Parenting interventions in tic disorders: an exploration of parents' perspectives

Evans, Gemma; Wittkowski, Anja; Butler, Hannah; Hedderly, Tammy; Bunton, Penny

doi:10.1111/cch.12212

Cited by 7 publications

(6 citation statements)

References 42 publications

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“…With the help of dialogue, family members get a possibility to process and share their experiences combined with the psychoeducation and guidance in practical issues from the professionals. This study supports Evans et al [41] ndings demonstrating parents need for space to discuss their worries and re ect thoughts and feelings. This needs to be considered as an important factor in family interventions.…”

Section: Discussionsupporting

confidence: 90%

“…NDD can have different impacts on family members, and open dialogue can invite family members to a mutual learning process about the family dynamic and communication inside the family. It is important to teach parents effecting parenting strategies, but many parents simply need the space to discuss worries, thoughts and feelings [40,41].…”

Section: Procedures and Interventionmentioning

confidence: 99%

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Parental Experiences Before and After Dialogical Family Guidance in Families With a Child With Neurodevelopmental Disorders

Cavonius-Rintahaka

Roos

Gillberg

et al. 2021

Preprint

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Background: Previous studies have highlighted the need to offer targeted effective interventions to strengthen the wellbeing of all family members in families with children with neurodevelopmental disorders (NDD). Interventions for this target group requires development and research. The purpose of this study was to test a new family intervention (Dialogical Family Guidance / DFG).Method: Fifty families of children with NDD took part in this study. Families were randomized into two groups. Families in Intervention group I were delivered DFG immediately, and families in Intervention group II were delivered DFG after three months. Family functionality, health and support (FAFHES) and DFG intervention parent questionnaires were used to collect data at baseline, and after three and six months. Thirty-four families completed the whole protocol.Results: Intervention group I experienced better family health and family support after DFG compared to baseline, and the experience of increased support remained at the three month follow-up. Intervention group II also experienced better family support after three months compared to baseline, although they were still waiting for DFG to initiate. Intervention group II continued to increase the experience of support throughout DFG. The positive changes were statistically significant concerning the experience of social support.Managing as a parent in daily life and the relationship between parents were associated with family functionality and family health. Most parents` reported that DFG had helped them manage better with their child with NDD, and that they would recommend DFG to other families.Conclusion: The study findings suggest that the DFG intervention may strengthen parent experiences of family support. Managing as a parent in daily life and the relationship between parents was associated with family functionality and family health. DFG parent questionnaire inform that practical guidance, psychoeducation, dialogue with the staff and positive feedback for own parenthood are strengthening factors. Delivering DFG as a family intervention implemented by healthcare staff can be recommended as an additional type of support for families with a child with NDD.Trial registration: ClinicalTrials.gov NCT04892992 (retrospective registered)

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Section: Discussionsupporting

confidence: 90%

Section: Procedures and Interventionmentioning

confidence: 99%

Parental Experiences Before and After Dialogical Family Guidance in Families With a Child With Neurodevelopmental Disorders

Cavonius-Rintahaka

Roos

Gillberg

et al. 2021

Preprint

View full text Add to dashboard Cite

show abstract

“…These conclusions are also recommended in a recent study in GTS (Evans et al, 2015) indicating a perceived clinical need for parenting interventions and provide guidance to further develop and implement such interventions. Furthermore, all GTS parents seem not to be at risk of developing mood disorders or perceiving their child disorder as threatening.…”

Section: Discussionmentioning

confidence: 93%

“…There has been growing evidence demonstrating that as a complex chronic condition, the quality of life in young people with GTS is reduced when compared with healthy control populations (Cavanna, David, Orth, & Robertson, 2012). It also appears that GTS can have a significant effect on relatives of the patients, especially parents, as raising a child with a developmental disorder is considered a stressful experience (Evans, Wittkowski, Butler, Hedderly, & Bunton, 2015;Lee, Chen, Wang, & Chen, 2007). Several studies have been conducted on parental stress as well as adjustment and coping strategies in families having a child with special needs such as a chronic illness or psychiatric disorders (Crnic & Greenberg, 1990;Hanson & Hanline, 1990;Willingham-Storr, 2014).…”

mentioning

confidence: 99%

Impact of Perceived Stress, Anxiety-Depression and Social Support on Coping Strategies of Parents Having A Child With Gilles de la Tourette Syndrome

Goussé

Czernecki

Denis

et al. 2016

Archives of Psychiatric Nursing

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“…The reflective dialogue approach used in DFG enables family members and professionals to initiate "a mutual learning process," in line with the concepts presented by Seikkula and Trimble (2005). Of particular note is that while it is important to teach parents effective parenting strategies, many parents simply need space to discuss their worries, thoughts, and feelings (Evans et al, 2015;Raitio et al, 2015).…”

mentioning

confidence: 99%

Randomized Clinical Trial Comparing Dialogical Family Guidance with Ordinary Clinical Treatment for Families with a Child with Neurodevelopmental Disorders

Cavonius-Rintahaka

Roos

Gillberg

et al. 2021

Adv Neurodev Disord

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Objectives Previous studies have highlighted the need to offer targeted interventions to strengthen the wellbeing of family members in families with children with neurodevelopmental disorders (NDD). Interventions for this target group require research and development. The purpose of this study was to test a new family intervention: Dialogical Family Guidance (DFG). Methods Families of children with NDD were randomized into an intervention group that was delivered DFG and a comparison group provided with ordinary clinical treatment. The Family Functioning, Family Health and Social Support (FAFHES) and the DFG instrument were used to collect data at baseline and after 3 months. Repeated measure analysis of variance (ANOVA) was used as an analytical strategy. Results There was a significant within-subjects effect of time on family health and social support, indicating that family health and social support increased in both groups over time. There was also a significant between-subjects effect of group and interaction between time and group on social support, indicating that social support increased more in the intervention group than in the control group. Managing in daily life and the relationship between parents were associated with family functioning and family health. Conclusion DFG can strengthen parental experiences of social support. Managing in daily life, relationship between parents, practical guidance, psychoeducation, dialogue, and receiving positive feedback on parenting were strengthening factors during DFG. However, the results of this study must be considered as only preliminary, as they relate only to parental perceptions of the intervention effects. Trial registration ClinicalTrials.gov NCT04892992 (retrospectively registered).

show abstract

Parenting interventions in tic disorders: an exploration of parents' perspectives

Abstract: Results indicate a perceived clinical need for parenting interventions and provide guidance to further develop and implement such interventions.

Cited by 7 publications

References 42 publications

Parental Experiences Before and After Dialogical Family Guidance in Families With a Child With Neurodevelopmental Disorders

Parental Experiences Before and After Dialogical Family Guidance in Families With a Child With Neurodevelopmental Disorders

Impact of Perceived Stress, Anxiety-Depression and Social Support on Coping Strategies of Parents Having A Child With Gilles de la Tourette Syndrome

Randomized Clinical Trial Comparing Dialogical Family Guidance with Ordinary Clinical Treatment for Families with a Child with Neurodevelopmental Disorders

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