Parenting Experience of Parents with Chronically Ill Children

Abstract

Purpose: The purpose of the study was to describe the parenting experience of parents of children with chronic illness in Korea. Methods: A conventional contents analysis was used for the study. Twelve mothers of chronically ill children participated in the study. Qualitative data were analyzed using the Morse and Field method. Results: Four categories, 10 subcategories and 42 codes emerged from the data on the parenting experience of parents of children with chronic illness. The four categories were 'Sacrifice and full-engagement within self-mortification' , 'Re-normalization of collapsed daily life' , 'Paving a new way for independence' and 'Growing together of myself and the family'. Conclusion: Parents of children with chronic illness experienced not only negative aspects such as a confusion but also re-normalization and growing together. Based on the results, health professionals need to develop effective nursing interventions toward positive parenting for these parents and their children with chronic illnesses. This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/3.0/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.

Risk and protective factors for a salutogenic sense of health in adolescents with Moyamoya disease

“…In addition, we found that modification of the family's life pattern, the family's own know‐how and renormalization of life by accepting symptom management behaviour as a component of daily life were protective factors for the salutogenic sense of health in adolescents with Moyamoya disease. These findings are similar to those of a previous study by Park et al (2015), who explored the experiences of parents raising children with chronic diseases. In Park et al's (2015) study, parents gradually adapted to the child's disease process, naturally accepted the disease management as a daily routine and established a new routine by considering the disease.…”

“…These findings are similar to those of a previous study by Park et al (2015), who explored the experiences of parents raising children with chronic diseases. In Park et al's (2015) study, parents gradually adapted to the child's disease process, naturally accepted the disease management as a daily routine and established a new routine by considering the disease. Moreover, Knafl et al (2010) emphasized the role of health‐care providers in supporting the normalization of the family by balancing disease management and daily family life.…”

Parenting Changes of Mothers of a Child with Cancer

“…Parents of children with chronic illness in South Korea tend to devote themselves and sacrifice other aspects of their life to focus only on the child’s treatment. Consequently, their parenting practices change as their lives renormalize (Park, Lee, Oh, Im, & Cho, 2015). Particularly in South Korea, where rates of pediatric cancer survival are high (Korea Central Cancer Registry, National Cancer Center, 2017), how mothers choose to parent their child with cancer can be unique.…”

Depression and Fear about Maturation in Girls with Precocious Puberty and Depression and Anxiety in Their Mothers

“…것으로 알려졌다 (Lim & Kim, 2013;Park et al, 2015;Chei et al, 2000). 서는 성 성숙과 신체상 및 자아 존중감 성 (Park et al, 2006), 숙 정도에 따른 신체상 성숙불안 등의 , (Park & Kim, 2016) 연구가 시도 되었으며 성조숙증 여아의 우울과 성숙불안에 대 한 연구는 부족한 실정이다.…”