Parentification of Adult Siblings of Individuals with Autism Spectrum Disorder

Tomeny, Theodore S.; Barry, Tammy D.; Fair, Elizabeth C.; Riley, Robyn

doi:10.1007/s10826-016-0627-y

Cited by 42 publications

(22 citation statements)

References 49 publications

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“…Unlike our expectations, no significant differences were found among the three age groups regarding behaviors derived from attachment, caregiving and affiliative systems. This finding is in line with a retrospective study carried out by Tomeny et al (2017). The authors spelled out the role played by TD adults in care for their siblings with ASD from childhood to adulthood.…”

Section: Discussionsupporting

confidence: 85%

“…It is important to shed light on the nature of attention and care behaviors engaged by TD siblings towards their siblings with ASD. Recently, Tomeny et al (2017) pointed out how TD siblings may be at increased risk for parentification, a phenomenon in which tasks typically reserved for parents or adults are completed by daughters and sons (Hooper et al 2011).…”

Section: Limitations and Implications Of The Studymentioning

confidence: 99%

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Sibling Relationships and Family Functioning in Siblings of Early Adolescents, Adolescents and Young Adults with Autism Spectrum Disorder

et al. 2017

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The purpose of the study was to investigate how family functioning (defined as the ability that family\ud members hold to manage stressful events, and intimate and social relationships), the degree to which family members feel happy and fulfilled with each other (called family satisfaction), and the demographical characteristics of siblings (age and gender) impacted on sibling relationships.\ud The Circumplex Model of Marital and Family Systems and Behavioral Systems constituted the theoretical frameworks that guided our study. Eighty-six typically developing adolescents and young adults having a sister or a brother with autism spectrum disorder were enrolled. Results indicated that the youngest age group (early adolescents) reported to engage more frequently in negative behaviors with their siblings with ASD than the two older age groups (middle adolescents and young adults). No significant differences were found among the three age groups regarding behaviors derived from attachment, caregiving and affiliative systems. Family satisfaction and age significantly predicted behaviors during sibling interactions. Suggestions on prevention and intervention programs were discussed in order to prevent parentification among typically developing siblings and decrease episodes of quarrels and overt conflicts between brothers and sisters with and without ASD

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Section: Discussionsupporting

confidence: 85%

Section: Limitations and Implications Of The Studymentioning

confidence: 99%

Sibling Relationships and Family Functioning in Siblings of Early Adolescents, Adolescents and Young Adults with Autism Spectrum Disorder

et al. 2017

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“…In fact, regardless of age, they can play a practical and emotional role in the care process together with their parents. This can foster caretaking practices and a sense of responsibility in the TD brothers as well (Tomeny et al, 2017).…”

Section: Discussionmentioning

confidence: 99%

“…They can help parents emotionally and with practical actions, helping them, for example, to contain the crises of their siblings with ASD. For example, TD siblings can try to avoid arguments and stress so as not to make his/her brother/sister with ASD agitated and to satisfy his/her wants and needs, favoring and privileging his/her state of well‐being (Tomeny, Barry, Fair, & Riley, 2017).…”

Section: Introductionmentioning

confidence: 99%

Conflicting and harmonious sibling relationships of children and adolescent siblings of children with autism spectrum disorder

Guidotti

Musetti

Barbieri

et al. 2020

Child

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Background The presence of a child with autism spectrum disorder (ASD) could have a strong psychological and emotional impact on typical development (TD) siblings, with different ways of adjustment and perception of fraternal relationships. In this study, we aimed to investigate the experience of the TD siblings of children with ASD, combining both quantitative and qualitative methodologies. Method An explanatory sequential design was employed. Forty‐four TD siblings of children with ASD, aged 6 to 17 years old, participated in the study. Each participant completed the Sibling Relationship Inventory that investigated warmth, rivalry and conflict in sibling relationships. Moreover, in order to thoroughly evaluate the participants' perception of their sibling relationship, they were asked to draw themselves with their sibling with ASD in a condition of harmony and conflict. The drawings were collected and coded using the well‐validated Pictorial Assessment of Interpersonal Relationships. Quantitative and qualitative analyses were conducted. Results In general, TD siblings showed affection for their siblings with ASD. However, males showed more conflict than females. Quantitative analyses of the drawings showed high levels of similarity between the siblings, despite the disability. In drawings, greater cohesion emerged in conditions of harmony and greater distancing in situations of conflict. Content analysis of the drawings showed that the conflict is represented mainly at home and the siblings often show opposite emotions, with TD siblings experiencing negative emotions. Moreover, adolescent TD siblings displayed more annoyance, shame and embarrassment than child TD siblings. Conclusions It is important to combine quantitative and qualitative tools to understand the experience of TD siblings in detail. In particular, drawing is a useful tool for providing quantitative and qualitative information, supplying rich and detailed information that can be well integrated with the results coming from quantitative tools.

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“…Additionally, professionals should be aware that siblings may provide future care for individuals with ASD. These siblings may need access to education, support, and services to assist in their caregiving roles (Tomeny, Barry, & Fair, 2016). The final theme emphasized the challenges from daily routines parents experience on a daily basis.…”

Section: Implications For Practicementioning

confidence: 99%

Aging in Place in Every Community: Social Exclusion Experiences of Parents of Adult children With Autism Spectrum Disorder

Marsack

Perry

2017

Res Aging

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This article offers an examination of aging processes of lifelong caregivers and the possibilities for social exclusion place experienced by parents of adult children with autism spectrum disorder (ASD). This study of parental caregivers ( n = 51) sheds light on how enduring caregiving roles can lead to social exclusion in three ways: misunderstanding of ASD and stigma, the complexity of the caregiving roles, and impact on daily routines including challenges with long-term planning for both the adult children and the parental caregivers. Implications for practice to address social exclusion include education and building greater communication ties among family member for family members and advocacy for more and higher quality services including respite care. This article concludes with discussion of the impact of this aging, yet caregiving population and the need for knowledge about aging processes and anticipating aging for these caregivers.

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Parentification of Adult Siblings of Individuals with Autism Spectrum Disorder

Cited by 42 publications

References 49 publications

Sibling Relationships and Family Functioning in Siblings of Early Adolescents, Adolescents and Young Adults with Autism Spectrum Disorder

Sibling Relationships and Family Functioning in Siblings of Early Adolescents, Adolescents and Young Adults with Autism Spectrum Disorder

Conflicting and harmonious sibling relationships of children and adolescent siblings of children with autism spectrum disorder

Aging in Place in Every Community: Social Exclusion Experiences of Parents of Adult children With Autism Spectrum Disorder

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