Curr Dev Disord Rep

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This review summarizes selected studies involving education and training programs designed to improve parents' ability to provide research-based support and intervention for their children with intellectual disabilities. First, we highlight stressors and obstacles associated with parenting a child with intellectual disability and note the relative paucity of existing research in light of the increased risk of stress, anxiety, and depression reported for this population. Next, we provide a description of recent trends and issues and attempt to elucidate gaps in the existing literature that warrant additional research effort. Ultimately, this paper highlights the growing need for interventions that include both behavioral and psychosocial components to better address needs in families of children with intellectual disability. Specifically, we conclude that there exists a need for future research on culturally sensitive parent training as well as on potentially efficient group-based parent education programs for families of children with moderate to profound intellectual disability.

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Parents of Children with High Functioning Autism: How Well Do They Cope and Adjust?

Cited by 106 publications

References 46 publications

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

Quality of Life, Coping Styles, Stress Levels, and Time Use in Mothers of Children with Autism Spectrum Disorders: Comparing Single Versus Coupled Households

Behavior Problems at 5 Years of Age and Maternal Mental Health in Autism and Intellectual Disability

Training Parents of Children with Intellectual Disabilities: Trends, Issues, and Future Directions

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