Parents' experiences of caring for their infant following surgery in the neonatal period: A literature review

Diffin, Janet; Shields, Michael; Cruise, Sharon; Johnston, Linda

doi:10.1016/j.jnn.2012.10.002

Cited by 13 publications

(14 citation statements)

References 30 publications

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“…To date, a paucity of studies have assessed the NICU-related stress experienced by parents of infants with complex medical and/or surgical conditions; including cardiac surgery [24][25][26]. This is despite reports that the birth prevalence of congenital heart disease (CHD) worldwide is now eight in every 1000 live births, with up to 50% of such children requiring surgery [27,28].…”

Section: Introductionmentioning

confidence: 99%

Stress and distress in parents of neonates admitted to the neonatal intensive care unit for cardiac surgery

Diffin

Spence

Naranian

et al. 2016

Early Human Development

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Section: Introductionmentioning

confidence: 99%

Stress and distress in parents of neonates admitted to the neonatal intensive care unit for cardiac surgery

Diffin

Spence

Naranian

et al. 2016

Early Human Development

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“…As survival increases and major neurodevelopmental consequences, such as cerebral palsy, decrease, health professionals are turning their attention to psychosocial consequences such as parental depression and attachment disorders . Parents of hospitalised newborns face many challenges, giving rise to a variety of needs, and it has been shown that parents of preterm newborns and infants requiring neonatal surgery for complex congenital cardiac anomalies experience significant stress. In the NICU, the illness trajectory of newborns requiring major surgery is consistently acute, requiring complex care, and includes risks associated with anaesthesia, surgery, post‐operative complications and pain management.…”

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confidence: 99%

“…While there is much evidence about the needs of parents of preterm infants, the majority (80%) of newborns requiring surgery for congenital anomalies are born greater than 32 weeks’ gestation . Most preterm studies include only small numbers of near‐term surgical infants .…”

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confidence: 99%

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Needs of parents in a surgical neonatal intensive care unit

Govindaswamy

Laing

Waters

et al. 2018

J Paediatrics Child Health

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Aim While there is evidence of parental needs in the neonatal intensive care unit (NICU), parents of newborns admitted for general surgery are an under‐researched population. This study aimed to identify needs in parents of newborns admitted to the NICU for general surgery and whether health‐care professionals meet these needs. Methods This was a prospective cohort study of 111 parents (57% mothers) of newborns admitted to a surgical NICU for general surgery in Australia from January 2014 to September 2015. Parents completed the Neonatal Family Needs Inventory (NFNI), comprising 56 items in five subscales (Support, Comfort, Information, Proximity, Assurance) at admission and discharge, as well as the Social Desirability Scale (SDS). Data were analysed using parametric and non‐parametric techniques. Results At both admission and discharge, parents rated Assurance (M = 3.8, standard deviation (SD) = 0.24) needs as the most important, followed by Proximity (M = 3.6, SD = 0.32) and Information (M = 3.5, SD = 0.38). Mothers rated Assurance significantly more important than fathers (P < 0.02). Overall, parents' most important needs were having questions answered honestly (M = 3.96, SD = 0.19), seeing their infant frequently and knowing about the medical treatment (both M = 3.95, SD = 0.23). The 10 most important needs were met for more than 96% of parents, with no evidence of response bias. Conclusions Reassurance is a priority need for parents in the surgical NICU. Mothers' and fathers' needs may be best met by practices based on family‐centred, individualised care principles.

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“…Previous studies have highlighted parents' experiences of having their child in an NICU (Lindberg et al , ; Diffin et al , ) and experiences when the mother is in an ICU and the child might be in an NICU (Engström and Lindberg, , ; Lindberg and Engström, ) or about parental communication needs with health care professionals (Meert et al , ; Fegran and Helseth, ). When one looks for research about parents' experiences of intensive care when their child is between 1 and 18 years of age, the articles we found on the subject compare parents' stress and experiences in the cases of acutely ill, intubated children and acutely ill non‐intubated children, and parents' experiences of being present or not during resuscitation of their child in a children's ICU (Haines et al , ; Maxton, ).…”

Section: Introductionmentioning

confidence: 99%