Parenting a child with a chronic illness during a pandemic

Gallegos, Cara; Aldridge, Michael D.; Connor, Kelley; Zuba, Lauren

doi:10.1016/j.pedn.2022.05.009

Cited by 9 publications

(4 citation statements)

References 28 publications

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“…Caregivers of CSHCN were known to experience a greater burden of psychological and emotional issues as compared with caregivers of children without SHCN. 4,5,20 At the pandemic's outset, declines in well-being among caregivers of CSHCN were widely anticipated, 21,22 and in early studies, caregivers of CSHCN reported increased anxiety, stress, and depression due to taking care of CSHCN without adequate support. 6,23 However, while accumulating evidence supports a decline in mental health among parents of CSHCN during the pandemic, 6,23,24 other studies identified similar declines in mental health among all parents.…”

Section: Discussionmentioning

confidence: 99%

Children’s Special Health Care Needs and Caregivers’ Well-Being During the COVID-19 Pandemic

Pasli,

Tumin

2023

J Am Board Fam Med

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Background: Caregivers of children with special health care needs (SHCN) report worse self-rated health when compared with caregivers of children without SHCN and have experienced significant stress during the COVID-19 pandemic. We sought to determine whether COVID-19 pandemic-era declines in well-being among caregivers of children with SHCN were steeper than among caregivers of children without SHCN.Methods: We used 2020 to 2021 (pandemic-era, n ¼ 89,560) and 2018 to 2019 (pre-pandemic, n ¼ 57,927) data from the National Survey of Children's Health. Caregiver-reported physical and mental health outcomes were analyzed using multivariable ordinal logistic regression.Results: The pandemic era was associated with 26% higher odds of reporting worse mental health among caregivers of children with SHCN (95% confidence interval [CI]: 116%, 138%), and 20% higher odds of reporting worse mental health among caregivers of children without SHCN (95% CI: 115%, 126%). The magnitudes of these changes were not significantly different from one another (P ¼ .341).Conclusions: Although caregivers of children with SHCN faced significant burdens and increased stress during the pandemic, decline in self-rated mental health among this group was similar to the trend seen among caregivers of children without SHCN.

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Section: Discussionmentioning

confidence: 99%

Children’s Special Health Care Needs and Caregivers’ Well-Being During the COVID-19 Pandemic

Pasli,

Tumin

2023

J Am Board Fam Med

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“…Given that the survey was conducted during the COVID-19 pandemic, this distinct social context may have contributed to these dissimilarities. A recent study 23 has shown that COVID-19 aggravates the parenting stress of children with chronic diseases. As one of the chronic diseases of children, parenting stress in parents of children with NS will also be affected by external stressors or life events (such as COVID-19).…”

Section: Discussionmentioning

confidence: 99%

Factors Associated With Parenting Stress in Parents of Children With Nephrotic Syndrome: A Cross-Sectional Study

Shen

Fowler

et al. 2022

Clin Pediatr (Phila)

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Limited empirical studies were identified to quantify parenting stress in parents of children with nephrotic syndrome (NS). This cross-sectional study aimed to address this gap by examining the prevalence and factors associated with parenting stress. Two hundred two Chinese parents of children with NS were investigated by using the Parenting Stress Index–Short Form (PSI-SF), the Parenting Sense of Competence Scale (PSCS), the Social Support Rating Scale (SSRS), and a demographic questionnaire. The results showed that parents of children with NS experienced higher parenting stress, and 67.8% of participants reported clinical levels of parenting stress. Fathers, parents with a primary education background, low social support and parenting sense of competence, and children with a prolonged treatment childhood NS reported higher parenting stress. Developing corresponding improvement interventions targeting parenting sense of competence, or providing extra disease-related support and education for parents might lessen parenting stress.

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Section: Marketing Realities In the Physical Environmentmentioning

confidence: 99%

“…Health conditions may range from short-term illnesses to pandemics (Gallegos, Aldridge, Connor, & Zuba, 2022). Short-term illnesses may be restricted to specific geographic locations whereas pandemics may spread across the globe (Gallegos et al, 2022). Focus on health conditions may force changes not only in the operations of pharmaceuticals, biotechnology, and health management companies but also companies that are not directly related to health care (Paik, 2022).…”

Section: Marketing Realities In the Physical Environmentmentioning

confidence: 99%

The New Marketing Realities and the Major Marketing Forces

Mandal

2023

Journal of Business Ecosystems

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Companies and businesses operate in a competitive environment. Market forces are shaping new marketing realities for companies. The objective of the study is to conduct an analysis of the various aspects of the market forces viz. technology, globalization, physical environment, and social responsibility, and how these forces are shaping the new marketing realities. The methodology adopted is a conceptual analysis of the various aspects of the market forces and the new marketing realities. Companies adopt initiatives and strategies to convert the challenges into opportunities. Academicians may analyze and suggest effective ways to understand the market forces and the new marketing realities. Companies and practicing managers may analyze how the market forces are shaping the marketing realities and the marketing landscape. They should adopt strategies and initiatives which help them to achieve business excellence in the long run.

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Parenting a child with a chronic illness during a pandemic

Cited by 9 publications

References 28 publications

Children’s Special Health Care Needs and Caregivers’ Well-Being During the COVID-19 Pandemic

Children’s Special Health Care Needs and Caregivers’ Well-Being During the COVID-19 Pandemic

Factors Associated With Parenting Stress in Parents of Children With Nephrotic Syndrome: A Cross-Sectional Study

The New Marketing Realities and the Major Marketing Forces

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