Parental and provider perspectives on social media about ankyloglossia

Grond, Sarah E.; Kallies, Genevieve; McCormick, Michael E.

doi:10.1016/j.ijporl.2021.110741

Cited by 10 publications

(9 citation statements)

References 26 publications

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“…8,19 As a result of these factors, attitudes toward ankyloglossia among health care professionals range widely with otolaryngologists, pediatricians, speech pathologists, and lactation consultants all differing in their views on the effects of tongue ties and the utility of frenotomy. 8,20,21 This study adds to a body of work that shows how information and misinformation about ankyloglossia online impacts public health. In general, misinformation as a challenge to public health behavior outcomes is a growing issue as new media platforms that differ from older ones in terms of authorship and oversight emerge.…”

Section: Discussionmentioning

confidence: 90%

“…Additionally, differing presentations of tongue ties, normal morphological variation, and spontaneous resolution have led to difficulty in establishing early diagnoses of the condition 8,19 . As a result of these factors, attitudes toward ankyloglossia among health care professionals range widely with otolaryngologists, pediatricians, speech pathologists, and lactation consultants all differing in their views on the effects of tongue ties and the utility of frenotomy 8,20,21 …”

Section: Discussionmentioning

confidence: 99%

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Is Public Interest Associated with Real‐World Management of Ankyloglossia?

Naseem,

Sheth,

Cheng

et al. 2024

Otolaryngol.--head neck surg.

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ObjectivesAssess the relationship between public interest in ankyloglossia as determined by internet search volume and real‐world medical claims data.Study DesignRetrospective Cohort Study.SettingThis retrospective cohort study was conducted using claims data from the Merative™ Marketscan® Research Databases. The internet search data was collected from Google Trends.MethodsAnnual Google Trends data were compiled using search terms associated with “ankyloglossia” and “frenotomy” for the years 2011 to 2021. We obtained incidence of ankyloglossia diagnoses and frenotomy procedures in children under 12 months from Marketscan relative to all infants enrolled. We compared associations between search and incidence data among US states and over time.ResultsGoogle search correlated with ankyloglossia incidence (r = 0.4104, P = .0031) and with frenotomy incidence (r = 0.4062, P = .0034) per state. Ankyloglossia diagnoses increased with Google search index (coefficient = 0.336, 95% confidence interval [CI] 0.284, 0.388) and year (coefficient = 0.028, 95% CI 0.025, 0.031). Similarly, frenotomy procedures increased with Google search index (coefficient = 0.371, 95% CI 0.313, 0.429) and year (coefficient = 0.027, 95% CI 0.024, 0.030).ConclusionsAssociations between online ankyloglossia search trends and both diagnosis and treatment rates, persist across US regions and timeframes. Internet search trends are pivotal in shaping pediatric health care decisions, driving clinical consensus, and disseminating evidence‐based information.

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Section: Discussionmentioning

confidence: 90%

Section: Discussionmentioning

confidence: 99%

Is Public Interest Associated with Real‐World Management of Ankyloglossia?

Naseem,

Sheth,

Cheng

et al. 2024

Otolaryngol.--head neck surg.

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“…The majority of parents surveyed in our study who had heard of LT had received information from social media, family, and friends. Although the Internet serves as a major source of medical information, there is often a disconnect between professional recommendations and the information patients and parents read on nonmedical social media websites 17 . Social media has the potential to provide parents with evidence‐based, user‐generated information, but it often distributes opinions that are not based on facts and may even be contradictory to professional recommendations 18 .…”

Section: Discussionmentioning

confidence: 99%

“…22 Additionally, there is evidence that parents may be confusing the terms LT and "tongue tie." In a study about parental perceptions of ankyloglossia and frenotomy outcomes on Twitter, 20% of the reviewed tweets mentioned LT. 17…”

