“…The 5% with severe conditions account for 19% of physician contacts and 33% of hospital days related to chronic Once the diagnosis of disorder is made, parents may react with shock, denial, anger, sadness or depression, guilt, and anxiety. In a study by Guz E. et al in 2020 [9], the following reaction stages in parents are thus: shock, waiting, mourning, defence, proper behaviour, defensive behaviour (neurotic reaction), adaptation, intellectual and emotional adaptation. These reactions may occur at any time in the child's development, and each parent may be at a different stage of acceptance, making communication between them difficult.…”