Parenting children with cancer: Impact assessment on quality of life using World Health Organization quality of life tool-BREF tool

Rashi, Rashi; Barman, Shibsankar; Pal, Sujay; Ganguly, Shanka; Biswas, Sumitra

doi:10.5455/ijmsph.2018.0101619012018

Cited by 2 publications

(5 citation statements)

References 7 publications

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“…Caregivers of children with cancer presented with burden, mostly isolation, disappointment, and compromised aspects of QOL. Te scores of QOL of caregivers of children with cancer were lower than the control group in the eight domains: physical functioning, role physical, bodily pain, general health perception, vitality, social role functioning, emotional role functioning, and mental health [13]. A systematic review on impact of a cancer diagnosis on family caregivers revealed that there was negative impact on caregivers who experienced high distress, diminished quality of life (QOL) and reported moderate to high fear of cancer recurrence [14].…”

Section: Introductionmentioning

confidence: 66%

“…Te results also found that diference in QOL values was signifcant for lower socioeconomic class, longer duration of treatment (1-3 years of treatment), and high cost of treatment amounting [24]. On the other hand, gender, educational qualifcation, socioeconomic status, and place of residence had shown no signifcant diference on QOL [13].…”

Section: Discussionmentioning

confidence: 98%

“…Similar results found that nearly 50% of their study population experienced low QOL, and this low score was signifcantly associated with level of parent's education, lower socioeconomic status, prolonged treatment duration, and increasing cost of treatment [23,24]. A comparison study performed to assess the QOL of parents of children diagnosed with cancer compared to parents of children with minor ailments found that the QOL of parents of childhood cancer was signifcantly impaired in psychological domain, social relationship domain, and environmental domain [13].…”

Section: Discussionmentioning

confidence: 99%

“…(1) Sociodemographic and health-related survey that is developed by the researcher after literature review [12,13,16]: Tis part includes patients and parents demographic characteristics. (2) Impact on the family scale which is a 24-item questionnaire answered on a 4-point Likert-type scale (strongly agree-strongly disagree): Tis scale was designed to measure the family impact of chronic medical illnesses in four dimensions [17,18].…”

Section: Data Collectionmentioning

confidence: 99%

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Impact of Childhood Cancer on Family Functioning and Family Quality of Life in the Western Region of Saudi Arabia

Omer

2024

Nursing Research and Practice

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Background. Childhood cancer affects families and friends and causes lifestyle changes that become overwhelming for them. Childhood cancer may cause decreased physical, emotional, and social health-related quality of life (QOL). Childhood cancer may cause strain on the financial status of the family and shape their coping strategy to the disease. The extent of the impact of childhood cancer on families is associated with several demographic characteristics of the family such as diagnosis, phase of treatment, and parent’s educational level, employment, and marital status of the parents. Objectives. The objective of this study was to explore the impact of childhood cancer on family functioning and family quality of life (QOL) in the Western Region of Saudi Arabia. Methods. This study was a quantitative, randomized, cross-sectional study. 187 participants were randomly selected from the population of parents whose children have cancer and treated at Princess Noorah Oncology Center in King Abdulaziz Medical City, Jeddah. A survey was used to collect data for this study. Healthcare and social systems may have to consider the impact of childhood cancer in the care plans of the patients. Result. Leukemia represents the highest disease prevalence followed by brain tumor. The highest score of the impact on the family survey was familial social concerns domains followed by financial burden with mean scores of 3.59 (98.8%) and 3.56 (98.0%), respectively. Then, mastery domain mean score is 3.43 (85.8%) and finally personal strain with mean score of 3.21 (980.3%). The QOL of the family results indicated that the highest was physical/material well-being with mean score of 3.84 (76.8%) and family interaction with mean score of 3.82 (76.4%), followed by emotional well-being with mean score of 3.54 (70.8%) and parenting with mean score of 3.53 (70.6.%). Significant differences were found between the overall scales of QOL and the scale of impact on the family and some demographic characteristics of children and their parents. Conclusions. Childhood cancer has a substantial effect on family functioning and the family’s QOL. In addition, both were significantly associated with some demographic characteristics of the child and his parents.

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Section: Introductionmentioning

confidence: 66%

Section: Discussionmentioning

confidence: 98%

Section: Discussionmentioning

confidence: 99%

Section: Data Collectionmentioning

confidence: 99%

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Impact of Childhood Cancer on Family Functioning and Family Quality of Life in the Western Region of Saudi Arabia

Omer

2024

Nursing Research and Practice

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“…Moreover, younger parents, lacking experience in caring for children with chronic diseases such as ALL, required more time to adapt, leading to challenges in the psychological domain [22]. Studies by Rashi et al [23] reported a good quality of life in the physical domain. However, the quality of the physical domain diminishes with a duration exceeding five years, representing a prolonged burden in caring for cancer patients [24].…”

Section: Resultsmentioning

confidence: 99%

Factors Influencing Quality of Life of Parents with Children Affected by Acute Lymphoblastic Leukemia: A Study at Childhood Cancer International Foundation, Jakarta

Trisya,

Tjhay,

Hasan

et al. 2023

Indonesian Journal of Cancer

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Background: The diagnosis and management of chronic diseases, such as Acute Lymphoblastic Leukemia (ALL), are significant for the quality of life of parents. In addition, several factors contribute to the quality of life of parents whose children battle ALL, including characteristics, duration of childcare, mental health, and family functioning. Therefore, this study aims to identify factors influencing the quality of life of parents whose children have ALL at the Childhood Cancer International Foundation in Jakarta. Methods: This cross-sectional study recruited 109 parents at the Childhood Cancer International Foundation as respondents. The assessment tools used included a Characteristics questionnaire, Self-Rating Questionnaire-20, APGAR Questionnaire, and WHOQOL-BREF questionnaire. Additionally, collected data were subjected to univariate, bivariate, and multivariate analysis. Results: Among the 109 respondents with an average age of 38 years and mean childcare duration of 28 months, 66.1% were females, 100% believed in God, 73.4% had partners, 47.7% possessed higher education, 83.5% earned below the regional minimum wage, 66.1% experienced mental health problems, and 11.9% had family dysfunction. Bivariate analysis showed a significant relationship between gender, mental health, and quality of life (p<0.05). Multivariate analysis showed that marital status, education, economic status, and family functioning significantly correlated with quality of life. Conclusions: In conclusion, gender, marital status, education, economic status, mental health, and family functioning were found to exert a significant influence on the quality of life of parents raising children with ALL.

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Parenting children with cancer: Impact assessment on quality of life using World Health Organization quality of life tool-BREF tool

Cited by 2 publications

References 7 publications

Impact of Childhood Cancer on Family Functioning and Family Quality of Life in the Western Region of Saudi Arabia

Impact of Childhood Cancer on Family Functioning and Family Quality of Life in the Western Region of Saudi Arabia

Factors Influencing Quality of Life of Parents with Children Affected by Acute Lymphoblastic Leukemia: A Study at Childhood Cancer International Foundation, Jakarta

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