Parenting stress in families with very low birth weight preterm infants in early infancy

Howe, Tsu Hsin; Sheu, Ching-Fan; Wang, Tien‐Ni; Hsu, Yung Wen

doi:10.1016/j.ridd.2014.02.015

Cited by 87 publications

(68 citation statements)

References 27 publications

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“…Physical and social isolation are common themes expressed by parents of children with health needs including parents of children with other chronic illnesses, 123 autism 124 and mothers of extremely preterm babies. 125 Parents also talked about the stress associated with knowledge about their child's condition, in terms of feeling that they did not have enough knowledge, particularly in the early stages after hospital discharge, but also the burden of responsibility as the 'keeper' of the knowledge about their child's condition and the need to inform less knowledgeable professionals in primary care in particular. Over time parents became 'expert parents' in relation to the specifics of their child's condition and treatment, a phenomenon seen in parents of children with other chronic conditions, 126,127 but there was also some ambivalence about this role associated with the need to assume responsibility for informing HPs outside the tertiary centre.…”

Section: Discussionmentioning

confidence: 99%

Infant deaths in the UK community following successful cardiac surgery: building the evidence base for optimal surveillance, a mixed-methods study

Brown

Wray

Knowles

et al. 2016

Health Serv Deliv Res

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This report should be referenced as follows:Brown KL, Wray J, Knowles RL, Crowe S, Tregay J, Ridout D, et al. Infant deaths in the UK community following successful cardiac surgery: building the evidence base for optimal surveillance, a mixed-methods study . Health Serv Deliv Res 2016;4(19). Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: http://www.nets.nihr.ac.uk/programmes/hsdr This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its preceding programmes as project number 10/2002/29. The contractual start date was in October 2012. The final report began editorial review in April 2015 and was accepted for publication in September 2015. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Depart...

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Section: Discussionmentioning

confidence: 99%

Infant deaths in the UK community following successful cardiac surgery: building the evidence base for optimal surveillance, a mixed-methods study

Brown

Wray

Knowles

et al. 2016

Health Serv Deliv Res

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“…The familial environment is likely influenced by the prematurity as well. Taking care of a premature infant is a huge stress for parents [43], which, combined with potential health problems of the child, may strongly influence their attitude [44] including their feeding practices [1] in one way or another, depending on their personal experience and their own eating habits.…”

Section: Discussionmentioning

confidence: 99%

A Common Genetic Variant in the Insulin Receptor Gene Is Associated with Eating Difficulties at 2 Years of Age in a Cohort of Preterm Infants

Amarger¹,

Bouvagnet²,

Moyon³

et al. 2015

Lifestyle Genomics

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Background/Aims: Children born preterm are more likely than full-term infants to develop eating difficulties that can affect their growth. Although this behavior is certainly influenced by their fetal and postnatal history, a large individual variability exists that results from a complex interaction between genetic and environmental factors. We performed an original pilot study to identify common genetic variants associated with eating difficulties at 2 years of age in the POLYNUCA cohort of preterm infants. Methods: Eating behavior was assessed using a parental questionnaire in a cohort of 234 very preterm infants (including 38 pairs of twins). Eighty-two common single nucleotide polymorphisms (SNPs) were selected in a total of 40 candidate genes involved in the regulation of energy homeostasis and food intake. Results: Eating behavior was strongly correlated in monozygotic (r = 0.92, p = 0.001) but not dizygotic twins (r = 0.27, p = 0.14), suggesting a strong heritability of this trait. One SNP (rs11671975) in the insulin receptor (INSR) gene was significantly associated with eating behavior. This effect was maintained after adjustment for birth weight Z score and maternal education level, two factors that are associated with eating difficulties at 2 years of age. Conclusion: The INSR gene is potentially associated with eating difficulties in preterm infants.

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“…En prematur fødsel skaper brått en ny og uforutsigbar tilvaerelse som for mange kan oppleves utrygt. Våre funn som viser foreldrenes beskrivelser av hvordan livet ble snudd på hodet samsvarer med mange tidligere studier (Kersting et al, 2004;Elklit et al, 2008;Esbjørn, Hansen, Munck, & Greisen, 2008;Fasting, 2008;Gambina et al, 2011;Meijssen et al, 2011;Howe, Sheu, Wang, & Hsu, 2014). Bearbeidelse av tiden etter fødselen og forberedelser til sin nye tilvaerelse etter hjemreisen beskrev foreldrene som en krevende prosess som satte mestringsstrategiene deres på prøve.…”

Section: Diskusjonunclassified

“…Bearbeidelse av tiden etter fødselen og forberedelser til sin nye tilvaerelse etter hjemreisen beskrev foreldrene som en krevende prosess som satte mestringsstrategiene deres på prøve. Dette samsvarer også med annen forskning som viser at en prematur fødsel kan fremkalle symptomer forenelig med angst, depresjon og posttraumatisk stress syndrom (PTSD) hos mor (Kersting et al, 2004;Elklit et al, 2008;Esbjørn et al, 2008;Fasting, 2008;Gambina et al, 2011;Meijssen et al, 2011;Howe et al, 2014).…”

Section: Diskusjonunclassified

“…Noen av barna hadde problemer med å forholde seg til andre voksne og barn, og var derfor krevende å ha med i sosiale sammenhenger. Uansett årsak ble sosialisering utenfor hjemmet en utfordring for mange av mødrene, hvilket stemmer godt overens med annen forskning som viser at foreldre med premature barn opplever økt stress i foreldrerollen som blant annet fører til økt sosial isolering (Esbjørn et al, 2008;Howe et al, 2014). Samtidig uttrykte samtlige mødre at samvaer med personer som viste forståelse for utfordringene de møtte i hverdagen opplevdes viktig og verdifullt for dem.…”

Section: Meningsfullhetunclassified

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”En ny hverdag”. Mødres opplevelse av hverdagen med et prematurt barn, og støtten ved en ressurshelsestasjon

Sørby

Fegran

2015

NorTidHelse

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The study explores mothers’ of premature infants experience of how health centers especially adapted for families with premature infants can help them to cope with everyday life after discharge from a neonatal intensive care unit. Background: Premature children are at higher risk for physical and mental health problems, which makes parenting demanding. The transition between hospital and home is a challenging period where parents may need extra support to cope with everyday life. Method: Nine mothers of premature infants receiving follow-up care at a health center especially adapted for families with premature infants were interviewed. Data were analyzed by Kvale and Brinkmann’s guidelines for text analysis. Findings: The study revealed that mothers of premature infants need to adapt to a daily life with both challenges and joys. Mothers’ sense of coping in everyday life is affected by the public health nurse’s knowledge of and experience with premature infants. Conclusion: Mothers of premature infants experience a challenging daily life after discharge from neonatal intensive care unit. A health center especially adapted for families with premature infants can help mothers cope with everyday life after discharge through availability, flexibility, expertise, facilitating a social network and focusing on mothers’ own experience of their daily life.

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Parenting stress in families with very low birth weight preterm infants in early infancy

Cited by 87 publications

References 27 publications

Infant deaths in the UK community following successful cardiac surgery: building the evidence base for optimal surveillance, a mixed-methods study

Infant deaths in the UK community following successful cardiac surgery: building the evidence base for optimal surveillance, a mixed-methods study

A Common Genetic Variant in the Insulin Receptor Gene Is Associated with Eating Difficulties at 2 Years of Age in a Cohort of Preterm Infants

”En ny hverdag”. Mødres opplevelse av hverdagen med et prematurt barn, og støtten ved en ressurshelsestasjon

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