Parenting with a disability: exploring the satisfaction and efficacy of the PediaLift wheelchair accessible crib

Gitlow, Lynn; Frailey, Samantha; Garson, Neil; Simon, Rebecca; Smith, Maria W.; Winsor, Shannon; Yacovoni, Julie; Yuu, Christina

doi:10.1080/17483107.2020.1749894

Cited by 4 publications

(3 citation statements)

References 27 publications

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“…Two articles used interviews with reported psychometric properties, namely, the ADL Profile adapted for use with parents (Major et al, 2018) and the Canadian Occupational Performance Measure (COPM) (Gitlow et al, 2020). Both instruments are administered in a semi‐structured manner and consist of pre‐determined questions with rating scales used to document responses (Dutil et al, 2005; Law et al, 1990).…”

Section: Resultsmentioning

confidence: 99%

Parenting with a physical disability: A scoping review of assessment methods

Pastor-Bédard

Pituch

Lamata

et al. 2022

Aus Occup Therapy J

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Introduction Daily childcare can be challenging for parents with a physical disability who have young children. Occupational therapists are valuable facilitators to family participation. However, occupational therapists have reported significant gaps in knowledge when documenting the parenting role of parents with a physical disability in occupational therapy practice. This study explored and described the parenting assessment methods used with parents with a physical disability in the scientific literature. Methods A scoping review was conducted, and search results were reviewed by two separate reviewers. The search strategy was applied to five databases (Embase, CINAHL, MEDLINE, HaPI, PsycInfo). Numerical and thematic analyses were conducted. Results Four thousand one hundred fifty articles were screened, and 73 relevant scientific articles were included. Seventy‐six assessment methods were identified, including 20 assessment instruments with few reported population‐specific psychometric studies. Most assessments were conducted via interviews (n = 45), followed by questionnaires (n = 27), and only six were performance based. Parenting practices and experience were the two dimensions most assessed, with little attention given to parenting responsibility. Mothers with multiple sclerosis, spinal cord injury, rheumatoid arthritis, and cerebral palsy were the most assessed. Conclusion Further research is needed to develop specific, multidimensional, and validated parenting assessments for all parents with a physical disability, including performance‐based assessments. Formal assessments should be conducted by professionals, including occupational therapists, who have the necessary training.

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Section: Resultsmentioning

confidence: 99%

Parenting with a physical disability: A scoping review of assessment methods

Pastor-Bédard

Pituch

Lamata

et al. 2022

Aus Occup Therapy J

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“…In contrast, setting up for success occupations was described mostly in relation to parents who faced specific barriers. For example, parents who are wheelchair users may require specially modified or custom‐built baby‐carriers and cribs (Evans & Orpwood, 2007; Gitlow et al, 2020). Similarly, managing resources occupations were noted particularly in texts where parents lacked time, energy or finances due to having many children, work commitments, fatigue, physical limitations, or socio‐economic disadvantage (Dunbar & Roberts, 2006; Evans & Rodger, 2008; Griffin & Price, 2000; Visser et al, 2016).…”

Section: Resultsmentioning

confidence: 99%

The parenting occupations and purposes conceptual framework: A scoping review of ‘doing’ parenting

Lim

Honey

McGrath

2021

Aus Occup Therapy J

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Introduction: Parenting is a valued, common and challenging adult role.Many parents, including some living with disability or difficult social circumstances, experience barriers to fulfilling their parenting roles. Yet, occupational therapy involvement in parenting is rarely documented. Current understandings about 'doing' parenting lack cohesion and are dispersed in occupational therapy literature. This study aims to map and synthesise occupational therapy literature on 'doing' parenting to describe the state of the existing knowledge base, and develop a conceptual framework of parenting occupations as portrayed in occupational therapy literature. Methods: A scoping review was conducted. Medline, EMBASE, CINAHL, PsycINFO, Scopus, and Web of Science were searched on 28 October 2019 and updated on 18 February 2021. Journal articles and book chapters were screened for eligibility. Included texts' publication characteristics, methodological characteristics, and areas of focus were summarised. Interpretive content analysis was conducted. Results: From 5945 unique records, 105 texts were included. These discussed general parenting, parents with disabilities, and parenting in challenging social situations. Most texts focussed on mothers caring for young children in Western cultural contexts. The analysis culminated in the development of a conceptual framework: the Parenting Occupations and Purposes (POP) Framework. This comprises 10 interrelated areas of parenting occupations, which are performed for the purposes of addressing the child's basic, developmental and social needs. Parenting occupations were also found to be influenced by additional, underlying occupations that build parenting capacity -Continuous Parental Development (CPD) occupations. Conclusion: These findings provide an overview of current occupational therapy conceptualisations of parenting. Unlike most of the existing literature on parenting, the POP Framework is parent-centric rather than child-centric. More research on parenting occupations is needed, especially with more diverse representation (fathers, ages of children, parental disability and sociocultural background). Further research is required to examine the POP

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“…Therefore, the need for research on the development and effectiveness of assistive tools that are more ergonomic and functional and incorporate the latest technologies such as IoT systems has been raised. Along with this trend, the need for research that can elicit social support including financial support so that people with disabilities can practically use cutting-edge tools is also being emphasized [12]. The purpose of this qualitative study is to identify the needs related to the cradle of women with spinal cord injury, and to develop a smart cradle by reflecting the research results.…”

Section: Introductionmentioning

confidence: 99%

An Exploratory Study on Development Smart Cradle for Women with Spinal Cord Injury: Focus Group Interview

Kim

Yang

Kim

et al. 2022

Lecture Notes in Computer Science

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This study is preliminary research to develop a smart cradle for women with spinal cord injury. The purpose of this study was to investigate the needs for improvement of the product and important factors related to product development. A focus group interview was conducted with a total of 5 women with spinal cord injury who had experienced parenting after spinal cord injury. After recording all of the focus group interviews, researchers individually analyzed the content and integrated the results. Easy access cradle design for wheelchair users, attachment of wheelchair and cradle when moving at home, an open and lockable door one side of the cradle were required in cradle structures. Electronic height adjustment, bounce mode, children’s motion sensor, and function linked with a smartphone should be reflected in the development of the cradle. This result is meaningful in that it suggests points to be considered in the process of developing an assistive device by reflecting the desire to understand the grievance women with spinal cord injury when parenting.

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Parenting with a disability: exploring the satisfaction and efficacy of the PediaLift wheelchair accessible crib

Cited by 4 publications

References 27 publications

Parenting with a physical disability: A scoping review of assessment methods

Parenting with a physical disability: A scoping review of assessment methods

The parenting occupations and purposes conceptual framework: A scoping review of ‘doing’ parenting

An Exploratory Study on Development Smart Cradle for Women with Spinal Cord Injury: Focus Group Interview

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