Parental values in the decision about cochlear implantation

Perceived qualitative benefits of cochlear implants in children with multi-handicaps

“…Questionnaires evaluating perceived benefits of children who received a cochlear implant were reviewed from the literature [13][14][15][16]. As these interviews and questionnaires were not used on children with additional disabilities, the authors developed a structured interview based on adaptations of these questionnaires to address special considerations within the multi-handicapped (MH) population.…”

Parents’ views on the quality of life of their children 2–3 years after cochlear implantation

“…They provide information on real-life situations and help to draw a broad picture of a person's level of activities and ability to participate in different social environments. Indeed, interviews and parental questionnaires have been used in those still relatively few studies conducted to explore the parental expectations [6][7][8][9][10][11][12], satisfaction with implant habilitation [6,7,[13][14][15][16], parental stress [11,17,18], and the quality of life of implanted children and their families [6,11,13,[17][18][19]. Because of cultural variation and differences between health care systems, change in quality of life after implantation needs to be studied in countries representing different kinds of cultures and views on preferred communication modes.…”

Analysing care-related decisions in parents of congenitally deaf children: introduction of an explanatory model

“…The importance of this factor has been recognised in earlier research, such as the studies by McKellin (1995), Steinberg et al (2000) and by Li et al (2004), however it has never been accurately described as part of a model in relation to other factors. Li et al (2004) for example concluded from their study that parents' decisions concerning CI can be condensed into this one factor Á which they state is to be used for assessment of parents' decision-making Á summarising the role of other factors as 'other domains playing a lesser role' (Li et al 2004).…”

“…But should we conclude that the distinction between medical and social/cultural-linguistic models aligns perfectly with the dividing line between hearing and deaf parents? Although some qualitative studies on parental values and decision-making regarding CI have given us some indication of the complexity of this issue, the available evidence looks insufficient to provide a comprehensive answer to this question (Steinberg et al 2000;Li, Bain, and Steinberg 2004). Consequently, social and cultural-linguistic models risk being considered by some as mainly theoretical constructions, which depend on the dominance of the medical model to legitimise their very existence.…”