Parents’ and Service Providers’ Perceptions of the Family Goal Setting Tool: A Pilot Study

Rodger, Sylvia; O’Keefe, Amy; Cook, Madonna; Jones, J. J.

doi:10.1111/j.1468-3148.2011.00674.x

Cited by 24 publications

(29 citation statements)

References 41 publications

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“…Another commonly cited barrier to family-engaged care planning is caregiver capability to identify and communicate concerns to be addressed through a therapeutic care plan (Brewer et al, 2014;Rodger, O'Keefe, Cook, & Jones, 2012;Maitra & Erway, 2006). Specifically, that caregivers may understand and know their child's function in context best, but lack self-efficacy and therefore hesitate to partake in planning care for their child (An & Palisano, 2014).…”

Section: Discussionmentioning

confidence: 99%

Caregiver creation of participation‐focused care plans using Participation and Environment Measure Plus (PEM+), an electronic health tool for family‐centred care

Bosak

Jarvis

Khetani

2019

Child

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Background Family‐centred care (FCC) is a model for rehabilitation practice that focuses on collaborative partnerships between providers and clients (i.e., children and their caregivers). FCC is a best‐practice standard and is expected to yield better outcomes for children and greater caregiver satisfaction with rehabilitation services. A commonly cited barrier to implementing FCC is perceptions about caregiver capability to contribute to designing an initial plan of care, due to lack of skill and/or interest. Objectives The aim of this study is to address FCC barriers through three objectives: (a) report the proportion of caregivers that created multiple care plans using PEM+, an electronic health tool, (b) assess the proportion of caregivers that created complete and participation‐focused care plan(s) and that exceeded criteria of a complete plan, and (c) describe characteristics of caregivers that did not create a complete care plan. Methods Study objectives were addressed via secondary analyses of a subset of data from the PEM + pilot trial. Participants were caregivers (N = 18) of children with developmental disabilities (aged 0–5 years) receiving rehabilitation services in an early childhood programme. A deductive analytic approach was used to code care plan content to criteria and to determine proportion of caregivers with a complete and participation‐focused care plan and those that exceeded the criteria. Results Multiple care plans were created by 72% of the caregivers, 83% caregivers created at least one care plan that was complete and participation‐focused per criteria, and 83% exceeded the criteria. Conclusion The high occurrence of caregivers who developed multiple care plans and who developed high‐quality care plans, in their completeness and participation‐focused features, suggests that caregivers are interested and capable of participating in a collaborative goal setting process when using PEM+. This indicates that FCC is feasible to implement in clinical workflow with the use of an electronic health tool, which may better facilitate such care. PEM+ warrants further efficacy testing prior to implementation.

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Section: Discussionmentioning

confidence: 99%

Caregiver creation of participation‐focused care plans using Participation and Environment Measure Plus (PEM+), an electronic health tool for family‐centred care

Bosak

Jarvis

Khetani

2019

Child

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“…The PEGS uses picture cards with the children to support the process and also includes companion parent and teacher questionnaires so the goals of each stakeholder are included. Rodger, O'Keefe, Cook, and Jones (2012) used a similar picture card process in their Family Goal Setting Tool to assist families in determining priority goals. Regardless of which is used, the key is that a specific tool or process is employed to facilitate family collaboration.…”

Section: Recommendationsmentioning

confidence: 99%

Addressing the Challenges of Collaborative Goal Setting with Children and Their Families

Brewer

Pollock

Wright

2013

Physical & Occupational Therapy In Pediatrics

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Collaborative goal setting between clinicians and clients/families is considered a fundamental component of the pediatric rehabilitation process. However, truly client-centered goal setting is not without its challenges. The purpose of this paper is to highlight theoretical concepts relevant to rehabilitation goal setting, review clinical studies directly evaluating relationships between goal setting and pediatric rehabilitation outcomes, and provide recommendations to facilitate collaborative goal processes. Four theoretical frameworks were identified that may lie behind and help explain the effectiveness of collaborative goal setting. The four relevant outcome studies found in the review revealed that individualized goal setting is an important component of the intervention, engages families more actively in therapy, and is associated to some extent with positive outcomes. The evidence suggests that the impact of fully collaborative goal setting is sufficiently positive to support investment of organizational and individual time, energy, and resources to make it an integral part of the rehabilitation process.

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“…Families play the leading role in the child's life and have significant insights into their children's abilities and needs (King et al bs_bs_banner Child: care, health and development Original Article doi:10.1111/cch.12183 2004b). FCS goals are to meet the specific needs of the children and their families, to promote optimal professional service delivery, and to ensure service systems are flexible, relevant and responsive to the family needs (Iversen et al 2003;Rodger et al 2012). Applying FCS improves mental well-being for parents, and increases participation and feelings of competency (King et al 2004b).…”

Section: Introductionmentioning

confidence: 99%

Evaluation of family‐centred services from parents of Chinese children with cerebral palsy with the Measure of Processes of Care

Wang

Petrini

Guan

2014

Child

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Parents’ and Service Providers’ Perceptions of the Family Goal Setting Tool: A Pilot Study

Abstract: Both parents' and service providers' were positive about the FGST. Insights into barriers to holistic goal setting and the clinical utility of the tool are described. Further refinement of the tool and trial in a range of early intervention contexts is required.

Cited by 24 publications

References 41 publications

Caregiver creation of participation‐focused care plans using Participation and Environment Measure Plus (PEM+), an electronic health tool for family‐centred care

Caregiver creation of participation‐focused care plans using Participation and Environment Measure Plus (PEM+), an electronic health tool for family‐centred care

Addressing the Challenges of Collaborative Goal Setting with Children and Their Families

Evaluation of family‐centred services from parents of Chinese children with cerebral palsy with the Measure of Processes of Care

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