Parenting with a physical disability and cognitive impairments: a scoping review of the needs expressed by parents

Pituch, Evelina; Bindiu, Anna Maria; Grondin, Myrian; Bottari, Carolina

doi:10.1080/09638288.2020.1851786

Cited by 8 publications

(5 citation statements)

References 80 publications

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“…Previous studies on parents with physical disabilities have noted the need for physical assistance or accessible accommodations in carrying out babycare activities such as bathing, sleeping, and breastfeeding which involve bending, lifting, and positioning (Pituch et al, 2020; Powell et al, 2019). Other studies have accounted for environments’ lack of accessibility (Kaiser et al, 2012), availability of adaptive equipment, or providers’ disability-related knowledge (National Council on Disability, 2012) which may all compromise parents’ participation in child care (Powell et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

“…Some research has highlighted the general difficulties associated with meal preparation or finding adapted babycare information due respectively to costs, scarce sources, or uninformed providers (Lipson & Rogers, 2000; Powell et al, 2019). In addition, playing has been previously described as one of the most challenging activities due to the physical demands it entails (Pituch et al, 2020). Indeed, in a recent survey, “more assistance from others” was the most frequent answer of mothers with physical disabilities to optimize physical care, comforting, playing, setting limits, and outings with young children (Jacob et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

“…Previous studies of parents with physical disabilities have highlighted the importance of EF, or more specifically planning ahead or “preplanning” as a key parental strategy to facilitate family functioning and avoid unforeseen events or emergencies in terms of scheduling, sharing chores, and outings in child-friendly accessible places (Bergeron et al, 2012; McKeever et al, 2003). However, a recent scoping review of the needs of parents with physical disabilities highlighted the limited knowledge surrounding the specific activity-related challenges that arise in child care, particularly in the presence of cognitive impairments (Pituch et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Babycare Assistance Needs of Parents With Physical Disabilities: An Observational Study

Pituch,

Cormier,

Gilbert

et al. 2023

OTJR: Occupational Therapy Journal of Research

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The assistance needs of parents with physical disabilities have been widely underexamined. This qualitative observational study described the assistance needs of parents with physical disabilities during the performance of in-home babycare activities. Thirty-one parents were assessed by trained occupational therapists using the Activities of Daily Living (ADL) Profile adapted for use with parents, an ecological performance-based assessment that considers executive functioning. Descriptive statistics of participants’ demographics and parents’ independence scores in babycare activities were calculated, and a qualitative content analysis of parents’ assistance needs was performed using video recordings. At least one-fourth of parents experienced difficulties in all babycare activities, either affecting activity performance or requiring verbal or physical assistance. Assistance needs were also observed in all activity-related operations of the ADL Profile. It is necessary to develop specialized clinical services to address assistance needs and promote safe and easy parenting in parents with physical disabilities.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Babycare Assistance Needs of Parents With Physical Disabilities: An Observational Study

Pituch,

Cormier,

Gilbert

et al. 2023

OTJR: Occupational Therapy Journal of Research

Self Cite

View full text Add to dashboard Cite

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“…Indeed, these two dimensions may be explored by interviewing parents (Alsaawi, 2014) about their perceived self‐efficacy or use of coping strategies for childcare. However, the subjective nature of interviews based on parents' self‐assessment (Ohan et al, 2000), which is necessarily influenced by their cognitive abilities and sense of self‐efficacy (Parton et al, 2018; Pituch, Bindiu, et al, 2022), alludes to questionable findings when used for making decisions about parenting ability without triangulating with other assessment methods.…”

Section: Discussionmentioning

confidence: 99%

Parenting with a physical disability: A scoping review of assessment methods

Pastor-Bédard

Pituch

Lamata

et al. 2022

Aus Occup Therapy J

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Introduction Daily childcare can be challenging for parents with a physical disability who have young children. Occupational therapists are valuable facilitators to family participation. However, occupational therapists have reported significant gaps in knowledge when documenting the parenting role of parents with a physical disability in occupational therapy practice. This study explored and described the parenting assessment methods used with parents with a physical disability in the scientific literature. Methods A scoping review was conducted, and search results were reviewed by two separate reviewers. The search strategy was applied to five databases (Embase, CINAHL, MEDLINE, HaPI, PsycInfo). Numerical and thematic analyses were conducted. Results Four thousand one hundred fifty articles were screened, and 73 relevant scientific articles were included. Seventy‐six assessment methods were identified, including 20 assessment instruments with few reported population‐specific psychometric studies. Most assessments were conducted via interviews (n = 45), followed by questionnaires (n = 27), and only six were performance based. Parenting practices and experience were the two dimensions most assessed, with little attention given to parenting responsibility. Mothers with multiple sclerosis, spinal cord injury, rheumatoid arthritis, and cerebral palsy were the most assessed. Conclusion Further research is needed to develop specific, multidimensional, and validated parenting assessments for all parents with a physical disability, including performance‐based assessments. Formal assessments should be conducted by professionals, including occupational therapists, who have the necessary training.

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“…However, women with disabilities remain largely unacknowledged, and their parenting rights may be compromised, even in Canada ( Gibson & Mykitiuk, 2012 ). Parents with neurological disorders may have heterogeneous needs throughout pregnancy, childbirth, and childrearing, amplified by variable disease onsets, progression, symptoms, access to care plans, accessibility needs, and support availability ( Barghouthi et al, 2020 ; Handberg et al, 2020 ; Pituch et al, 2020 ).…”

Section: Introductionmentioning

confidence: 99%

“What Services?”: Stakeholders’ Perceived Unmet Support Needs for Parents With Neurological Disorders

Pituch,

Ben Lagha,

Aunos

et al. 2023

Can J Occup Ther

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Background. Knowledge about the needs of parents with neurological disorders who take care of young children is limited. Purpose. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Method. Focus groups and individual interviews with parents ( n = 8), spouses ( n = 5), rehabilitation clinicians ( n = 8), community partners ( n = 7), and researchers ( n = 7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. Findings. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Conclusion. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families’ needs.

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Parenting with a physical disability and cognitive impairments: a scoping review of the needs expressed by parents

Cited by 8 publications

References 80 publications

Babycare Assistance Needs of Parents With Physical Disabilities: An Observational Study

Babycare Assistance Needs of Parents With Physical Disabilities: An Observational Study

Parenting with a physical disability: A scoping review of assessment methods

“What Services?”: Stakeholders’ Perceived Unmet Support Needs for Parents With Neurological Disorders

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