Parental perception of neonatal transfers from level 3 to level 2 neonatal intensive care units in Calgary, Alberta: qualitative findings

Dosani, Aliyah; Murthy, Prashanth; Kassam, Shafana; Rai, Baldeep; Lodha, Abhay

doi:10.1186/s12913-021-06967-3

Cited by 2 publications

(2 citation statements)

References 22 publications

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“…Many studies of NICU transitions have shown that parents need increased support during transitions both from hospital staff and other sources of support in their support network. 2,20 This study expanded on this by describing specifically how parent's own ability to adapt could be improved through support from staff.…”

Section: Discussionmentioning

confidence: 99%

Factors Influencing Parents' Perception of Their Infants' Transition From a 6-Bed Pod to Single Family Room in a Mixed-Room Neonatal Intensive Care Unit

Crump

Gosselin²,

D'addona³

et al. 2023

Advances in Neonatal Care

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Background: While hospitalized in the neonatal intensive care unit (NICU), infants and their families undergo multiple transitions, and these have been found to be a source of stress for families. Although mixed-room NICU designs allow for infants to benefit from different room types as their needs evolve during their stay, these can necessitate a transfer from one room type to another, which represents a transition for families. As some NICUs change to mixed-room designs, there is a need to better understand the factors impacting these particular transitions from the perception of parents. Purpose: Examine parent perceptions of factors affecting the transition from a 6-bed pod to single family room in a mixed-room design NICU. Methods: Using a qualitative descriptive design, semistructured interviews were conducted with 17 parents whose infant had transitioned from a 6-bed pod to single family room. Interviews were transcribed verbatim and then analyzed using content analysis. Results: Four categories of factors were identified: (1) framing, timing, and comprehensiveness of information provided by staff regarding the transition; (2) parents' perception of advantages and disadvantages of the new space; (3) parent's own well-being and quality of support from staff; and (4) parent's previous NICU and parenting experience. Implications for Practice: Staff should frame the information they provide about this transition in a positive way to help parents adjust. A family-centered approach should also be used to provide tailored information and support to individual families. Implications for Research: Future studies are needed into intraunit transfers including sources of support for parents, as well as staff perceptions of these transitions.

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Section: Discussionmentioning

confidence: 99%

Factors Influencing Parents' Perception of Their Infants' Transition From a 6-Bed Pod to Single Family Room in a Mixed-Room Neonatal Intensive Care Unit

Crump

Gosselin²,

D'addona³

et al. 2023

Advances in Neonatal Care

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“…22,[52][53][54] This paper follows from our previous analysis of managerial systems that organise decisions about place of care-and lead to transfers that are not always clinically necessary and very often burdensome for parents. 3 Management systems that organise place of care can have considerable knock-on effects, not only creating stress for parents 10,[37][38][39]55 but also precipitating new work to create continuity amid those place-of-care disruptions. Indeed, within the community of care, parents undertake a significant amount of the work required to maintain continuity for their babies.…”

Section: Discussionmentioning

confidence: 99%

Parenting through place‐of‐care disruptions: A qualitative study of parents' experiences of neonatal care

Cupit,

Paton,

Boyle

et al. 2023

Health Expectations

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IntroductionNeonatal care is complex, involving multiple people and technologies within a community of care. When preterm babies are cared for far from home and/or transferred between units, the whole community of care (and particularly parent participation) is disrupted. Although previous studies have captured subjective experiences of parents, there has been little research exploring the material practices undertaken by parents as a consequence of place‐of‐care decisions, or the social organisation of those practices.MethodsAs part of a wider study exploring optimal place‐of‐care, semistructured interviews were conducted between July 2018 and October 2019 with 48 parents (36 families) with one or more preterm babies (born at 27–31 weeks gestation) cared for in a neonatal unit in the last 12 months.FindingsWe highlight parents' labour‐intensive and stressful work to: (1) parent in the neonatal care community (an oversight role that goes beyond contemporary notions of ‘involvement’); (2) create continuity amid place‐of‐care disruptions; and (3) adapt to the managerial logics of neonatal care settings. Our analysis focuses on the work generated by managerial systems that organise place‐of‐care decision‐making and other efficiency‐focused practices. Parents are absorbed into negotiating institutional systems and diverted from routine parenting activities.ConclusionThose involved in the organisation and management of neonatal care should take account of how managerial systems impact parents' workload, ability to participate in their baby's community of care and, ultimately, on the wellbeing and development of babies and their families.Patient or Public ContributionThe OPTI‐PREM study embedded parents' experiences of neonatal care into the research, through a discrete workstream that employed qualitative methodology to capture parents' experiences—as reported in this paper. The OPTI‐PREM project was also supported by a Bliss volunteer parent panel, which was involved in designing and overseeing the research. Bliss ‘champion[s] the right for every baby born premature or sick to receive the best care by supporting families, campaigning for change and supporting professionals and enabling life‐changing research’ (https://www.bliss.org.uk/about-us/about-bliss). A representative of Bliss is a co‐author of this manuscript, and a parent representative (named in the Acknowledgements) provided feedback during its preparation.

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Parental perception of neonatal transfers from level 3 to level 2 neonatal intensive care units in Calgary, Alberta: qualitative findings

Cited by 2 publications

References 22 publications

Factors Influencing Parents' Perception of Their Infants' Transition From a 6-Bed Pod to Single Family Room in a Mixed-Room Neonatal Intensive Care Unit

Factors Influencing Parents' Perception of Their Infants' Transition From a 6-Bed Pod to Single Family Room in a Mixed-Room Neonatal Intensive Care Unit

Parenting through place‐of‐care disruptions: A qualitative study of parents' experiences of neonatal care

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