Parental Stress in Families of Children with a Genetic Disorder/Disability and the Resiliency Model of Family Stress, Adjustment, and Adaptation

Abstract

Parents who quantitatively experienced high stress or low stress used different behavioral themes to describe their experience qualitatively. Positive appraisals, resources, and ability to engage in problem solving and coping were associated with family resiliency.

Community Adversity and Children’s Mental Health: Moderating Effects of Caregiver Service Utilization and Race on Children’s Internalizing and Externalizing Problems

“…2 Moderating effect of service utilization on the association between community adversity and children's externalizing behaviors Community Adversity and Children's Mental Health: Moderating Effects of Caregiver Service… and family resources or existing social service providers to aid them in handling child mental health related issues. As alluded to above, dangerous neighborhoods do not provide the recovery and support that comes with enabling communities (McMurray 2011;Hall et al 2012;Poortinga 2012). They comprise a social reality that is accompanied by a lack of social capital that leads to sustaining access to the social determinants of health (Sellstrom and Bremberg 2006).…”

“…Their findings are consistent with Smith's (2004) evidence that family adversity defined as parental mental health is associated with negative consequences for youth. Hall et al (2012) focus group research study on parental stress among families of children with disabilities reflect differential community and personal life experiences for stressed and non-stressed parents. Their study shows that parents involved in the stressed group experienced ostracism in their communities, frustration when their child with a disability failed to meet developmental milestones, lack of support from their extended family, church, and community and the avoidance of communication about their child with a disability.…”

Growing Up in the Genomic Era: Implications of Whole-Genome Sequencing for Children, Families, and Pediatric Practice

“…Research suggests that the responses of parents who learn that their child has a genetic condition vary considerably depending on the prognosis for the condition; for severe diseases in particular, parents can experience worry, stress, guilt, and other negative impacts on well-being (41, 45). Family support and the services of a genetic counselor can make substantial differences in addressing parental emotional needs (58, 69).…”

Personality Styles, Psychological Adjustment and Gender Differences in Parents of Children with Congenital Disabilities

“…The presence of a markedly pleasure-enhancing and motivating style is also related to the impulse to improve their own and other people's lives, and to reinforce their survival ability. This style would explain the great capacity to adapt to stress reported in other studies [24] [31] [45]- [47]. It has also been reported that concerns over the precise cause of the problem can drive these fathers into a long pilgrimage from one specialist to another due to their need to relieve feelings of impotence or guilt, rather than to dissatisfaction with the answers received.…”