Parental Perspectives Regarding Early Intervention and Its Role in Cochlear Implantation in Children

Sorkin, Donna L.; Zwolan, Teresa A.

doi:10.1097/mao.0b013e3181616c88

Cited by 31 publications

(25 citation statements)

References 11 publications

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“…Around half of the participants, agreed that information related to device limitations and surgical possible risks was underrepresented. This conforms to results that indicate that parents of children with cochlear implant feel that they lack ''comprehensive and bias-free'' information when making the decision of a cochlear implant [17].…”

Section: Discussionsupporting

confidence: 89%

“…age, type-, degree-and configuration of hearing loss, age at diagnosis, hearing aid use, and age at implantation). While the fourth domain, questions (17)(18)(19)(20)(21)(22)(23)(24), examined parents' demographics (i.e. age of parents, marital status, consanguinity, education, nationality, income, residence, and household structure).…”

Section: Surveymentioning

confidence: 99%

“…What adds to the complexity of the process is that many deaf children are born to normally hearing parents who have never experienced hearing loss [16]. In an investigation of parental perspective of the process of cochlear implant, Sorkin and Zwolan indicated that those who choose to get a cochlear implant for their children feel that they lack ''comprehensive and bias-free'' information when making the decision [17]. Research has shown that parents of children who are implant candidates or recipients indicate need for a wide range of information pertaining to medical, educational, technical, communication, and other concerns [15,18].…”

mentioning

confidence: 98%

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Cochlear implants in children implanted in Jordan: A parental overview

Alkhamra¹

2015

International Journal of Pediatric Otorhinolaryngology

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Section: Discussionsupporting

confidence: 89%

Section: Surveymentioning

confidence: 99%

mentioning

confidence: 98%

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Cochlear implants in children implanted in Jordan: A parental overview

Alkhamra¹

2015

International Journal of Pediatric Otorhinolaryngology

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“…63 Families also should be encouraged to take ownership of their health and information records through such new developments as personal health records. 64 Optimally, personal health records should be connected to the many settings in which care is provided to children with EHL (eg, birth hospital, pediatrician's office, audiologist's office, EI services, other therapists).…”

Section: Involve Families and Childrenmentioning

confidence: 99%

Accelerating Evidence Into Practice for the Benefit of Children With Early Hearing Loss

Russ¹,

Dougherty²,

Jagadish³

2010

Pediatrics

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Over the years, multiple groups have issued recommendations for newborn hearing screening, diagnosis, and intervention. In January 2008, the US Department of Health and Human Services held an invitational workshop at which more than 50 national experts met for 2 days to consider ways to accelerate the movement of evidence-based recommendations into practice. Participants set priorities among existing recommendations, identified areas with the most promise and created a national blueprint to accelerate evidence into practice. Workshop participants adopted the "3T's Roadmap to Transform US Health Care" as the conceptual model for this work and used a modified Delphi process to identify high-priority recommendations in 5 areas (diagnosis, treatment, parental and public awareness, continuous quality improvement, and stewardship). A matrix of responsibility was developed to specify entities that could take action to implement these recommendations. Participants placed a high priority on measurement and recommended improved data-tracking of newborns after screening and creation of a limited set of national indicators to monitor progress toward evidence-based system goals. They also identified a greater role for parents and families in contributing to system transformation and a need for more culturally and linguistically appropriate resources. Targeting infants in the NICU for early testing and creating guidelines and resources for early intervention were additional priorities. Finally, the workgroup noted the need to create a stewardship function to monitor the progress of the entire system of care, disseminate reports, consider future research directions, and continue to develop critical cross-agency and public-private coordination of activities. Pediatrics 2010;126:S7-S18

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“…Restoration of hearing with cochlear implantation, especially before a ''critical period,''(8,9) has been shown to have long-term benefits for children with respect to verbal communication, speech, and social and vocational skills (10,11). Such obvious benefits of cochlear implantation have led many parents of congenitally deaf children with cochlear implants to elect early intervention for their children if presented with the option (12,13).…”

mentioning

confidence: 99%