Parental Perspectives on Hospital Staff Members' Acts of Kindness and Commemoration After a Child's Death

Macdonald, Mary Ellen; Liben, Stephen; Carnevale, Franco A.; Rennick, Janet E.; Wolf, Susan L.; Meloche, Donald; Cohen, S. Robin

doi:10.1542/peds.2004-1980

Cited by 113 publications

(102 citation statements)

References 23 publications

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“…Parents in the PICU with dying children report that trust in the PICU team, which is fostered by better teamwork, has a major impact on their experience. [20][21][22] The conductor had an important role in the content and flow of Wrap-ups. His/her role in facilitating the meeting was key to making it a safe environment and one that fostered sharing but didn't fall into a proverbial ''well of sorrow'' by keeping the tenor of the sharing on a cognitive level.…”

Section: Discussionmentioning

confidence: 99%

The Wrap-Up: A Unique Forum To Support Pediatric Residents When Faced with the Death of a Child

Bateman

Dixon

Trozzi

2012

Journal of Palliative Medicine

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Objective: The project intended to describe the format of the Wrap-up, a unique multidisciplinary guided debriefing following a child's death. Specific feedback from pediatric residents was sought to assess the model. Methods: The Wrap-ups were timely (within 48 hours of a death), consistent (conducted after each pediatric intensive care unit (PICU) death), multidisciplinary (all care providers were invited), and specifically conducted by someone trained in postdeath facilitation. The role of the conductor was focused on being inclusive, navigating the discussion, diffusing areas of conflict or angst, and managing the tone of the meeting. , there were 36 PICU deaths. The average age was nine years old. All deaths had an accompanying conductor-led Wrap-up occurring, on average, two days after the death. Sixty percent (27/45) of pediatric residents completed the survey. Their qualitative responses showed that the key components (timely, multidisciplinary, and specifically conducted) of the Wrap-ups were valuable. Quantitatively, they agreed or strongly agreed that the consistent Wrap-ups improved end-of-life care, teamwork, stress surrounding the death, and the ability to care for others. Conclusion: The Wrap-up, a unique forum for debriefing after a pediatric death, was well-received by residents and assisted them with processing, understanding, and resolving their experience regarding the pediatric death. The Wrap-up was a valuable addition to residents' experience and education in pediatric critical care medicine and can be replicated in other institutions.

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Section: Discussionmentioning

confidence: 99%

The Wrap-Up: A Unique Forum To Support Pediatric Residents When Faced with the Death of a Child

Bateman

Dixon

Trozzi

2012

Journal of Palliative Medicine

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“…9,12 Additionally, families report feeling lost or abandoned by health care providers after the child dies. 8,16,18,19,43,66 Many parents have a need to continue a relationship with the hospital staff and perceive this relationship as an extension of caring and acknowlegment. 8,10,16,66,67 The ongoing need for support following a child's death is illustrated by the subsequent encounter with Jamie's family.…”

Section: Ongoing Support and Lasting Communicationmentioning

confidence: 99%

“…16,19,66 This understanding led to the development of a multidisciplinary bereavement committee at University of Florida Health, Shands Children's Hospital, Gainesville, Florida, and the creation of the Life Journey Bereavement Program.…”

Section: Ongoing Support and Lasting Communicationmentioning

confidence: 99%

“…This service provides families an opportunity to share their grief with others who have experienced the same kind of loss and to reconnect with the staff members who cared for their child, a need that has been repeatedly identifi ed in the literature. 8,10,12,19,21,66 The service includes music, poetry, sharing memories, art projects sponsored by the Arts in Medicine program, and release of live butterfl ies to honor the memory of the children.…”

Section: Ongoing Support and Lasting Communicationmentioning

confidence: 99%

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Caring for Pediatric Patients’ Families at the Child’s End of Life

Mullen

Reynolds

Larson

2015

Critical Care Nurse

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Nurses play an important role in supporting families who are faced with the critical illness and death of their child. Grieving families desire compassionate, sensitive care that respects their wishes and meets their needs. 1-5 Some nurses feel anxiety related to the experience of death and are inadequately prepared to provide end-of-life care. 3,6,7 We begin by presenting a case that illustrates a family's response when faced with such a life-altering event and the challenges nurses face in caring for and communicating with the family throughout the end-of-life experience. Next, we review practical strategies that nurses can use to communicate with patients' families at the end of a child's life. We also provide additional strategies to provide compassionate, sensitive care that respects a family's wishes and attends to the needs of the family. Finally, we describe a bereavement program designed to facilitate lasting communication with the grieving family. This article has been designated for CE credit. A closed-book, multiple-choice examination follows this article, which tests your knowledge of the following objectives:1. Describe the challenges nurses face in caring for and communicating with the family throughout the end-of-life experience 2. Discuss strategies to provide compassionate care that respects a family's wishes and attends to the needs of the family throughout the end-of-life experience 3. Identify strategies that nurses can use to communicate with patients' families at the end of a child's life CE Continuing Education 46

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“…4 Quite the contrary, grieving parents report that acknowledging their grief is important, and they seldom forget the pain of a friend, family member, or physician who fails to make contact after such a loss. 5 If pediatricians have a relationship with a family, they should always contact the parents when they learn of the death of a child in that family, including the pediatrician who hears about the death from the news or from others in the community. Such contact should be more than attendance at a viewing or a funeral.…”

Section: Helpful Responses and Those That Hurtmentioning

confidence: 99%

Supporting the Family After the Death of a Child

Wender¹,

Siegel²,

Dobbins³

et al. 2012

Pediatrics

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The death of a child can have a devastating effect on the family. The pediatrician has an important role to play in supporting the parents and any siblings still in his or her practice after such a death. Pediatricians may be poorly prepared to provide this support. Also, because of the pain of confronting the grief of family members, they may be reluctant to become involved. This statement gives guidelines to help the pediatrician provide such support. It describes the grief reactions that can be expected in family members after the death of a child. Ways of supporting family members are suggested, and other helpful resources in the community are described. The goal of this guidance is to prevent outcomes that may impair the health and development of affected parents and children.

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Parental Perspectives on Hospital Staff Members' Acts of Kindness and Commemoration After a Child's Death

Cited by 113 publications

References 23 publications

The Wrap-Up: A Unique Forum To Support Pediatric Residents When Faced with the Death of a Child

The Wrap-Up: A Unique Forum To Support Pediatric Residents When Faced with the Death of a Child

Caring for Pediatric Patients’ Families at the Child’s End of Life

Supporting the Family After the Death of a Child

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