Parental Knowledge and Attitudes About Universal Lipid Screening Among Children Aged 9 to 11 Years

Kern, Leah; Eichberger, Lisa; Wang, Helen; Lin, Tuo; Rhee, Kyung E.

doi:10.1177/0009922820903043

Cited by 4 publications

(2 citation statements)

References 18 publications

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“…Conversely, a regional study in the United States on parental support for ULS did not nd an association between parental support and their knowledge about family history of abnormal cholesterol or CVD. The same study did identify a lack of understanding about the utility of ULS in children as a potential barrier to parents supporting ULS (Kern L et al 2020). We hypothesize that an increased public awareness and education regarding FH as a condition and the bene ts of ULS in children may in uence parental attitudes toward screening in the United States.…”

Section: Parents Support Universal Lipid Screeningmentioning

confidence: 84%

“I don’t think people should die young”: Perspectives of parents with children diagnosed with familial hypercholesterolemia

Tsai,

Young,

Cherny

et al. 2024

Preprint

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Familial Hypercholesterolemia (FH) is an inherited disorder that significantly increases an individual’s risk of developing premature cardiovascular disease (CVD). Early intervention involving lifestyle modification and medication is crucial in preventing CVD. Prior studies have shown that lipid-lowering therapy in children is safe and effective. Despite FH being a treatable and manageable condition, the condition is still underdiagnosed and undertreated. Universal lipid screening (ULS) in children has been recommended by some medical experts in the United States as a strategy to identify cases of FH and maximize the benefits of early invention. However, lipid screening is not routinely offered in pediatric clinics. This study aimed to explore parental experience with FH diagnosis in their children, identify key facilitators and barriers in children’s diagnosis and care, and examine parental perspectives on ULS in children in the United States. A total of fourteen semi-structured interviews were conducted with participants recruited through the Family Heart Foundation. Thematic analysis identified three key themes: role of family history in facilitating child’s FH diagnosis, barriers and challenges in post-diagnosis care, and attitudes towards ULS in children. All participants supported ULS in children and emphasized the value of early diagnosis and treatment for FH. However, a lack of guidance or referral after the child's diagnosis was a concern raised by many participants. This underscores the need for accessible and comprehensive care amid ongoing efforts to increase pediatric diagnosis of FH.

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Section: Parents Support Universal Lipid Screeningmentioning

confidence: 84%

“I don’t think people should die young”: Perspectives of parents with children diagnosed with familial hypercholesterolemia

Tsai,

Young,

Cherny

et al. 2024

Preprint

View full text Add to dashboard Cite

show abstract

“…A recent survey found that parental support for ULS is significantly associated with their attitudes about universal screening rather than their knowledge about cholesterol, family history of CVD, or demographics. 21 Future research could further examine parental attitudes about ULS, pediatrician communication about ULS with patients/families, the barriers to and motivators for completing lipid screening, and the effectiveness of in-clinic phlebotomy and/or point-of-care testing for increasing screening rates.…”

Section: Discussionmentioning

confidence: 99%

Universal Lipid Screening Among 9- to 11-Year-Old Children: Screening Results and Physician Management

Eichberger

Kern

Wang

et al. 2022

Clin Pediatr (Phila)

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Universal lipid screening (ULS) is recommended for all 9- to 11-year-old children. We investigated ULS outcomes and long-term pediatrician management of children with dyslipidemia using a retrospective chart review of well-child visits between 2014 and 2016. Descriptive statistics summarized demographics, ULS results, and follow-up visits/testing. Pearson χ2 test examined differences between those with and without an abnormal screen. A total of 1039 children aged 9 to 11 years were seen for a well-child visit; only 33.3% (343/1039) completed screening. Of children screened, 18.1% (62/343) had abnormal screen results and were more likely to have an elevated body mass index ( P < .001), though 30.1% (19/62) had no risk factors. A total of 10.2% (35/343) had dyslipidemia. A total of 77.1% of children with dyslipidemia received nutrition/exercise counseling and 57.1% received dietitian referrals; only 68.6% had a follow-up visit and 31.4% had repeat lipid testing. Pediatricians would benefit from more practical strategies for universal testing such as point-of-care testing and long-term management to ensure ULS is an effective screening tool.

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“I don’t think people should die young”: perspectives of parents with children diagnosed with familial hypercholesterolemia

Tsai,

Young,

Cherny

et al. 2024

J Community Genet

View full text Add to dashboard Cite

Parental Knowledge and Attitudes About Universal Lipid Screening Among Children Aged 9 to 11 Years

Cited by 4 publications

References 18 publications

“I don’t think people should die young”: Perspectives of parents with children diagnosed with familial hypercholesterolemia

“I don’t think people should die young”: Perspectives of parents with children diagnosed with familial hypercholesterolemia

Universal Lipid Screening Among 9- to 11-Year-Old Children: Screening Results and Physician Management

“I don’t think people should die young”: perspectives of parents with children diagnosed with familial hypercholesterolemia

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