Parents of children with food allergy

Chooniedass, Rishma; Soller, Lianne; Hsu, Elaine; To, Sharon; Cameron, Scott; Chan, Edmond S.

doi:10.1016/j.anai.2020.05.014

Cited by 17 publications

(10 citation statements)

References 8 publications

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“…Among adolescents and young people, full adherence to exclusion diets and carriage of adrenaline autoinjectors can be as low as 17%–21% 72 . Adherence can be affected by a variety of factors including age, ethnicity, social support systems, financial situation, difficulties understanding food labels and menus, bullying, mental health support and tobacco smoking 73 . Across the world, access to allergy services is extremely variable, and there may be a considerable wait to see a practitioner, or even no support at all 73 .…”

Section: Resultsmentioning

confidence: 99%

“…73 Across the world, access to allergy services is extremely variable, and there may be a considerable wait to see a practitioner, or even no support at all. 73 In particular, there is a lack of specialist psychologists to support people with food allergy. 74 Once diagnosed, it can take families and caregivers time to understand their food allergy and they may require repeated education to comprehend key messages.…”

Section: Barriers To Adherence and Supportive Strategiesmentioning

confidence: 99%

“…This process can be impeded by misinformation or inconsistent advice as well as social media. 73 Strategies that have been shown to increase adherence include membership of a patient support group, having a written anaphylaxis management plan and helping adolescents to understand the severity of anaphylaxis. 72 Where available psychotherapy can result in improved management and engagement with treatment.…”

Section: Barriers To Adherence and Supportive Strategiesmentioning

confidence: 99%

See 2 more Smart Citations

Food allergy—A holistic approach to dietary management. A joint EAACI Research & Outreach Committee and INDANA review

Skypala,

Reese,

Durban

et al. 2023

Pediatric Allergy Immunology

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Following a diagnosis of IgE‐mediated food allergy, to secure the best outcome, the patient should receive individualized advice tailored to their specific needs, which considers the type and presentation of the food involved, level of exclusion required, risk of cross‐contamination and any variance required for age, ethnicity, financial issues, and lifestyle. Issues such as food labels “may contain” statements, and variation in the threshold of reaction and impact of cofactors should also be considered. Most important is the need to ensure that the diagnosis is robust, especially given the nutritional, psychological, and socioeconomic issues that can affect an individual with a diagnosis of food allergy. Unnecessary exclusion of one or more foods that have not triggered allergic reactions, especially in individuals with allergic comorbidities, can result in severe IgE‐mediated reactions on re‐exposure. Given that food allergies may change over time, the diagnosis should be reviewed, to determine whether resolution is likely, or new‐food triggers are reported. Regular assessment is vital, especially during childhood, to ensure reintroduction occurs at an appropriate time, thus enabling increased diversity of the diet and improvement in the quality of life. For some, an IgE‐mediated food allergy may necessitate the life‐long exclusion of foods, and for others, a food habitually eaten suddenly triggers an allergic reaction in adult life. People of all ages, ethnicities, and socioeconomic backgrounds deserve individual advice on the management of their food allergy to support a healthy diet and improve quality of life.

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Section: Resultsmentioning

confidence: 99%

Section: Barriers To Adherence and Supportive Strategiesmentioning

confidence: 99%

Section: Barriers To Adherence and Supportive Strategiesmentioning

confidence: 99%

See 1 more Smart Citation

Food allergy—A holistic approach to dietary management. A joint EAACI Research & Outreach Committee and INDANA review

Skypala,

Reese,

Durban

et al. 2023

Pediatric Allergy Immunology

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“…For example, children with cognitive limitations, different language abilities, and sensitivity to life-threatening threats require parents to provide information about their health and daily life. 9 The Food Allergy Quality of Life Questionnaire (FAQLQ) series for parents, children, adolescents and adults was developed and validated with the support of the multi-center EuroPrevall project. 10 There are four separate questionnaires under this series.…”

mentioning

confidence: 99%

“…Since HRQoL varies by patient's age, it is critical to developing specific questionnaires for different age groups. For example, children with cognitive limitations, different language abilities, and sensitivity to life‐threatening threats require parents to provide information about their health and daily life 9 …”

mentioning

confidence: 99%

Validation of the food allergy quality of life questionnaire series in Chinese families with food‐allergic children

Leung

Cheng

et al. 2022

Pediatric Allergy Immunology

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Background Anxiety from accidental exposure and vigilant dietary monitoring impair the quality of life (QoL) of food‐allergic patients. A comprehensive food allergy‐specific questionnaire allows patients to accurately report their QoL. This study validated the Food Allergy Quality of Life Questionnaire (FAQLQ) series and assessed the QoL of Chinese food‐allergic patients and their caregivers. Methods FAQLQ series developed by EuroPrevall consists of four separate questionnaires for parents, children, adolescents and adults. All questionnaires were translated into traditional Chinese by standard forward and backward methods. A cross‐sectional study was conducted on food‐allergic patients and children's parents using an age‐appropriate questionnaire. The performance indices of FAQLQ and their correlation with independent measures of food allergy were analyzed, and factor analysis was performed to confirm the factor structure of FAQLQ questionnaires. Results Cross‐sectional validation was performed on 214 participants, with 40 reassessed for test–retest reliability. Overall scores for the FAQLQ series had good internal consistency with Cronbach's α ≥.90. Good construct validity was demonstrated by correlations between FAQLQ‐Parent Form, FAQLQ‐Child Form, FAQLQ‐Teenager Form, FAQLQ‐Adult Form and Food Allergy Independent Measure (FAIM) scores, except in 0‐ to 3‐year‐old children. Test–retest analyses revealed a significant correlation between total FAQLQ score, parent‐reported FAIM and food anxiety domain in 4–6 years, and between total score and FAIM in 7–12 years. Exploratory factor analysis categorized items in the FAQLQ series into three to four domains. Conclusion FAQLQ series provide a valid and reliable measure for QoL in Chinese food‐allergic patients and caregivers, except for parents of children aged 0–3 years. Items for all FAQLQ questionnaires are categorized into different functional domains in our population.

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2024

Encyclopedia of Food Allergy

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Parents of children with food allergy

Cited by 17 publications

References 8 publications

Food allergy—A holistic approach to dietary management. A joint EAACI Research & Outreach Committee and INDANA review

Food allergy—A holistic approach to dietary management. A joint EAACI Research & Outreach Committee and INDANA review

Validation of the food allergy quality of life questionnaire series in Chinese families with food‐allergic children

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