Section: Breastfeedingmentioning

confidence: 99%

Maxillary Frenulum and “Lip Tie”: What Parents Understand

Bacon,

Carr

2023

OTO Open

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ObjectiveTo determine the proportion of parents that have some knowledge of abnormal maxillary frenulum, or “lip tie,” and their sources of this information.Study DesignCross‐sectional study.SettingOtolaryngology clinic.MethodsConsecutive parents of children ≤12 years of age presenting at a pediatric otolaryngology clinic were surveyed to discover their understanding of “lip tie” in children. The survey included questions on the effects of “lip tie,” where they learned about “lip tie,” whether they thought their child had “lip tie,” whether they had a child undergo “lip tie” division, and how concerned they would be if they thought their child had “lip tie.” Information on participant demographics and social media was collected.ResultsOverall, 59.8% (193) of the 323 parents surveyed had heard of “lip tie”; of those, 17.1% (33) had a child that had undergone “lip tie” surgery. Most parents (91.2%, 176) thought “lip tie” caused breastfeeding problems. Roughly one‐quarter of parents (51 of 197 responses) rated their concern about “lip tie” as >8 of 10 on a Likert scale (mean, 5.7). The reported sources of “lip tie” information included lactation consultants (36.8%, 71), nurses (22.8%, 44), and pediatricians (31.6%, 61) as well as nonmedical sources, such as social media, family, and friends (68.4%, 132). Overall, 87% (282) of the 323 participants reported daily use of social media.ConclusionAlthough many parents are concerned about “lip tie,” much of their information on this condition comes from nonmedical sources. Social media would be a valuable platform to provide accurate information on “lip tie.”

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“…Interestingly, the increase in interventions have occurred in the absence of high-level evidence supporting the practice, and with only limited consensus among some healthcare providers (Messner et al, 2020;Walsh & Tunkel, 2018). The absence of conclusive professional guidance may explain this finding (Jin et al, 2018;Messner et al, 2020) and the increasing visibility of tongue-tie on social media platforms (Grond et al, 2021;Messner et al, 2020;Ray et al, 2020;Wei et al, 2020) could be important drivers of this phenomenon. An increase in consumer interest has been further supported by Aaronson et al (2018), who documented that, while online searches for "ankyloglossia" and "frenulectomy" remained stable across the time period assessed (2012)(2013)(2014)(2015)(2016)(2017), searches for "tongue-tie" increased by ~50%.…”

Section: Introductionmentioning

confidence: 99%

Tethered Oral Tissue Release Among Breastfed Infants: Maternal Sources of Information and Treatment

et al. 2023

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Background: Despite limited clinical consensus regarding surgery for tethered oral tissues (“tongue-tie”) for resolving breastfeeding-related issues, the procedure has been increasing in the United States. Greater understanding of maternal experiences with obtaining surgical release may help to improve breastfeeding outcomes. Research Aim: To explore experiences of breastfeeding mothers with infants having undergone “tongue-tie” surgery. Method: This online, cross-sectional, observational survey occurred between August and September 2020. Eligibility included being ≥ 18 years of age and previously or currently breastfeeding an infant with ≥ 1 tissue surgically released. Of 463 screens, 318 mothers were eligible and 115 consented. The final sample was 90. Results: The sample was predominantly white ( n = 86; 95%), non-Hispanic ( n = 84; 93%), married/cohabitating ( n = 85; 94%), and currently providing their own milk ( n = 81; 89%). Difficult latch was the primary reason for seeking help. Participants reported lingual ( n = 84; 93%), labial ( n = 79; 88%), and buccal ( n = 16; 17%) tissue-release, with 80% ( n = 73) reporting > 1 released. For each tissue released, > 80% ( n = 72) of participants felt “very confident” in their ability to correctly identify it and 97% ( n = 87) felt “very involved” and “strongly agreed” with surgical release. International Board Certified Lactation Consultants® were the most frequently identified source of information ( n = 45; 50%) and referrals ( n = 38; 42%), while pediatric dentists most frequently performed interventions ( n = 60; 67%). Conclusions: Participants reported being confident, involved, and in agreement with surgical release and lactation support professionals were frequent information and referral sources.

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Parental and provider perspectives on social media about ankyloglossia

Cited by 10 publications

References 26 publications

Is Public Interest Associated with Real‐World Management of Ankyloglossia?

Is Public Interest Associated with Real‐World Management of Ankyloglossia?

Maxillary Frenulum and “Lip Tie”: What Parents Understand

Tethered Oral Tissue Release Among Breastfed Infants: Maternal Sources of Information and Treatment

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