Parents’ information needs, treatment concerns, and psychological well-being when their child is diagnosed with adolescent idiopathic scoliosis: A systematic review

Motyer, Gillian; Dooley, Barbara; Kiely, Patrick; Fitzgerald, Amanda

doi:10.1016/j.pec.2020.11.023

Cited by 18 publications

(34 citation statements)

References 50 publications

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“…Future investigations should also seek to identify specific factors which may protect or buffer against negative psychosocial outcomes in AIS such as low body image, so that supports or interventions can be tailored accordingly. Additionally, given the role of parents in their child’s AIS care ( Motyer et al, 2021 ), exploration of parental experiences throughout the presurgical period represents another avenue for future research to inform patient- and family-centered care in this area.…”

Section: Discussionmentioning

confidence: 99%

Adolescents’ Experiences of Idiopathic Scoliosis in the Presurgical Period: A Qualitative Study

Motyer

Kiely

Fitzgerald

2021

Journal of Pediatric Psychology

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Objective Adolescent idiopathic scoliosis (AIS) is a sideways curvature of the spine that can progress severely during adolescent development and require surgical intervention. This qualitative study was conducted to explore the psychosocial experiences of adolescents with idiopathic scoliosis during the presurgical stage of treatment. Methods Fourteen adolescents with moderate-to-severe AIS aged 12–17 years participated in semistructured interviews and data were analyzed using inductive reflexive thematic analysis. Results Four key themes were generated from the analysis. “Proceeding with Caution” described adolescents’ adaptation to the physical impact of their AIS, while “Am I Different?” encompassed adolescents’ perceptions of their changing appearance and visibility of their condition. “An Emotional Journey” captured the rollercoaster of emotions from shock at diagnosis to the daunting realization of the severity of their condition, while knowing others with AIS could ease the emotional burden. Finally, adolescents’ concerns and expectations about their prospective surgery were captured by the theme “No Pain, No Gain”, whereby they were often keen to put surgery behind them. Conclusions Understanding and addressing adolescents’ psychosocial support needs as they manage the challenges associated with idiopathic scoliosis is a key component of promoting better outcomes among this patient group. Clinical implications and opportunities for support provision are discussed.

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Section: Discussionmentioning

confidence: 99%

Adolescents’ Experiences of Idiopathic Scoliosis in the Presurgical Period: A Qualitative Study

Motyer

Kiely

Fitzgerald

2021

Journal of Pediatric Psychology

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“…Therefore, a convergent qualitative synthesis was conducted to simultaneously analyze qualitative, quantitative, and mixed methods research findings (Noyes et al, 2019; Pluye & Hong, 2014; Popay et al, 2006). This method of analysis has been previously used in broad systematic reviews (Bélanger et al, 2011; Motyer et al, 2021) as it integrates all included study designs under a single analysis by transforming the results of each included study into textual data that can be synthesized using qualitative data analyses. This conversion, as noted above, was conducted by assigning a descriptive qualitative code to the findings of each article.…”

Section: Methodsmentioning

confidence: 99%

Policy gaps and opportunities: A systematic review of autism spectrum disorder and criminal justice intersections

Cooper

Uppal

Railey

et al. 2022

Autism

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Autism spectrum disorder prevalence is rising, and as this population enters adulthood, preliminary research has identified high rates of contact with the criminal justice system. Policy and programmatic reform are crucial given reported negative and violent outcomes for autistic individuals when encountering the criminal justice system. Given the size and scope of the entire criminal justice system, identifying priorities and opportunities for change is critical, and must be rooted in evidence-based findings to maximize impact and scalability. This article provides a systematic review of the literature on autism spectrum disorder and criminal justice system intersections, analyzed through a convergent qualitative synthesis. As the extant literature is diverse and employs a variety of study methods, this review allows for an analysis across study types. The Preferred Reporting Items for Systematic Reviews and Meta-Analysis structure was utilized and captured 89 total articles from six databases. Studies are grouped by the Sequential Intercept Model, which offers a framework for analyzing criminal justice system dimensions, and informs where research at the intersection of autism spectrum disorder and the criminal justice system is most prevalent. Themes were identified at each intercept and described through key study findings to articulate implications and guidance for policy, practice, and future research to promote equitable justice for autistic individuals. Lay abstract The number of people with autism spectrum disorder has increased, and as this population ages, research is showing high rates of contact with the criminal justice system among this group. Social and communication differences that autistic individuals experience can act as a risk factor during these interactions, as shown by public reports of negative and violent encounters between autistic individuals and the law enforcement. There is a clear need for evidence-based strategies to reduce high rates of contact and to improve outcomes when an interaction occurs. This article provides a systematic review of research on autism spectrum disorder and criminal justice system to compile this evidence base. The Preferred Reporting Items for Systematic Reviews and Meta-Analysis structure was used to identify 89 articles after searching six databases. The Sequential Intercept Model describes the criminal justice system as different stages, or intercepts, that are connected, and the Sequential Intercept Model serves as an overall framework to organize the included articles. Articles were analyzed to identify research themes at each intercept, which offer guidance for policy and program changes that support equitable justice for autistic individuals.

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“…For chronic pain in scoliosis patients, in addition to taking oral analgesics, other measures for pain management should also be used, such as acupuncture, stretching exercises and yoga, all can achieve pain relief. The qualitative interview conducted by Motyer (Motyer, Dooley, Kiely, & Fitzgerald, 2021) found that pain is the postoperative issue of most concern to patients (25%).…”

Section: Others: Rehabilitation Posture Diet and Painmentioning

confidence: 99%

Patient Care for Adolescent Idiopathic Scoliosis

Wei¹,

Lin²,

Hung³

et al. 2022

IJSN

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Parents’ information needs, treatment concerns, and psychological well-being when their child is diagnosed with adolescent idiopathic scoliosis: A systematic review

Cited by 18 publications

References 50 publications

Adolescents’ Experiences of Idiopathic Scoliosis in the Presurgical Period: A Qualitative Study

Adolescents’ Experiences of Idiopathic Scoliosis in the Presurgical Period: A Qualitative Study

Policy gaps and opportunities: A systematic review of autism spectrum disorder and criminal justice intersections

Patient Care for Adolescent Idiopathic Scoliosis

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