Parenting Stress of Mothers Having Children with Thalassemia

Abstract

<jats:p>Background: Parents of children with thalassemia faces numerous challenges while coping various problems arises from the disease.&#x0D; Objective: The study was conductedto assess parenting stress of the mothers having children with thalassemia.&#x0D; Materials and Methods: This was a cross sectional study conducted amongmothers having children with thalassemia. A total of 253 mothers were included in this study conveniently.Data were collected by face to face interview by using a semi-structured questionnaire. Data analysiswere done by SPSS software. Level of stress was measured by using a modified parenting stress scale. The study was carried out during January to December 2016.&#x0D; Place and period of study: This study was conducted in International Centre for Diarrhoeal Disease Research, Bangladesh (icddr,b), Dhaka Shishu Hospital thalassemia center, Thalassemia foundation hospital and Bangabandhu Sheikh Mujib Medical University.&#x0D; Results: The study revealed that 25-34 years age group was more (83.4%). Majorityofthemothers was Muslim (97%), married (95%), educated up to SSC (64%), house wife (87%). Average monthly family income of the mothers was 26257 BDT and most of them were living in nuclear family (68%). Majority of the mothers had 2 children (82.2%), maximum was within 1-10 years age group (65.2%) and bearingchild within 15-24 years (64%). Most of the mothers had male children (63%), received antenatal checkup (84%) and normal delivery (70%) at hospital (58%). Complication during pregnancy was found in few mothers (15%) and included malnutrition with anemia. Majority of the children were diagnosed thalassemia within 2 years of age (79.8%) and physical complications included reduced hemoglobin level and physical activity. Few thalassemic children had splenectomy (13%), majority of the children’s condition was not improved (72%). Most of the respondents visited hospital once in a month (46%). Among all mothers, few had social support (28%) and greater part received financial support (84%). Majority of the mothers faced moderate level stress (52.2%). Mean of parenting stress was 40.16(±8.07). Minimum and maximum score of parenting stress was 22 and 59 respectively.&#x0D; Conclusion: The parents having children with Thalassemia are burdened and under stress because of the chronic nature of the illness. All the findings suggests that time decisions with proper psychological supports and appropriate managements system can overcome the long term sufferings of the patients and thus reduce the stress of parents.&#x0D; JOPSOM 2019; 38(2): 22-29</jats:p>

Caregivers burnout of their children with thalassemia

“…Regarding to occupation of the studied caregivers, the results of the current study revealed that, more than four fifths of studied caregivers were housewives. These results corresponded with study performed by Mohiuddinet et al [19], whose conduct study in Bangladesh (study sample equal 253 mothers having children with thalassemia.) and entitled as "Parenting Stress of Mothers Having Children with Thalassemia" who found that, 82% of studied mothers were housewives.…”

Depression, Anxiety, and Stress among Mothers of Children with thalassemia in Bangladesh

“…A study from Iran found that mothers of thalassemic children had signi cantly higher depression than mothers in the control group [12]. Regarding the mental health of the mothers with thalassemic children in Bangladesh, Mohiuddin et al (2020) studied only the parenting stress and found that the majority of the mothers faced moderate level of stress [13].…”