Parental experience of interaction with healthcare professionals during their infant’s stay in the neonatal intensive care unit

Gallagher, Katie; Shaw, Chloë; Aladangady, Narendra; Marlow, Neil

doi:10.1136/archdischild-2016-312278

Cited by 38 publications

(76 citation statements)

References 22 publications

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“…On a more positive note, parents were also sensitive to small gestures of caring from the part of staff. Similar findings as to the importance to parents of signs of kindness and respect from NICU staff have emerged in previous studies [18, 26].…”

Section: Discussionsupporting

confidence: 89%

“…The parents interviewed in the present study felt it was vital for them to be able to trust in the smooth functioning of the NICU and for staff to communicate with them in a comprehensible, thorough and empathic way . Previous studies of NICU parents have identified similar needs [16–18, 26]. Organizational factors making it harder for staff to meet these needs merit special consideration.…”

Section: Discussionmentioning

confidence: 98%

“…In our study, parents were interviewed some weeks to months after their infant’s discharge from the NICU, rather than during the NICU stay as in some previous studies of NICU parents’ needs [16, 18, 26]. Some aspects of the parents’ experience may thereby have faded from their memory.…”

Section: Discussionmentioning

confidence: 99%

“…Furthermore, studies have described parents’ need for a cooperative relationship with nursing staff, where staff respect them and support them emotionally and in their role as parents [16, 17]. A recent study of parents with critically ill infants in the NICU, an especially vulnerable subset of NICU parents, highlights how vividly the parents experienced both positive and negative interaction with nursing staff [18].…”

Section: Introductionmentioning

confidence: 99%

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Psychosocial support for parents of extremely preterm infants in neonatal intensive care: a qualitative interview study

Bry

Wigert

2019

BMC Psychol

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BackgroundExtremely premature infants (those born before 28 weeks’ gestational age) are highly immature, requiring months of care at a neonatal intensive care unit (NICU). For parents, their child’s grave medical condition and prolonged hospitalization are stressful and psychologically disruptive. This study aimed at exploring the needs of psychosocial support of parents of extremely premature infants, and how the NICU as an organization and its staff meets or fails to meet these needs.MethodSixteen open-ended interviews were conducted with 27 parents after their infant’s discharge from the NICU. Inductive content analysis was performed.ResultsFour themes were identified: Emotional support (with subthemes Empathic treatment by staff, Other parents as a unique source of support, Unclear roles of the various professions); Feeling able to trust the health care provider; Support in balancing time spent with the infant and other responsibilities; Privacy.Parents of extremely premature infants needed various forms of emotional support at the NICU, including support from staff, professional psychological help and/or companionship with other patients’ parents. Parents were highly variable in their desire to discuss their emotional state with staff. The respective roles of nursing staff, social workers and psychologists in supporting parents emotionally and identifying particularly vulnerable parents appeared unclear. Parents also needed to be able to maintain a solid sense of trust in the NICU and its staff. Poor communication with and among staff, partly due to staff discontinuity, damaged trust. Parents struggled with perceived pressure from staff to be at the hospital more than they could manage and with the limited privacy of the NICU.ConclusionsThe complex and individual psychosocial needs of parents of extremely preterm infants present many challenges for the NICU and its staff. Increasing staffing and improving nurses’ competence in addressing psychosocial aspects of neonatal care would help both nurses and families. Clarifying the roles of different professions in supporting parents and developing their teamwork would lessen the burden on nurses. Communicating with parents about their needs and informing them early in their NICU stay about available support would be essential in helping them cope with their infant’s hospitalization.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionmentioning

confidence: 98%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Psychosocial support for parents of extremely preterm infants in neonatal intensive care: a qualitative interview study

Bry

Wigert

2019

BMC Psychol

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“…Previous studies have also shown the importance of a primary nurse. 19,23 In addition to a primary nurse, some parents experienced a variable level of individualized support in the unit. This was evident in the units where the whole staff had not finished the training and indicates that without full adoption of the intervention the practices remain inconsistent.…”

Section: Discussionmentioning

confidence: 99%

Close Collaboration with Parents intervention improves family-centered care in different neonatal unit contexts: a pre–post study

et al. 2020

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Background The quality of family-centered care and parental participation in care in neonatal units differ widely across the world. Appropriate education might be an effective way to support medical staff in neonatal units to collaborate with parents and implement family-centered care. The aim of this study was to evaluate the effects of the educational intervention on the quality of family-centered care in eight Finnish neonatal intensive care units from both the staff and parent perspectives. Methods A mixed-method pre–post intervention study was conducted in eight neonatal intensive care units in Finland. Data were collected from staff and parents using the Bliss Baby Charter audit tool and semi-structured interviews. Results The quality of family-centered care, as assessed by staff and parents, increased significantly after the intervention in all eight units. The intervention was able to help staff define and apply elements of family-centered care, such as shared decision making and collaboration between parents and staff. In interviews, staff described that they learned to support and trust the parents’ ability to take care of their infant. Conclusions The educational intervention increased the quality of family-centered care and enabled mutual partnership between parents and staff. Impact This study shows that the educational intervention for the whole multi-professional staff of the neonatal unit improved the quality of family-centered care. The Close Collaboration with Parents intervention enabled mutual partnership between parents and staff. It also provides evidence that during The Close Collaboration with Parents intervention staff learned to trust the parents’ ability to take care of their infant.

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The Decision-Making Process and the Role of the Neonatal Nurse

Gallagher

Leppard

2020

Neonatal Palliative Care for Nurses

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Parental experience of interaction with healthcare professionals during their infant’s stay in the neonatal intensive care unit

Cited by 38 publications

References 22 publications

Psychosocial support for parents of extremely preterm infants in neonatal intensive care: a qualitative interview study

Psychosocial support for parents of extremely preterm infants in neonatal intensive care: a qualitative interview study

Close Collaboration with Parents intervention improves family-centered care in different neonatal unit contexts: a pre–post study

The Decision-Making Process and the Role of the Neonatal Nurse

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