Parental consent for pediatric cadaveric organ donation

Weiss, Anita H.; Fortinsky, Richard H.; Laughlin, James J.; Lo, Bernard; Adler, N E; Mudge, Christine; Dimand, Robert J.

doi:10.1016/s0041-1345(97)00110-3

Cited by 24 publications

(15 citation statements)

References 11 publications

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“…Appropriately timed, high-quality requests that give families sufficient time to discuss and consider donation have been shown to lead to more favorable outcomes (ie, parental authorization). 6,11,12 The donation decision may hinge on the professional and friendly demeanor of providers 6 and their perception as being more trusting, sincere, sensitive, and respectful of the family. 7,11,13 In addition, several qualitative studies indicate that families often view organ donation as a means of coping with the loss of a child, including giving meaning to the death and maintaining a connection with the deceased after the death.…”

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confidence: 99%

A Comparison of the Request Process and Outcomes in Adult and Pediatric Organ Donation

2015

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BACKGROUND AND OBJECTIVES: Although existing studies suggest that factors affecting families' decisions regarding pediatric organ donation mirror those for adult patients, health professionals working in this area maintain that pediatric and adult decision-makers differ in significant ways. This study compared the request process, experiences, and authorization decisions between family decision-makers (FDMs) of adult and pediatric donors and nondonors.METHODS: Perceptions of the donation request were collected via telephone interviews with 1601 FDMs approached by staff from 9 US organ procurement organizations (OPOs). Authorization regarding donation (ie, authorized/refused) was obtained from FDM reports and verified by using OPO records. Tests of association were used to estimate differences between FDMs of adult and pediatric patients. A logistic regression analysis was conducted to identify variables predicting FDM authorization.RESULTS: FDMs of children were significantly more likely to authorize donation than were FDMs of adults (89.7% vs 83.2%; x 2 = 6.2, P = .01). Differences were found between pediatric and adult families' initial feelings toward donation, donation-related topics discussed, communication behaviors and techniques used, perceptions of the request, and receipt and preference of grief information. The likelihood of FDM authorization increased with the number of topics discussed and communication skills employed during requests. Authorization was not predicted by patient age (ie, adult versus pediatric).CONCLUSIONS: FDMs of children are willing to donate and experience no more psychological distress from the request for donation than do FDMs of adults. Communication emerged as a critical factor of family authorization, reinforcing its importance in requests for donation.

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confidence: 99%

A Comparison of the Request Process and Outcomes in Adult and Pediatric Organ Donation

2015

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“…A retrospective survey ( n = 78) by Weiss et al. [18] corroborated this view. Weiss found parental interactions with hospital personnel during their child’s critical illness and death, and the timing of the request for organ donation, extremely influential in many parents’ decision‐making [18].…”

Section: Resultsmentioning

confidence: 83%

“…Weiss et al. [18] mentioned that parental consent could be increased by encouraging parents to discuss organ donation with their children. In action research conducted with students ( n = 336) Waldrop et al [37] stated that family members should be encouraged to discuss their feelings about donation in a noncrisis situation.…”

Section: Resultsmentioning

confidence: 99%

Key factors in paediatric organ and tissue donation: an overview of literature in a chronological working model

Siebelink¹,

Albers²,

Roodbol³

et al. 2011

Transplant International

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Summary There is a growing shortage of size‐matched organs and tissues for children. Although examples of substandard care are reported in the literature, there is no overview of the paediatric donation process. The aim of the study is to gain insight into the chain of events, practices and procedures in paediatric donation. Method; a survey of the 1990–2010 literature on paediatric organ and tissue donation and categorization into a coherent chronological working model of key events and procedures. Studies on paediatric donation are rare. Twelve empirical studies were found, without any level I or level II‐1 evidence. Seventy‐five per cent of the studies describe the situation in the United States. Literature suggests that the identification of potential donors and the way in which parental consent is requested may be substandard. We found no literature discussing best practices. Notwithstanding the importance of looking at donation care as an integrated process, most studies discuss only a few isolated topics or sub‐processes. To improve paediatric donation, more research is required on substandard factors and their interactions. A chronological working model, as presented here, starting with the identification of potential donors and ending with aftercare, could serve as a practical tool to optimize paediatric donation.

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“…13,14,25 It is important for donor parents to feel that the critical care team and OPO coordinator would be supportive of their decision no matter what it was, to have sufficient privacy to discuss donation with other family members, and to feel that the critical care team truly cares about the family and what they are going through. For instance, Weiss et al 26 found that parents' perceptions of insensitivity by hospital staff or the OPO professional was a key factor in not consenting to donation among the 50% of parents who were initially undecided. In contrast, more positive interactions with healthcare professionals influenced favorable organ donation decisions among one-third of the undecided parents.…”

Section: Discussionmentioning

confidence: 99%

Pediatric organ donation: What factors most influence parents??? donation decisions?*

Rodrigue

Cornell

Howard

2008

Pediatric Critical Care Medicine

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Objective-To identify factors that influence parents' decisions when asked to donate a deceased child's organs.Design-Cross-sectional design with data collection via structured telephone interviews.Setting and Participants-Seventy-four parents (49 donors, 25 non-donors) of donor-eligible deceased children who were previously approached by coordinators from one organ procurement organization (OPO) in the southeastern USA.Main Results-Multivariate analyses showed that organ donation was more likely when the parent was a registered organ donor (OR=1.4, CI=1.1, 2.7), the parent had favorable organ donation beliefs (OR=5.5, CI=2.7, 12.3), the parent was exposed to organ donation information prior to the child's death (OR = 2.6, CI = 1.7, 10.3), a member of the child's healthcare team first mentioned organ donation (OR=1.4, CI=1.2, 3.7), the requestor was perceived as sensitive to the family's needs (OR=0.4, CI=0.2, 0.7), the family had sufficient time to discuss donation (OR=5.2, CI=1.4, 11.6), and family members were in agreement about donation (OR=2.8, CI=1.3, 5.2).Conclusions-This study identifies several modifiable variables that influence the donation decision-making process for parents. Strategies to facilitate targeted organ donation education and higher consent rates are discussed.

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Parental consent for pediatric cadaveric organ donation

Cited by 24 publications

References 11 publications

A Comparison of the Request Process and Outcomes in Adult and Pediatric Organ Donation

A Comparison of the Request Process and Outcomes in Adult and Pediatric Organ Donation

Key factors in paediatric organ and tissue donation: an overview of literature in a chronological working model

Pediatric organ donation: What factors most influence parents??? donation decisions?*

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