Parental Perception and Barriers Regarding COVID-19 Vaccination in Technology Dependent Children

Capusan, Karen Y.; Rebaza, André; Santiago, Maria; Quizon, Annabelle

doi:10.1016/j.pedhc.2023.05.002

Cited by 2 publications

(2 citation statements)

References 8 publications

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“…Given the high frequency of health care encounters among CMC [56], opportunities exist for public health education during clinical care. In fact, CMC assisted by technology (e.g., ventilation via tracheostomy) were more likely to receive the COVID-19 vaccine when counseled by primary care provider or subspecialist [57].…”

Section: Plos Onementioning

confidence: 99%

Disparities in COVID-19 vaccine intentions, testing and trusted sources by household language for children with medical complexity

Chen,

Singh-Verdeflor,

Kelly

et al. 2024

PLoS ONE

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Objectives Children with medical complexity experienced health disparities during the coronavirus disease 2019 (COVID-19) pandemic. Language may compound these disparities since people speaking languages other than English (LOE) also experienced worse COVID-19 outcomes. Our objective was to investigate associations between household language for children with medical complexity and caregiver COVID-19 vaccine intentions, testing knowledge, and trusted sources of information. Methods This cross-sectional survey of caregivers of children with medical complexity ages 5 to 17 years was conducted from April-June 2022. Children with medical complexity had at least 1 Complex Chronic Condition. Households were considered LOE if they reported speaking any language other than English. Multivariable logistic regression examined associations between LOE and COVID-19 vaccine intentions, interpretation of COVID-19 test results, and trusted sources of information. Results We included 1,338 caregivers of children with medical complexity (49% response rate), of which 133 (10%) had household LOE (31 total languages, 58% being Spanish). There was no association between household LOE and caregiver COVID-19 vaccine intentions. Caregivers in households with LOE had similar interpretations of positive COVID-19 test results, but significantly different interpretations of negative results. Odds of interpreting a negative test as expected (meaning the child does not have COVID-19 now or can still get the virus from others) were lower in LOE households (aOR [95% CI]: 0.56 [0.34–0.95]). Households with LOE were more likely to report trusting the US government to provide COVID-19 information (aOR [95% CI]: 1.86 [1.24–2.81]). Conclusion Differences in COVID-19 test interpretations based on household language for children with medical complexity were observed and could contribute to disparities in outcomes. Opportunities for more inclusive public health messaging likely exist.

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Section: Plos Onementioning

confidence: 99%

Disparities in COVID-19 vaccine intentions, testing and trusted sources by household language for children with medical complexity

Chen,

Singh-Verdeflor,

Kelly

et al. 2024

PLoS ONE

View full text Add to dashboard Cite

show abstract

“…This is the overall premise of a newer field of science called community-based participatory research. Although there have been studies on caregiver perceptions of barriers to care in other areas of pediatric healthcare [5][6][7][8], there has been no such study to-date evaluating the strengths and challenges of care throughout hospitalization from the perspective of the caregivers of pediatric injury patients. Further, little research exists exploring the strengths and challenges to proper communication regarding care in LMIC pediatric care settings.…”

Section: Introductionmentioning

confidence: 99%

Family caregiver perspectives on strengths and challenges in the care of pediatric injury patients at a tertiary referral hospital in Northern Tanzania

Keating,

Sakita,

Vonderohe

et al. 2023

PLoS ONE

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Background Pediatric injuries are a leading cause of morbidity and mortality in low- and middle-income countries (LMICs). It is important that injured children get quality care in order to improve their outcomes. Injured children are nearly always accompanied by family member caregivers invested in their outcome, and who will be responsible for their recovery and rehabilitation after discharge. Objective The purpose of this study was to identify family member caregiver perspectives on strengths and challenges in pediatric injury care throughout hospitalization at a tertiary hospital in Northern Tanzania. Methods This study was conducted at a zonal referral hospital in Northern Tanzania. Qualitative semi-structured in-depth interviews (IDIs) were conducted by trained interviewers who were fluent in English and Swahili in order to examine the strengths and challenges in pediatric injury care. IDIs were completed from November 2020 to October 2021 with 30 family member caregivers of admitted pediatric injured patients. De-identified transcripts were synthesized in memos and analyzed through a team-based, thematic approach informed by applied thematic analysis. Results Strengths and challenges were identified throughout the hospital experience, including emergency medicine department (EMD) care, inpatient wards care, and discharge. Across the three phases, strengths were identified such as how quickly patients were evaluated and treated, professionalism and communication between healthcare providers, attentive nursing care, frequent re-evaluation of a patient’s condition, and open discussion with caregivers about readiness for discharge. Challenges identified related to lack of communication with caregivers, perceived inability of caregivers to ask questions, healthcare providers speaking in English during rounds with lack of interpretation into the caregivers’ preferred language, and being sent home without instructions for rehabilitation, ongoing care, or guidance for follow-up. Conclusion Caregiver perspectives highlighted strengths and challenges throughout the hospital experience that could lead to interventions to improve the care of pediatric injury patients in Northern Tanzania. These interventions include prioritizing communication with caregivers about patient status and care plan, ensuring all direct communication is in the caregivers’ preferred language, and standardizing instructions regarding discharge and follow-up.

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Parental Perception and Barriers Regarding COVID-19 Vaccination in Technology Dependent Children

Cited by 2 publications

References 8 publications

Disparities in COVID-19 vaccine intentions, testing and trusted sources by household language for children with medical complexity

Disparities in COVID-19 vaccine intentions, testing and trusted sources by household language for children with medical complexity

Family caregiver perspectives on strengths and challenges in the care of pediatric injury patients at a tertiary referral hospital in Northern Tanzania

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