Parental reports of community activity patterns: A comparison between young children with disabilities and their nondisabled peers

Ehrmann, Lisa C.; Aeschleman, Stanley R.; Svanum, Soren

doi:10.1016/0891-4222(95)00017-h

Cited by 59 publications

(45 citation statements)

References 5 publications

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“…[12][13][14][15][16][17][18][19][20][21][22][23][24][25][26][27] Three independent raters determined that seven assessments met the predefined inclusion criteria. Two raters were occupational therapists and one was a physical therapist, with considerable experience (18-33y) with outcome assessment and research with children with CP.…”

Section: Resultsmentioning

confidence: 99%

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Clinimetric properties of participation measures for 5‐ to 13‐year‐old children with cerebral palsy: a systematic review

Sakzewski

Boyd

Ziviani

2007

Develop Med Child Neuro

186

143

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This study systematically reviewed the validity, reliability, sensitivity to change, and clinical utility of measurements of participation for children with cerebral palsy. Sixteen measures were identified and seven met the inclusion criteria of having 30% content measuring participation, for use with children aged 5 to 13 years with physical disability, and were condition specific. The Children's Assessment of Participation and Enjoyment (CAPE) assessed participation in leisure and recreation, while the School Function Assessment (SFA) and School Outcome Measure addressed participation in the school environment. The Assessment of Life Habits for Children (LIFE‐H) measured participation in home, school, and community life, and the Children Helping Out: Responsibilities and Expectations assessed children's participation in household duties. The Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling (GAS) were individualized tools used to evaluate goal achievement. Results showed most instruments had adequate reliability and validity. The COPM and GAS were the only measures that reported adequate responsiveness to detect clinically significant change. Limited data are currently available to determine the responsiveness of the CAPE, LIFE‐H, and SFA. A combination of assessments is required to capture participation of children in home, school, and community environments.

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Section: Resultsmentioning

confidence: 99%

“…Perceived Efficacy and Goal Setting System 14 8. Community Activities Questionnaire 19 9. Child and Adolescent Scale of Participation 24 Designed specifically for children with acquired brain injuries SFA, school-based therapists the SOM, and parents/caregivers completed the remaining assessments.…”

Section: Clinical Utilitymentioning

confidence: 99%

Clinimetric properties of participation measures for 5‐ to 13‐year‐old children with cerebral palsy: a systematic review

Sakzewski

Boyd

Ziviani

2007

Develop Med Child Neuro

186

143

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“…6 Children with disabilities were found to experience greater participation restriction than their peers without impairment, 7 and the participation of children with CP or other neurological impairments was more restricted than that of other disability groups. 8,9 Studies that examined participation in activities outside of school were of specific interest to the current study.…”

mentioning

confidence: 99%

Diversity of participation in children with cerebral palsy

Imms¹,

Reilly²,

Dodd³

2008

Develop Med Child Neuro

159

132

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The aim of this study was to investigate the participation of children with cerebral palsy (CP) in activities outside school and to compare their participation with a large representative sample of children. A population‐based survey was conducted of children with CP born in Victoria, Australia in 1994 and 1995. Of 219 living children identified, 114 (52.1%) returned completed surveys. The children (65 males, 49 females) were aged between 10 years 9 months and 12 years 9 months (mean age 11y 9mo, SD 6mo). Thirty‐eight per cent had hemiplegia, 23% diplegia, 4% triplegia, 34% quadriplegia, and 1% was of unknown topography. Distribution according to the Gross Motor Function Classification System (GMFCS) was 22.8% Level I, 36% Level II, 10.5% Level III, 8.8% Level IV, and 21.9% Level V. Distribution according to the Manual Ability Classification System (MACS) was: 19.3% Level I, 38.6% Level II, 14.0% Level III, 8.8% Level IV, and 19.3% Level V. Participation was measured using the Children's Assessment of Participation and Enjoyment. Participation in selected sport, cultural, and quiet leisure activities was compared with population‐based data for 11‐year‐olds from the Australian Bureau of Statistics. Children with CP undertook a median of 26.5 activities (interquartile range 10) in 4 months which were commonly informal rather than formal. Intensity of participation was low. Diversity and intensity of participation was similar for children in each level of the MACS and the GMFCS, except for participants in Level V. More children with CP participated in organized sports (p<0.001) compared with other Australian children, although with lower frequency (p<0.001). Participation diversity and level of intensity of Australian children with CP were similar to those reported in a Canadian study.

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“…6(p400) Despite the importance of this construct, research has documented limited participation among youth with physical disabilities, as they engage in fewer types of activities, particularly those social in nature, and participate in more quiet recreational activities. [7][8][9] Research conducted with youth with SCI echoed these conclusions, finding that they most often participated in sedentary activities 10 and participated more often in informal than formal activities. 11 Informal participation was found to be related to age, sex, and injury level of the child and formal participation was related to the age of the child and the education of the caregiver.…”

mentioning

confidence: 75%

Overview of Psychosocial Health Among Youth with Spinal Cord Injury

Kelly

2013

Topics in Spinal Cord Injury Rehabilitation

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Background: Psychosocial health can be conceptualized as being mentally, emotionally, and socially well. Little is known about normative psychosocial development among children and adolescents with spinal cord injury (SCI). Objective: To provide a comprehensive overview of psychosocial health of 410 youth with SCI from ages 2 to 18 years. To understand developmental trends, data are presented separately for ages 2-5, 6-12, 13-15, and 16-18 years. Methods: Youth with SCI were recruited from 1 of 3 pediatric specialty hospitals within a single hospital system. Structured surveys assessing community participation, quality of life (QOL), and mental health (including anxiety and depression) were completed by youth with SCI (for ages 6-18) or their primary caregivers (for ages 2-5). Descriptive statistics were used to assess how patients scored on all standardized measures. Results: Of the 410 participants, 56% were male, 64% were Caucasian, 66% had paraplegia, and 55% had complete injuries. On average, the participants were 12 years old (SD 4.87) at interview and 7.26 years old (SD 5.97) at injury. Psychosocial health outcomes were described for each of the 4 age groups: 2-5 years (n = 52), 6-12 (n = 142), 13-15 (n = 82), and 16-18 (n = 134) years. Conclusions: As compared to published norms, this sample of youth with SCI seemed to be experiencing decreased levels of community participation and QOL, but also decreased levels of anxiety and depression. These data provide needed information to clinicians regarding how youth with SCI may typically experience psychosocial health and where their patients fit into that typical experience.

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Parental reports of community activity patterns: A comparison between young children with disabilities and their nondisabled peers

Cited by 59 publications

References 5 publications

Clinimetric properties of participation measures for 5‐ to 13‐year‐old children with cerebral palsy: a systematic review

Clinimetric properties of participation measures for 5‐ to 13‐year‐old children with cerebral palsy: a systematic review

Diversity of participation in children with cerebral palsy

Overview of Psychosocial Health Among Youth with Spinal Cord Injury

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