Parental quality of life and self-efficacy in pediatric asthma

Kan, Kristin; Fierstein, Jamie; Boon, Kathy; Kanaley, Madeleine; Zavos, Patricia; Volerman, Anna; Vojta, Deneen; Gupta, Ruchi S.

doi:10.1080/02770903.2020.1731825

Cited by 18 publications

(7 citation statements)

References 38 publications

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“…39,40 In addition to parental self-efficacy, coping and perception of severity of illness, further work is warranted to understand the contextual factors contributing to how the race of the caregiver modifies changes in caregiver QoL during acute childhood illnesses. 41,42 Qualitative research to specifically explore these findings and more fully understand their implications is needed to inform further discussion. Abbreviations: QoL, quality of life; SD, standard deviation.…”

Section: Discussionmentioning

confidence: 99%

Caregiver Quality of Life During Pediatric Influenza-Like Illness: A Cross-Sectional Study During the COVID-19 Pandemic

Overmann

Porter

Yin

et al. 2023

Journal of Patient Experience

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The objective of this study was to quantify the quality of life (QoL) of caregivers with children with influenza-like illnesses (ILI) and to identify factors associated with worse QoL. This was a cross-sectional cohort study of caregivers in a pediatric emergency department with previously healthy young children with ILI. The primary outcome was caregiver QoL. Additional measures included health literacy, social support, and caregiver health status. Two hundred and eighty-one caregivers completed the study. And 41% reported overall QoL was worse during their child's illness. The median QoL score was 3.8 [3.1, 4.6] in a 7-point scale. Illness duration was associated with worse overall QoL score (0.128 worse for each additional day of illness). The median emotions domain score was 2.5 [1.5, 4.0], the worst of any domain. Caregivers who perceived worse illness severity had lower emotions domain scores (2.61 vs 6.00, P = .0269). Caregivers with adequate literacy had lower mean QoL scores (3.08 vs 4.44, P < .0001). Childhood illnesses worsen caregiver QoL. Factors associated with worse QoL were perception of illness severity and duration. Addressing caregiver QoL could mitigate the impact of childhood acute illnesses on caregiver wellbeing.

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Section: Discussionmentioning

confidence: 99%

Caregiver Quality of Life During Pediatric Influenza-Like Illness: A Cross-Sectional Study During the COVID-19 Pandemic

Overmann

Porter

Yin

et al. 2023

Journal of Patient Experience

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“…Dessa forma, estudo realizado com pais de crianças e adolescentes de 4 a 17 anos de idade com asma persistente avaliou como os seus níveis de autoeficácia pessoal podem contribuir com melhora no controle da asma e na qualidade de vida dos pacientes. Os resultados revelaram que os pais com melhores níveis de autoeficácia sobre a indicação e modo de usar os medicamentos de controle e de resgate de crise de asma de seus filhos apresentaram menor probabilidade de relatar o uso de medicamentos, contribuindo com melhora na qualidade de vida (20) .…”

Section: Discussionunclassified

Educational technology for promoting parental self-efficacy in controlling childhood asthma

et al. 2022

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Objective: to verify the self-efficacy of parents and caregivers in controlling childhood asthma before and after an educational intervention and to associate the scores with sociodemographic factors. Methods: quasi-experimental study, with 65 parents and caregivers of children with asthma. The Self-Efficacy and Their Child’s Level of Asthma Control scale – Brazilian version – was used before and 30 days after the intervention with the reading of the booklet “Are you able to control your child’s asthma – let’s learn together?” For the analysis, McNemar’s Chi-square and Wilcoxon statistical tests were used. Results: after 30 days,the effect of the intervention demonstrated statistical significance between high self-efficacy scores and the following variables: marital status (Odds Ratio:2.6;p≤0.001), family income (Odds Ratio:3.4;p≤0.001) and Bolsa Família Program benefit (Odds Ratio:2.9;p≤0.001). Conclusion: the educational booklet was shown to be effective in increasing the self-efficacy of parents and caregivers in the control and management of childhood asthma.

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“…These multifactorial interventions combine education, linkage with follow up, culturally appropriate action plans, and the provision of materials while in the ED. Careful culturally competent attention to patient and caregiver needs can influence design of these materials, such as improved asthma action plans, to increase parental self-efficacy, confidence and improve outcomes (28)(29)(30). Combined with quality improvement initiatives to increase guideline-adherent medical care, these patientcentered approaches have shown great promise to improve cost-effective asthma care for vulnerable families (31)(32)(33).…”

Section: Discussionmentioning

confidence: 99%

A Content Analysis of Emergency Department Discharge Instructions for Acute Pediatric Febrile Illnesses: The Current State and Opportunities for Improvement

Overmann

Vukovic

Britto

2021

Journal of Patient Experience

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Quality emergency department (ED) discharge communication is critical to understanding of disease progression, home management, and return instructions. Addressing social aspects of disease burden are important to improving satisfaction and healthcare utilization. The objective of this study was to understand the extent to which written ED discharge instructions address multifaceted aspects of disease to meet the comprehensive needs of families with common childhood illnesses. We analyzed a national sample of 28 written discharge instructions from pediatric EDs using thematic and inductive content analysis. Seven themes were identified. Nearly all discharge instructions devoted a majority of content to themes related to disease physiology. Other themes common to instructions were related to parental instructions for caring for the child and when to return for further care. Content on caregiver reassurance, returning to daily activities, improving well-being, and promoting community health were not a focus of discharge instructions. Inclusion of multifaceted discharge materials which address both medical and social aspects of disease may help improve family-centered emergency care and the quality of care transitions for common childhood illnesses.

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Parental quality of life and self-efficacy in pediatric asthma

Cited by 18 publications

References 38 publications

Caregiver Quality of Life During Pediatric Influenza-Like Illness: A Cross-Sectional Study During the COVID-19 Pandemic

Caregiver Quality of Life During Pediatric Influenza-Like Illness: A Cross-Sectional Study During the COVID-19 Pandemic

Educational technology for promoting parental self-efficacy in controlling childhood asthma

A Content Analysis of Emergency Department Discharge Instructions for Acute Pediatric Febrile Illnesses: The Current State and Opportunities for Improvement

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