Parenting Challenges in Families of Children with Autism: A Pilot Study

Hall, Heather; Graff, J. Carolyn

doi:10.3109/01460862.2010.528644

Cited by 46 publications

(49 citation statements)

References 29 publications

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“… 35 , 43 In addition to these financial strains, inaccessibility or insufficiency of financial support was also reported. 36 , 50 , 51 Indeed, these financial problems increased the level of stress and worry in parents, with several paying for treatments out-of-pocket or taking multiple loans. 39 , 43 One parent in a study went to the extent of mortgaging the house to pay for treatments.…”

Section: Resultsmentioning

confidence: 99%

“…Parents described accepting the diagnosis and their child for who they were and focusing on what could be done. 15 , 32 , 49 , 55 – 57 The terms “doing all you can” 55 and “never give up” 50 depicted the pragmatism and perseverance parents had as they channeled all their strength and time to improve the child’s condition. 57 – 59 …”

Section: Resultsmentioning

confidence: 99%

“…Parents strived to improve their knowledge on autism by reading books, conversing with other parents, and surfing the Internet to obtain information. 36 , 50 , 55 , 57 , 58 Parents were also more proactive when it came to the child’s treatment by sourcing for treatment and would try anything that would help their child. 32 , 55 , 61 , 62 I want my child to improve.…”

Section: Resultsmentioning

confidence: 99%

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A meta-synthesis on parenting a child with autism

Ooi¹,

Ong²,

Jacob³

et al. 2016

NDT

102

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BackgroundThe lifelong nature of autism in a child has deep implications on parents as they are faced with a range of challenges and emotional consequences in raising the child. The aim of this meta-synthesis was to explore the perspectives of parents in raising a child with autism in the childhood period to gain an insight of the adaptations and beliefs of parents toward autism, their family and social experiences, as well as their perceptions toward health and educational services.MethodsA systematic search of six databases (PubMed, EMBASE, PsychInfo, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, and Database of Abstracts of Reviews of Effects [DARE]) was conducted from inception up to September 30, 2014. Full-text English articles of qualitative studies describing parents’ perceptions relating to the care of children younger than 12 years of age and diagnosed with a sole disorder of autism were included.ResultsA total of 50 eligible articles were appraised and analyzed, identifying four core themes encompassing all thoughts, emotions, and experiences commonly expressed by parents: 1) The Parent, 2) Impact on the Family, 3) Social Impact, and 4) Health and Educational Services. Findings revealed that parents who have a child with autism experienced multiple challenges in different aspects of care, impacting on parents’ stress and adaptation.ConclusionHealth care provision should be family centered, addressing and supporting the needs of the whole family and not just the affected child, to ensure the family’s well-being and quality of life in the face of a diagnosis of autism.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

A meta-synthesis on parenting a child with autism

Ooi¹,

Ong²,

Jacob³

et al. 2016

NDT

102

View full text Add to dashboard Cite

show abstract

“…Information technology has increasingly become part of daily life for many people, and newer studies show that the Internet is an important source of information for parents who are facing health issues or other special circumstances with regard to their children (Blackburn & Read, 2005;Hall & Graff, 2010;Parette, Meadan, Doubet, & Hess, 2010;Skinner & Schaffer, 2006;Zaidman-Zait & Jamieson, 2007).…”

Section: Implication For Practicementioning

confidence: 99%

An Integrated Literature Review of the Knowledge Needs of Parents With Children With Special Health Care Needs and of Instruments to Assess These Needs

Adler

Salanterä

Leino‐Kilpi

et al. 2015

Infants &Amp; Young Children

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The purpose of this integrative (including both quantitative and qualitative studies) literature review was to identify knowledge needs of parents of a child with special health care needs and to evaluate instruments to assess these needs. The content analysis of 48 publications revealed a vast amount of knowledge needs that were categorized into 9 categories: (a) knowledge about the condition or illness, (b) support, (c) treatment, (d) everyday care of the child, (f) the future, (g) how to explain the illness to others, (h) equipment, (i) organizational issues, and (j) the effect of the illness on the family. Several instruments to assess these needs are described. There is evidence that parents have various knowledge needs at different times of their children's life and it is important that these needs are assessed systematically. Professionals have many possibilities to provide information and education as it is needed by these parents. Key words: children with special health care needs, family-centered care, knowledge/information needs, needs assessment C HILDREN with special health care needs are defined by the Department

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“…The coping strategies parents used to deal with their child's autism included support from family and friends, joining support groups, connecting with other parents of children with autism, the use of service providers, advocacy and support groups and religion (DeMeyer, 1979;Gray, 2003;Hall & Graff, 2010). Studies also found significant associations between greater use of active-avoidance coping strategies with higher levels of depression, stress, and parenting stress (Paynter et al, 2013).…”

Section: Introductionmentioning

confidence: 89%