Parental understanding of relapsing idiopathic nephrotic syndrome—Where are the knowledge gaps?

Lo‐Cao, Edward; Amir, Noa; McKay, Ashlene; Durkan, Anne M.

doi:10.1111/apa.15111

Cited by 2 publications

(2 citation statements)

References 32 publications

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“…Also, we detected lack of discussion about access to healthy food and whether these families could afford the cost of suitable foods or not. Similarly, Lo Cao et al 18 reported 57% of their Australian cohort were not on appropriate controlled diet during remission.…”

Section: Discussionmentioning

confidence: 93%

Neurological complications in Egyptian children with nephrotic syndrome

Sharaf

Mohammed

2022

J Paediatrics Child Health

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This study aimed at describing the incidence, risk factors and outcomes for neurological manifestations in Egyptian children with nephrotic syndrome (NS) and determining correctable factors that could lower the risk for these complications. Methods: The medical records of all children with NS who presented to Nephrology clinic, Ain Shams University Children hospital (a tertiary hospital) from April 2018 to April 2020 were reviewed retrospectively for the clinical progression of NS with special emphasis on neurological manifestations, contributory risk factors and outcomes. Results: Among 67 children with NS, 13 children had neurological events. Seven patients had posterior reversible encephalopathy syndrome (PRES), four patients suffered from cerebral sinovenous thrombosis (CSVT) and two patients presented with arterial strokes. Hypertension was significantly higher in patients with NS and neurological manifestations (NS/N+) when compared to patients with NS without neurological manifestations (NS/NÀ) (76.9% vs. 40.7%; P = 0.019). NS/N+ group had significantly higher levels of triglycerides and cholesterol (209.7 AE 41.4 and 323.6 AE 40.7 in NS/N+ vs. 181.96 AE 31.8 and 243.8 AE 38.8 in NS/NÀ). Prothrombotic tendency was significantly higher in NS/N+ group as compared to NS/NÀ group. All patients recovered totally except patients with arterial strokes who had residual hemiparesis. Conclusion: Neurological complications in form of PRES, CSVT and arterial strokes were detected in children with NS. The outcome was favourable in most of the cases. Investment in parental education about the importance of follow up of blood pressure, dietary modification and good hydration could help in minimising the risk of patients with NS to develop neurological complications.

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Section: Discussionmentioning

confidence: 93%

Neurological complications in Egyptian children with nephrotic syndrome

Sharaf

Mohammed

2022

J Paediatrics Child Health

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“…13 Meanwhile, parents are required to deal with frequent follow-up visits to the hospital, school challenges, and dietary restrictions. 14,15 These responsibilities are challenging as well as stressful for parental caregivers.…”

Section: Introductionmentioning

confidence: 99%

Burdens and Difficulties Experienced by Parental Caregivers of Children and Adolescents with Idiopathic Nephrotic Syndrome in Mainland China: A Qualitative Study

Hu,

Wu,

et al. 2023

JMDH

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To identify the difficulties and burdens related to the experience of caring for children. Methods: A phenomenological approach was used in this qualitative study. Semi-structured and adolescents with idiopathic nephrotic syndrome (INS) in mainland China. Interviews lasting 35-90 minutes were conducted with 13 parental caregivers of youth with INS. The Colaizzi's analysis was used in data analysis. Results:The mean age of parental caregivers was 40.3 ± 6.1 years, and the average caregiving year of 3.2 ± 3.3 years. Most INS patients were male (69.2%), had a mean age of 7.6 ± 4.2 years. Based on the analysis of the data, five major themes emerged. These were: persistent emotional burden; neglected physical burden; overwhelming financial burden; absence of social support system and burden related to loss of normal life. Conclusion:Health professionals must develop strategies to provide stage-by-stage, targeted health education and psychological support services to parental caregivers of INS youth in China. The government must subsidize routine medications and frequent hospitalizations to minimize the financial burden on parental caregivers of INS youth. Moreover, anti-discrimination policies must be established to protect caregivers from explicit discrimination in public places.

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Parental understanding of relapsing idiopathic nephrotic syndrome—Where are the knowledge gaps?

Cited by 2 publications

References 32 publications

Neurological complications in Egyptian children with nephrotic syndrome

Neurological complications in Egyptian children with nephrotic syndrome

Burdens and Difficulties Experienced by Parental Caregivers of Children and Adolescents with Idiopathic Nephrotic Syndrome in Mainland China: A Qualitative Study

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