Parental Emotional and Time Costs Predict Compliance With Respiratory Syncytial Virus Prophylaxis

Burden of Severe Respiratory Syncytial Virus Disease Among 33–35 Weeks’ Gestational Age Infants Born During Multiple Respiratory Syncytial Virus Seasons

“…31,32 In addition to increasing healthcare utilization and causing considerable distress for infants and children, hospitalization can significantly disrupt the lives of the families of affected infants, leading to increased emotional and financial burdens. 33–36 …”

Patient Time Requirements for Anticoagulation Therapy with Warfarin

“…Most previous studies measured patient time using clinic schedules or retrospective surveys. 13,14,32,35,36,42,45-48 Few used prospective patient time diaries, 6,7 which may be a better way to obtain reliable data on time allocation. 49 …”

Collecting Direct Non-Health Care and Time Cost Data: Application to Screening and Diagnosis of Cervical Cancer

“…This point was reiterated by Weinstein and others 4 in their attempt to decrease the confusion regarding incorporating productivity costs (i.e., that the lack of conventional measurements for certain costs or consequences does not justify their omission in cost-effectiveness analyses). Some studies [5][6][7][8][9][10][11] have collected direct non-health care costs or time costs, whether alone or as part of a cost-effectiveness analysis (CEA), but no established methodologies currently exist for the collection of direct non-health care cost data. Moreover, many analysts consider the collection and standardization of such data to be a difficult endeavor that may not be worth the time, effort, and money required.…”

“…Data collection methods include self-administered mailed questionnaires, 5 self-administrated questionnaires at the clinic, 7 event diaries and personal interviews in the subjects' homes, 10 and retrospective phone interviews. 9 Nearly all identified studies on time cost data collection were performed in the United States, but some studies were performed in other countries, including the United Kingdom 10 and Tanzania. 11 Validity and reliability of data collection methods are not usually evaluated.…”

“…These costs can affect adherence, which may be a barrier to obtaining health care and potentially affect the results of economic evaluations. 7,9,11 Because many perceive direct non-health care costs as having little or no impact on the "bottom line," little has been done to standardize collection methods for and ascertain the true impact of these costs. In light of this, we conducted a study to demonstrate a method for collecting such data in an interview format.…”